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Just add "syndrome"

Discussion in 'Action Alerts and Advocacy' started by drjohn, Apr 19, 2011.

  1. drjohn

    drjohn Senior Member

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    PLEASE DO FORWARD AND RE POST TO ENCOURAGE DEBATE

    Can anyone tell me how adding the word "syndrome" to "chronic fatigue"
    makes it anything different from what you started with and, crucially,
    how it turns it into Myalgic Encephalomyelitis?
    You may guess from the way I put this question that I do not think it does.

    Best wishes
    John
    drjohngreensmith@mefreeforall.org
    ME Free For All.org
     
  2. rlc

    rlc Senior Member

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    Hi drjohn, thats an amusing question, the answer to it however isnt

    The answer is that chronic fatigue is a Symptom! Of according to diagnosispro diagnostic software 299 illnesses http://en.diagnosispro.com/differen...ific-agent-chronic-fatigue/25271-154-170.html as you can imagine its going to take a doctor a considerable amount of time, effort and testing to work out which one of these illnesses is causing the fatigue, added to which a lot of them are rare and the average doctor knows nothing about them!

    By adding the word syndrome to chronic fatigue, a doctor is able to get out of doing all this work and gets to hide all their lack of knowledge about a lot of diseases, and can easily give the patient a diagnosis of CFS as if it a real disease, leaving the patient to suffer for the rest of their lives, from illnesses that in a lot of cases are curable and if not treatable and in some cases the patient lives will be dramatically shortened if the missed illness is a fatal one. More information here http://www.hfme.org/misdiagnosis.htm and here http://www.hfme.org/wheretoaftermisdiagnosis.htm

    As for how does calling the chronic fatigue CFS make it Myalgic Encephalomyelitis the simple answer is it doesnt!!! This is an outrageous lie being promoted by the CDC and the Wessley School that is unfortunately being believed by a lot of doctors, patients and unfortunately a lot of groups that are claiming to provide information on ME and CFS on the internet.

    ME is an acute and severe onset disease of the central Nervous system (its onset is described here http://www.hfme.org/meonset.htm ) of which fatigue isnt even a defining characteristic! That has been recognized as a disease of the central nervous system by the WHO since 1969, and this damage to the central nervous system can be scientifically measured by SPECT.PET and QEEG scans, and has more in common with MS then it does with the bogus disease CFS. None of the CFS definition define ME our any specific disease! The definitions that define ME and are written by the world experts in it are the Ramsey definition http://www.mecfsforums.com/wiki/Ramsay_definition and the Nightingale definition http://sacfs.asn.au/download/NightingalesDefinitionofME.pdf

    CFS has been used to cover up the existence of ME, by saying that theyre the same thing, and by including the lie that there are no clinical signs and no failed tests in the CFS definitions, and therefore implying that it is a psychiatric condition, this has allowed insurance companies who a lot of the members of the Wessely school work for! To save Billions of dollars because patients arent paid if their illness is a psychiatric one! Info here http://www.hfme.org/whobenefitsfromcfs.htm

    Interesting when CFS was invented by the CDC in the Holmes definition it wasnt a mystery illness! It was said to be caused by having one of these chronic viral conditions EBV, CMV, herpes type 1 or 2 and measles and you had to have a failed test for one of these viruses to qualify for the diagnosis!

    The symptoms that you where supposed to have are basically those of a Chronic EBV infection. Obviously its madness to give 5 different viral infections the same name and then imply that they were the same thing as ME, but this is what they did in the Holmes definition link http://www.ncf-net.org/patents/pdf/Holmes_Definition.pdf more information on the history of ME and the invention of CFS can be found here http://www.imet.ie/imet_documents/BYRON_HYDE_little_red_book.pdf and information on testing for ME and diseases mistakenly called CFS or ME/CFS can be found here http://www.wicfs-me.org/Pdf Files/Byron Hyde - Complexities of Diagnosis.pdf

    CFS as a Mystery disease with no clinical signs and no failed tests was actually invented by everybodys favourite psychiatrists from the Wessely School in the Oxford definition http://www.theoneclickgroup.co.uk/documents/PACE/CFS Oxford Criteria 1991.pdf written by the likes of S Wessely, MC Sharpe, AW Clare all members of the Wessely School in this criteria post infectious fatigue syndrome has become a sub set of CFS. And the psychiatrists have invented a new illness called CFS with no clinical signs or failed tests. Which means it can only be seen as a psychiatric illness.

    By the time you get to the CDC 1994 Fukuda definition http://www.cdc.gov/cfs/general/case_definition/complete.html again dominated by Wessely School psychiatrists like Mc Sharpe, I Hickie, S Wessely all pretences of post infectious fatigue syndrome has been dropped and it has become a mystery illness with no physical signs or failed tests, and because of this Doctors give this diagnosis as if its a real disease and once youve got this diagnosis it becomes almost impossible to get more testing, because doctors believe people with CFS dont fail tests so theres no point in testing people with it, and patients then get trapped into a lifetime of suffering because there real illness has been missed and frequently waste what little money they have on bogus cures being promoted for a disease that doesnt exist.
    So in summary

    1 Chronic fatigue is a Symptom of 299 illnesses.

    2 Chronic fatigue syndrome is a bogus illness invented by the CDC and the Wessely School for the benefit of vested interest group that has no scientific or medical legitimacy! And is a waste basket diagnosis.

    3 ME is a very real disease that has been extensively scientifically studied since 1934, who existence is a medical fact! And since 1988 due to the actions of the CDC and the Wessely School all of this evidenced has been ignored, there has been no government funding for research into ME and all research that has been said to be being done on it, is being done a groups of people with a large number of different illness due to the inclusion of CFS misdiagnosed people into these studies, which is why every study done since 1988 always comes up with extremely contradictory results, And ME patients have been left to suffer with no help or support and are being given the possibly most demeaning medical name ever invented Chronic Fatigue Syndrome.

    All the best
     
  3. drjohn

    drjohn Senior Member

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    Thanks for putting in all that work, Ric. I don't find anything amusing about the association of Fatigue and its two bookends Chronic and Syndrome with M.E. - and I sense that nor do you? I have my teeth into the matter. Best wishes John
     
  4. rlc

    rlc Senior Member

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    Hi drjohn, I found the question amusing in an ironic kind of way, because in a few sentences you showed just how stupid this situation is!!! And because I asked a similar question to a doctor last year, whose reply was the only two illnesses that that cause chronic fatigue are depression and CFS (try telling that to a cancer patient) needless to say he was immediately sacked!

    As you very rightly deduced, the actual situation of vast numbers of people being given a waste basket diagnosis CFS, and having their lives destroyed because doctors won't test people to find out whats wrong with them! And that all research into ME has been stopped since 1988 because of groups like the CDC and the Wessely School saying that ME and the bogus disease category CFS are the same thing leaving ME patient with no help, both deeply saddens and angers me immensely! And I consider it to be a crime against Humanity!

    All the best
     
  5. 5150

    5150 Senior Member

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    ric,
    thanks for your input on this topic. it's the best answer i've ever heard; i learned a lot, and so will the next person i speak with.
     
  6. Snow Leopard

    Snow Leopard Hibernating

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    It makes me wonder why they don't call 'cancer' "cancer syndrome", because that is what it is. Everyone develops cancer cells, but only in rare cases does it further develop into to health threatening tumours. The reasons for this in specific cases is not explained.
     
  7. drjohn

    drjohn Senior Member

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    Exactly, Snow Leopard. I cannot think of a case of "syndrome" being used, which does not contain a tautology or is redundant, sinc eit does not add anything.
     
  8. Francelle

    Francelle Senior Member

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    Victoria, Australia
    Is 'syndrome' either redundant or a tautology in Down Syndrome? In my experience the 'syndrome' refers to a collection of symptoms/characteristics like heart defects, Brushfields spots, low set ears etc etc.
     

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