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18 December 2013 Last updated at 22:28 GMT
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A Kent woman who has spent years bed-ridden with Chronic Fatigue Syndrome, also known as Myalgic Encephalomyelitis (ME), has set up a charity to support children who spend life indoors due to illness.
Jessica Taylor, 22, from Cliffe Woods, suffers from debilitating fatigue, painful muscles and poor concentration.
Her sister, Ruby Taylor, who has helped Jessica start a charity called Share a Star, said the impact on the family was more evident at Christmas time.
Dr Charles Shepherd, from the ME Association, said some people with the condition could become totally dependent on others.
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