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Judy Mikovits email advice regarding XMRV negatives and variants.

Discussion in 'XMRV Research and Replication Studies' started by bullybeef, Mar 13, 2010.

  1. bullybeef

    bullybeef Senior Member

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    I recieve the following email from Dr. M. I did post this elsewhere, but it has been suggested it maybe relevant to all:

  2. Alexia

    Alexia Senior Member

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    Thank you so much for sharing this information BB. We have so little information that it's VERY important to share it as much as possible. There is such a long way to go! the knowledge is so limited at the moment and we have been suffering for so long, sometimes I get desperate. Good luck with your test BB.
  3. Bob

    Bob

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    bullybeef, thanks so much for posting this... it's fascinating...

    ...The WPI are not going to give up on people, and all negative results will be retested when the testing techniques are finalised.

    ...so we need to be patient... the WPI are working hard on this virus, and they know what they're doing.

    ...wow, does this mean that Judy is actively looking for XMRV-2?

    ...in other words: 'we know what we're doing, and we are doing it methodically', and no one can dispute that this virus is present in ME patients, at least in the WPI's research samples.

    ...she's so kind!


    Is Judy Mikovits a warrior?!
  4. Kati

    Kati Patient in training

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    I believe she is... she's a HERO!
  5. omerbasket

    omerbasket Senior Member

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    When all this would be over, and even if somehow XMRV would be found to not be associated with ME/CFS, I would have very very good things to say about Dr. Mikovits, Dr. Peterson, Dr. Lombardi, the other scientists and people that took a place in that study, and offcourse, the Witthemore family.
  6. jimbob

    jimbob ME/CFS84-XMRV+

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    I agree, but lets hope that's not the case!
  7. ukxmrv

    ukxmrv Senior Member

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    Yes, she's our own Boudicca!

    In one of the talks she spoke about the possibility of different XMRV's and said that a colleague was looking at something in China. They contacted her I think. There was also an email to this forum last year I think.
  8. fingers

    fingers Senior Member

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    Knowledge -> Wisdom

    It's not, Alexia. There's masses of it. Just that no one has been able to make sense of it yet.
  9. usedtobeperkytina

    usedtobeperkytina Senior Member

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    Interesting about different XMRV. She is stronger in this e-mail about that. Before she was more of "it's possible." Sounds like here she is saying it is very likely. And she says this might explain different levels of symptoms.

    I wonder how likely it is there are two XMRV's considering the virus does not replicate often.

    Very interesting.

    Tina
  10. usedtobeperkytina

    usedtobeperkytina Senior Member

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    nuff

    'nuff said:

    "Electron micrographs don't lie..and a budding virus or immune response cannot be a contaminant."

    Tina
  11. starryeyes

    starryeyes Senior Member

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    There ya go!
  12. Adam

    Adam *****

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    Fantastic post Bully!

    Exactly the kind of message we need right now. Exactly what we would hope Judy M is STILL thinking. Very important for people to hang onto this message. Remain patient. I have 14 yrs on my CFS/ME CV. Some have twice that and then some...

    Kind - yes

    Warrior - no doubts

    I hope one day she gets her due regard.

    What Omerbasket said about Judy M and the whittemore's too. I would like to second that.
  13. Kati

    Kati Patient in training

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    Interesting Mandy, will ask to be tested for HTLV, but I don't think there is a treatment for it.

    Nobel Prize, she certainly deserves it.

    Have you noticed how Reeves quietly left the scene exactly a month ago now???
  14. ukxmrv

    ukxmrv Senior Member

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    I was tested for HTLV1 (but not HTLV2) at a NHS hospital in the UK
  15. bullybeef

    bullybeef Senior Member

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    Another interesting point is, upon looking for any further updates regarding XMRV on the CDC website, they make no reference to neither the UK studies, or the Dutch study. Wonder why?

    Why is the US XMRV is taken seriously, without the need of any independent replication (or verification) studies, apart from the NCI and the CC replications (which were at the request of Science journal in order to accept the paper)?

    If it weren't for the UK and Dutch studies, there wouldn't be any negatives or question marks.
  16. Andrew

    Andrew Senior Member

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    Probably because we have had three out of three US studies that were positive for XMRV. One CFS study and two prostate cancer studies. It's XMRV that is getting them all excited, not so much CFS.
  17. hensue

    hensue Senior Member

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    Face it and I mean no disrespect to men. Look at erectile dysfunction it is a man's world and so be it if prostate cancer will lead us to an answer or to xmrv I am all for it.

    Please, I want all cancer cured both my parents died of cancer.

    Take for instance viagra??? Have you seen any women's viagra all over the tv?

    You do realize though behind every great man there is a greater woman lol!
  18. gracenote

    gracenote All shall be well . . .

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    It's been great to notice, though, that in these new XMRV studies they are mentioning CFS as if this is a normal thing to do! When has THAT ever happened with chronic fatigue syndrome?

  19. Andrew

    Andrew Senior Member

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    Thanks for posting that. It is nice to see.
  20. JustJack

    JustJack put on yer dancin' shoes

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    Yes sir tee!! Thanks for the post BB. I believe her. :victory:

    If there is one thing that this DD tells you that you must do, is be patient.
    I wish I could slow down how my damm body is wearing down, while I am being patient.

    JJ:cool:

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