@Dmitri So are you thinking that Kawasaki's disease is actually your diagnosis? Or that you have multiple diagnoses? I am very interested in the number of people who were misdiagnosed with ME/CFS but ultimately turn out to have something very similar yet different.
I think everything may have started with something resembling temporary kawasaki's which left some type of nerve damage, or hyperactive microglia if going by that theory. I also thought about drug-induced lupus, since the antibiotic I was given, isoniazid, is known to cause it. I still believe there's an active autoimmune process going on that is driving neuroinflammation, but the only clues to that are elevated ANA and family history of lupus/sjogrens.
If prednisone once relieved my symptoms (before the second dose at which it gave me a severe MCAS-type reaction), that's another clue that may suggest it's autoimmune or peripheral inflammation. I've also been taking LDN for two months which is supposed to help a subset of autoimmune and ME patients, but don't feel any response. At least I'm tolerating it, which is remarkable for such a long period of time.
IVIG is the standard treatment for Kawasaki's, but I can't find official or anecdotal on it being used to treat post-KD "CFS". I would really like to see what effect IVIG has on me, but I don't know which direction to continue my "diagnostic odyssey" to get it prescribed. I am at the point where only such heavy-hitting treatments give me some hope.