1. Patients launch $1.27 million crowdfunding campaign for ME/CFS gut microbiome study.
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Never Ask Us if We're Hungry -- The Answer's Always No
There are three of us here and for many years, none of us ever got hungry. When our brains would turn to mush, when our faces would go numb, and we would start the invisible vibration which is the signature dance of ME/CFS, we knew we needed to eat.
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Join urgent email action to get FDA approval of Ampligen - by Thurs 6th December'.

Discussion in 'Action Alerts and Advocacy' started by BobM, Dec 2, 2012.

  1. jace

    jace Off the fence

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    England
    Shared on a google group (neuroimmune alliance) and sent my copy to the committee...
    Sasha likes this.
  2. Sasha

    Sasha Fine, thank you

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    UK
    Bumping...

    If there's one thing you do for ME this year, let it be this.

    If you haven't already sent your email, please do so now. :)
  3. lartista

    lartista Senior Member

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    Yes I did!!! from both Ampligen and FDA
  4. justinreilly

    justinreilly Stop the IoM & P2P! Adopt CCC!

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    NYC (& RI)
    I agree with Sascha, this is the most important thing we can do for ME this year! Please, please write in! Thanks everyone!
    Sasha likes this.
  5. Sasha

    Sasha Fine, thank you

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    Bumping!

    If you've email the FDA, please post here - it will encourage others to do the same.

    We won't get a chance like this very often!
  6. Andrew

    Andrew Senior Member

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    Los Angeles, USA
    Just sent mine.
    Sasha likes this.
  7. Sushi

    Sushi Moderator and Senior Member Albuquerque

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    Albuquerque
    Sent mine too.

    Sushi
    Sasha likes this.
  8. Sasha

    Sasha Fine, thank you

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    Last day today - one of the most important actions we'll ever do and it takes minutes! Minutes!

    I think this will be one of those, 'What did you do in the war, Daddy?' questions...
    Sushi likes this.
  9. Andrew

    Andrew Senior Member

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    If they don't get a lot of responses, they will think we don't care.
  10. Sasha

    Sasha Fine, thank you

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    Exactly - sheer numbers really count in a thing like this so no-one should bother about making their email perfect - just shove a few words in the blanks in Bob Miller's draft email and hit 'send'. Any old thing, just send!

    There are plenty of people sending in great content and our points are already getting across so now it's numbers, numbers, numbers!
  11. Ember

    Ember Senior Member

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    Thank you! Your video inspired my own modest submission.
  12. HTree

    HTree

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    northeast
    A little late, but done! I hope accepted. Fingers crossed.
    Sasha likes this.

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