[QUOTE:Marylib]Yes, it is ironic....many of us wish we just had back the money we have spent on treatments so we could afford to hire someone to do the mountains of laundry or clean the grungy house! Or hire someoene to take us to a sunny beach now and then...[/QUOTE] hi marylib - i sooooooo agree with this one! Do love hearing from ya'all about anyone who's gotten any degree better - especially enough to be able to work to some extent. It's all so idiopathic - pin the tail on the donkey - or pinata. Just imagine - we may end up soon having a clear way to treat ME/CFS!!!! Even the glimmer of a possibility is earth-shattering for me. Have tried to make the best of this very small world, but sure would be lovely to revisit the other 90% or so of life.