Severe ME Day of Understanding and Remembrance: Aug. 8, 2017
Determined to paper the Internet with articles about ME, Jody Smith brings some additional focus to Severe Myalgic Encephalomyelitis Day of Understanding and Remembrance on Aug. 8, 2017 ...
Discuss the article on the Forums.

Julie Rehmeyer Slate blog Hope for ME/CFS, PACE should be reanalysed

Discussion in 'General ME/CFS News' started by Simon, Nov 13, 2015.

  1. Simon

    Simon

    Messages:
    1,915
    Likes:
    14,403
    Monmouth, UK
    Hope for Chronic Fatigue Syndrome: PACE trial is flawed, should be reanalyzed.
    The debate over this mysterious disease is suddenly shifting.

    Julie Rehmeyer

    (My tweet)
     
    Last edited: Nov 13, 2015
    beaker, ahimsa, biophile and 25 others like this.
  2. Sidereal

    Sidereal Senior Member

    Messages:
    3,086
    Likes:
    17,135
    Great article.
     
  3. adreno

    adreno PR activist

    Messages:
    4,847
    Likes:
    11,065
    Nice. Slate has 2.7 million monthly readers. Perhaps @Sasha can get her last couple hundred petitioners here :)
     
  4. Sasha

    Sasha Fine, thank you

    Messages:
    12,780
    Likes:
    34,133
    UK
    Superb article!

    Go and read it, everyone!
     
    Never Give Up, Dolphin, MEMum and 2 others like this.
  5. Sasha

    Sasha Fine, thank you

    Messages:
    12,780
    Likes:
    34,133
    UK
    Funny you should mention that.
     
  6. Yogi

    Yogi Senior Member

    Messages:
    1,076
    Likes:
    6,629
    Fantastic article. Thank you Julie Rehmeyer.

    These online articles are free but I understand if you click the adverts on the links (which are targeted) they publisher gets paid by the advertiser? Is that correct. It would be an easy way of showing support and encourage them to do more such articles.
     
    SOC and moosie like this.
  7. soti

    soti

    Messages:
    97
    Likes:
    297
    This is great!
     
    moosie and Sasha like this.
  8. SOC

    SOC

    Messages:
    7,802
    Likes:
    16,459
    That is just freakin' paranoid. Do they have any reason other than their own wild imaginations to think that ME activists have any interest in publishing the names of participants? Or even the time and energy to do that kind of decryption, assuming it's even possible. What purpose would publishing the names of PACE patients serve that could possibly be worth all that effort?

    What's worse than the fact that the BPS crew is putting out stories like this one and the one about SW feeling safer in a war zone than in a London with ME patients in it, is that apparently sensible people swallow such stories whole instead of laughing in derision at such blatantly propagandist nonsense.

    Great article! We need more of this. Keep up the good work, Jule and others! :thumbsup:
     
  9. Kyla

    Kyla ᴀɴɴɪᴇ ɢꜱᴀᴍᴩᴇʟ

    Messages:
    721
    Likes:
    4,221
    Canada
    comment section is going in a horrible direction.

    Any takers on adding some constructive comments?
     
  10. Valentijn

    Valentijn WE ARE KINA

    Messages:
    14,283
    Likes:
    45,787
    I can't see any comments. Is it necessary to create an account for their site?
     
  11. Cheshire

    Cheshire Senior Member

    Messages:
    1,120
    Likes:
    8,966
    You have to click there:
    upload_2015-11-13_17-10-34.png
     
    Dolphin likes this.
  12. Kyla

    Kyla ᴀɴɴɪᴇ ɢꜱᴀᴍᴩᴇʟ

    Messages:
    721
    Likes:
    4,221
    Canada
    click on the little speech bubble icon (next to twitter and facebook icons)
     
    Valentijn likes this.
  13. Kyla

    Kyla ᴀɴɴɪᴇ ɢꜱᴀᴍᴩᴇʟ

    Messages:
    721
    Likes:
    4,221
    Canada
    Thanks @Cheshire was trying to post the very same thing, but pic wouldn't paste for some reason
     
  14. Kyla

    Kyla ᴀɴɴɪᴇ ɢꜱᴀᴍᴩᴇʟ

    Messages:
    721
    Likes:
    4,221
    Canada
    I feel like we need a BINGO game of horrible trite comments from comment sections on ME&CFS articles.

    comment about joining the army - check
    If there isn't one irrefutable test it must be psychosomatic - check
    "she probably has undiagnosed Lyme disease" - check
    some variation of "buck up" - check
    It must be at least "partly" or mainly psychiatric. because I said so - check.
    "this article is dumb" - check
     
  15. alex3619

    alex3619 Senior Member

    Messages:
    12,387
    Likes:
    34,665
    Logan, Queensland, Australia
    Its a pity most of us cannot drink alcohol or we could make it a drinking game. Sadly water or electrolyte solutions don't cut it
     
    SOC, SB_1108, Kyla and 2 others like this.
  16. worldbackwards

    worldbackwards A unique snowflake

    Messages:
    2,091
    Likes:
    10,354
    Earth
    "I'm tired from just reading this article (ho ho)"
    "...middle class housewives..."
    "...no scientific evidence..."
     
  17. SOC

    SOC

    Messages:
    7,802
    Likes:
    16,459
    It's slightly humorous (in a dark sort of way) that they think they are being so clever and insightful when they are just repeating very old and tired (and debunked) cliches. It's getting quite yawn-making, actually.
     
    Valentijn, Sean, Sea and 4 others like this.
  18. Cheshire

    Cheshire Senior Member

    Messages:
    1,120
    Likes:
    8,966
    #MEAction published foreign langage translations of Julie's paper:

    Deutch: http://www.meaction.net/hoop-voor-chronisch-vermoeidheid-syndroom/ @Valentijn (sorry I know there are other people living in the Netherlands on PR, but I can't recall their name...)

    French: http://www.meaction.net/de-lespoir-pour-le-syndrome-de-fatigue-chronique/ @funkyqueen
    Edit: the French translation is also published here: http://www.sfc-em.com/de-lespoir-pour-le-syndrome-de-fatigue-chronique/

    Norvegian: http://www.meaction.net/hap-for-myalgisk-encefalopati-me/ @mango @deleder2k

    Spanish: http://www.meaction.net/esperanza-para-el-sindrome-de-fatiga-cronica/

    @Tom Kindlon @Dolphin (I know you often release foreign langage links!) and others, do not hesitate to tweete!
     
    Last edited: Dec 4, 2015
    Dolphin, Bob, morse27 and 4 others like this.
  19. funkyqueen

    funkyqueen Senior Member

    Messages:
    121
    Likes:
    252
    South of France

    Thanks @Cheshire !
    It's bad that i'll not share it, because, my disease is ME, and not "Syndrome de Fatigue Chronique"..
    Even if sometimes i shared on social networks some links with " ME/CFS", ok, but only " CFS", this appellation
    just drive me crazy...
     
    morse27 likes this.
  20. Bob

    Bob

    Messages:
    9,846
    Likes:
    33,942
    England (south coast)
    What is 'myalgic encephalomyelitis' in French?
     
    funkyqueen likes this.

See more popular forum discussions.

Share This Page