me/cfs 27931
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I wanted to raise awareness that Kaiser Permanente has a DNA bank from patient blood and saliva available to researchers. I'm a participant.
Apparently, any researcher can apply for the data.
From their website - http://kp.org/researchbank
PS: I was a Kaiser Permanente patient for 17 years before I finally got diagnosed with ME/CFS. I had to personally walk into my Kaiser doctor's office with a copy of the Institute of Medicine Report before he would believe this disease and my symptoms were real and not psychological. After diagnosis, Kaiser offered no treatment. After diagnosis, I was told by some Kaiser doctors that I'm a fraud and that my neuro symptoms aren't real.
Apparently, any researcher can apply for the data.
From their website - http://kp.org/researchbank
I'd love to see my DNA used to help find a test, treatment or cure for ME/CFS.DNA Could Help the KP Research Bank Discover New Ways to Prevent Disease
What causes diseases like cancer, asthma, and Alzheimer’s? What are the impacts of lifestyle and history on a person’s risk of disease? Scientists working with the Kaiser Permanente (KP) Research Bank are using DNA and other information to find new ways to help people live healthier lives.
What Could this Research Mean?
It could lead to breakthroughs in ways to prevent or treat diseases. In the future, patients may receive health care based on their individual DNA, environmental, and lifestyle information. DNA information could be used to:
Thousands of KP members have agreed to participate in the KP Research Bank and to provide DNA and health information for health-related research. Researchers need to collect DNA from people of all ages, genders, ethnicities, and backgrounds so discoveries can benefit even more people.
- Test earlier for diseases;
- Prescribe the most effective medicines;
- Better understand the warning signs of disease;
- Predict the risk of getting a disease;
- Understand new ways to prevent disease.
PS: I was a Kaiser Permanente patient for 17 years before I finally got diagnosed with ME/CFS. I had to personally walk into my Kaiser doctor's office with a copy of the Institute of Medicine Report before he would believe this disease and my symptoms were real and not psychological. After diagnosis, Kaiser offered no treatment. After diagnosis, I was told by some Kaiser doctors that I'm a fraud and that my neuro symptoms aren't real.