1. Patients launch a $1.27 million crowdfunding campaign for ME/CFS gut microbiome study.
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New Exercise Study Brings Both Illumination and Questions
Simon McGrath looks at new objective evidence of abnormal response to exercise in ME/CFS patients, and the questions that researchers are still trying to answer ...
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(Junk?) (UK) Consumer demand and NHS services

Discussion in 'Action Alerts and Advocacy' started by Dolphin, Jun 21, 2010.

  1. Dolphin

    Dolphin Senior Member

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    I don't know if the following is really true or whether it can be used to say patients with ME/CFS don't want GET and CBT based on GET services and so that should not be what is offered?
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    Background:

    Somebody sent me this:

    Br J Psychiatry. 2002 Dec;181:468-72.
    From passive subjects to equal partners: qualitative review of user involvement in research.
    Trivedi P, Wykes T.
    Full free text:
    http://bjp.rcpsych.org/cgi/content/full/181/6/468

    I can't say I found it particularly exciting, nor am I recommending people read it.

    The quote is from:

    How will dissemination occur?
    The dissemination of clinical research findings generally occurs only in peer-reviewed journals and during academic conference presentations. These usually have an impact only on a relatively small number of clinicians who are research-oriented, and the Department of Health and funding bodies have stressed that a much wider dissemination process is necessary. In particular, dissemination to users is essential since, in the new consumer orientation of the UK NHS, it is not only evidence-based, randomised, controlled trials that determine what interventions are introduced into clinical practice, but also consumer demand (Department of Health, 1999).

    Reference:
    Department of Health (1999) Patient and Public Involvement in the New NHS.
    London: Department of Health.

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