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Ken Lassesen's comments on XMRV

Discussion in 'XMRV Testing, Treatment and Transmission' started by dannybex, Oct 20, 2009.

  1. shrewsbury

    shrewsbury member

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    [QUOTE:Marylib]Yes, it is ironic....many of us wish we just had back the money we have spent on treatments so we could afford to hire someone to do the mountains of laundry or clean the grungy house! Or hire someoene to take us to a sunny beach now and then...[/QUOTE]

    hi marylib - i sooooooo agree with this one!

    Do love hearing from ya'all about anyone who's gotten any degree better - especially enough to be able to work to some extent. It's all so idiopathic - pin the tail on the donkey - or pinata. Just imagine - we may end up soon having a clear way to treat ME/CFS!!!!:D Even the glimmer of a possibility is earth-shattering for me. Have tried to make the best of this very small world, but sure would be lovely to revisit the other 90% or so of life.
     
  2. Dreambirdie

    Dreambirdie work in progress

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    I know that world. ;):):) It is BIGGGG and spacious.

    I also know some of the shape-shifting crazy beliefs that prevent me from being there, and that big ogre of resistance that blocks the path in. :)mad: no no no, I don't WANT TO FEEL THAT!)

    When I get really stuck, I always have to ask myself the same questions: What belief is DRIVING me now? and... Is this true? Usually, the beliefs are remarkably ignorant, and totally convinced of their rightness. But they are no match for the truth, next to which they lose their swagger very quickly. And sometimes, they sound so ridiculous, that I laugh out loud. "I was believing THAT! I was defining myself according to THAT!" Wow, what a liberation the truth can bring.
     
  3. Koan

    Koan Be the change.

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    I know I got us a little OT here :eek:

    But, since we're already OT :)

    That sense of peaceful, limitless space is what I most enjoy about meditation. It's very soothing, very restful and allows one to develop a way of being that is spacious -- thoughts are not rammed up against each other. I think the very first benefit of meditation is understanding that there can be space around thoughts which allows one to respond to them and not always to simply react.

    I have found this most useful in dealing with ME.

    The Buddha said: When you realize how perfect everything is, you will throw back your head and laugh at the sky.
     
  4. Dreambirdie

    Dreambirdie work in progress

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    OH that is good! I love that Buddha. He knew what he was talking about! :)
     
  5. Koan

    Koan Be the change.

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    I knew you'd like that, Dream. I was reminded of it because of what you wrote about your own reaction to your thoughts.

    I, too, love the Buddha. I love the fact he cracked suffering because he suffered. I love the fact that he was moved to do so because he was overwhelmed and totally neurotic. I love that he said, repeatedly: don't believe me, or anyone else for that matter, try it for yourself.

    :D
     
  6. Ruth

    Ruth Member

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    Madison, WI
    anxious drivenness

     
  7. Dreambirdie

    Dreambirdie work in progress

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    YES YES and YES. Go for it!
     
  8. dannybex

    dannybex Senior Member

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    Where best to start it...

    I'm all for starting a new thread, with a poll too (keeping in mind that 'stressors' come in many forms), but where do you think is the best place?

    Here in the XMRV section?

    Or in the Mind/Body section (w/comments re the XMRV connection)?

    I tend to favor the latter, because stress affects all disease, whether we turn out to have XMRV or not (or active infections or XMRV antibodies)...plus, we would naturally be bringing up a lot of different mind/body techniques (meditation, Gupta, EFT, Energy Medicine, etc..)

    What do you all think?

    I'll be baaaaaaaaack. I need to DE-STRESS. We all do. :)

    d.
     
  9. Dreambirdie

    Dreambirdie work in progress

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    I vote for it being on Mind Body, too.
     
  10. Koan

    Koan Be the change.

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    I think that's a great idea.

    Go for it!

    and

    Breathe
    :p
     
  11. shrewsbury

    shrewsbury member

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  12. jprints

    jprints Guest

    Robin

    "Don't give up. No matter where you are, there is always hope."

    I like what you said, Robin. Especially your last sentence has a lot of power - Joy

    PS still working on incorporating the quotes in the reply - time to read the directions!:eek:
     
  13. Wayne

    Wayne Senior Member

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    XMRV Cortisol Receptors

    Hi Ruth, Hi All,

    I was wondering if this aspect (XMRV cortisol receptors) has been discussed in depth anywhere on this board. I take low-dose Cortef (cortisol) for severe adrenal insufficiency and would like to get a sense of whether these XMRV receptors might be a significant factor me.

    I would also wonder if it might be an individual thing. I've posted fairly extensively on my on successful low-dose cortisol supplementation, but have heard from others, even those with severe adrenal insufficiency, that taking even the smallest amount of prescription cortisol gives them extremely negative reactions.

    Anyway, if anybody knows of a thread with more information, I would appreciate if you could steer me in that direction. -- Thanks.

    Wayne
     

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