Just diagnosed with Lyme

[Art Vandelay]

@@Art Vandelay
Writing you Because of the following.

I was on the Coimbra protocol for 5 weeks, for ME/CFS, As it has helped some people with this condition.
Meaning taking about 400,000 units of vitamin D !
But Unfortunately I reacted very strongly on the protocol, making me bedbound Now in A very short time.

Now my Regular specialist Professor de Mierleir Says that a subset of his patients reacted very badly to vitamin D.

So he suggested to take Olmesartan To improve my situation.

So I'm ordering these drugs now And I was wondering if you could give me some piece of advice...
As I've seen you have been taking for a long while.

Are you also intolerant to Vitamin D supplements?

Hi @dr. Arf yes, Vitamin D supplements make me feel very ill. A previous doctor got me to try a single dose of 10,000 units of vit D and I felt like I was dying. My head, neck and back went completely numb and my brain fog, inflammation, gut and other ME/CFS symptoms got much worse. It took me at least 6 months to get over it.

Does Prof De Mierleir put many of his patients on Olmesartan? It is best to get very close support from your doctor if you are taking Olmesartan.

 

[dr. Arf]

Hi @dr. Arf yes, Vitamin D supplements make me feel very ill. A previous doctor got me to try a single dose of 10,000 units of vit D and I felt like I was dying. My head, neck and back went completely numb and my brain fog, inflammation, gut and other ME/CFS symptoms got much worse. It took me at least 6 months to get over it.

Does Prof De Mierleir put many of his patients on Olmesartan? It is best to get very close support from your doctor if you are taking Olmesartan.

@Art Vandelay

So we are a same subset of patients that do not tolerate vitamin D...
Do you know anything, any suggestion to relief these symptoms, that I equally have ?
To get the vitamin D quicker out of the system?

Using Olmesartan should give some relief, correct?

The Professor normally does not use Olmesartan but has some experience (with MP), problem is he's a very busy man and not very available...

So what are the reasons to have close doctors support, with this?
Should I build up slowly dosage?

 

[Art Vandelay]

@Art Vandelay

So we are a same subset of patients that do not tolerate vitamin D...
Do you know anything, any suggestion to relief these symptoms, that I equally have ?
To get the vitamin D quicker out of the system?

I'm not sure what would help here. Have you had your 25 vit D and your 1,25 vit D levels tested? This may explain why you can't tolerate vitamin D.

Using Olmesartan should give some relief, correct?

It helped me a lot in that it relieves my brain fog, inflammation and insomnia in particular. However, it may also have some negative effects too depending on the person. For me, it makes me very sensitive to light. It also provokes Herxheimer reactions (symptoms include tachycardia, headache, chills, fever, aches and pains, anxiety) which can make me feel a lot worse while they last.

The Professor normally does not use Olmesartan but has some experience (with MP), problem is he's a very busy man and not very available...

So what are the reasons to have close doctors support, with this?

I think it is best to have a supportive, informed doctor to help with Olmesartan because they can ensure that you get the dosage of the Olmesartan correct and also to help you cope with the negative side-effects. I found the Herx reactions to be quite scary early on, so I needed someone to reassure me that I was ok. It's worth getting regular blood tests just to make sure your kidneys in particular are ok.

Should I build up slowly dosage?

This question is probably best answered by a doctor with some experience. My doctor originally started me on 2 x 40mg per day, however I found that this dose was too low because I felt much worse (and I was annoyed that he didn't suggest I try a higher dose). I am now on 4 x 40mg per day and this helps minimise the inflammation.

I think the MP people recommend that you don't build up the dosage slowly, but I am not too sure what they do. It might be worth asking on the MP forum as they have much more experience than me: https://www.marshallprotocol.com/

Hope this helps!

 

[dr. Arf]

Thanks @Art Vandelay

Feeling worse every day...
Will let you know if I start taking it

 

[Art Vandelay]

Thanks @Art Vandelay

Feeling worse every day...
Will let you know if I start taking it

I'm very sorry to hear that you're feeling worse. Definitely let us know how you're going and whether you try the Olmesartan.

 

[uglevod]

@Art Vandelay

Art, may I ask what kind of response you are experiencing with Lactoferrin coupled with Olmesartan and antibiotics. Like does it contribute to hypotension, fatigue levels, neurological symptoms, etc. I'am o MP and have minor progress though I can already see its a very lengthy protocol(3..6 years). Thanks.

@dr. Arf

Originally sartans like Olmesartan and others were used to give a relief while staying on antibiotics(primary pulsed macrolide+tetracycline class one like minocycline) - it was later discovered firstly by observation that only Olmesartan out of the whole class of sartans also possesses a powerful immune stimulating effect.

 

[Art Vandelay]

Art, may I ask what kind of response you are experiencing with Lactoferrin coupled with Olmesartan and antibiotics. Like does it contribute to hypotension, fatigue levels, neurological symptoms, etc. I'am o MP and have minor progress though I can already see its a very lengthy protocol(3..6 years). Thanks.

Hi @uglevod I am no longer using antibiotics and lactoferrin because I felt like my progress was slower. These days, I an just taking Olmesartan 4 x 40mg per day.

I did find that the lactoferrin and antibiotics did worsen my light sensitivity, insomnia, anxiety and fatigue levels in particular.

As you are noticing, the MP can be a very lengthy protocol. It is not unusual to come across people who have been on it for 10 years. Hope you are going ok with it.