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JohntheJack blog: THE SMILE TRIAL (part 1)

Discussion in 'General ME/CFS News' started by AndyPR, Jul 2, 2017.

  1. AndyPR

    AndyPR Tired Sam ate all the cookies!

    https://johnthejack.com/2017/07/02/the-smile-trial-part-1/
     
  2. msf

    msf Senior Member

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    Ugh, they come up with the worst names ever. I propose the THEPEOPLEWHOCAMEUPWITHTHISTRIALAREMORONS trial.
     
  3. Demepivo

    Demepivo Dolores Abernathy

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  4. dangermouse

    dangermouse Senior Member

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    On this subject (SMILE Trial which involves the ridiculous LP) I am utterly speechless!

    How on earth is that given any credibility?

    What bizarre parallel universe have we stumbled upon?
     
  5. Demepivo

    Demepivo Dolores Abernathy

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    Part 2 is out

    https://johnthejack.com/2017/07/05/smile-trial-part-2/

     
    Last edited: Jul 5, 2017
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  6. Demepivo

    Demepivo Dolores Abernathy

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  7. Demepivo

    Demepivo Dolores Abernathy

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    As part of his investigations, John submiited a Freedom of Information request. It was rejected by Bristol Univeristy.

    However he appealed to the Information Commissioner's Office (ICO) and got a reply

    https://ico.org.uk/media/action-weve-taken/decision-notices/2017/2014139/fs50657225.pdf

     
  8. NelliePledge

    NelliePledge plodder

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    last para 45 the commissioner is giving them a chance to reject it again based on the "volatile climate" around ME research - EC still trying to use that BS argument
     
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  9. lilpink

    lilpink Senior Member

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  10. lilpink

    lilpink Senior Member

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    Very oddly worded. It appears they're still saying they have to comply just that they can use the original parameters of a FOIA request? It's a bit odd isn't it?
     
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  11. JohntheJack

    JohntheJack Senior Member

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    Yes, but they didn't though and did provide me the information I requested, which I shall be using in part 3.
     
  12. JohntheJack

    JohntheJack Senior Member

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    Bristol realized they were losing so tried to raise a different reason for exemption. The IC said if they wanted to do that, they'd have to go through the whole process again, but they didn't.
     
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  13. NelliePledge

    NelliePledge plodder

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    :thumbsup::thumbsup::thumbsup::thumbsup::thumbsup:
     
  14. lilpink

    lilpink Senior Member

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    Thanks ..gotcha! Brain doesn't work in the heat. Heck it doesn't work in the cold either!
     
  15. JohntheJack

    JohntheJack Senior Member

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    No problem. I know exactly the feeling. I thought they would in fact try that line, but in the end they didn't.
     
  16. lilpink

    lilpink Senior Member

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    I might be wrong but I'm beginning to get the sense the ICO has the measure of the PACE and SMILE brigade.
     
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  17. trishrhymes

    trishrhymes Senior Member

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  18. JohntheJack

    JohntheJack Senior Member

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    You're welcome. It would be good if something comes of it. We'll see how things develop. Part 3 (and final) to come at the weekend.
     
  19. Demepivo

    Demepivo Dolores Abernathy

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    The legal team at Bristol Uni aren't stupid. It is easier to hand over the information than face endless legal battles.

    They saw QMUL spent £250 000 on legal fees on PACE FOIs

    Am picturing EC throwing a tantrum & her teenage daughters telling her to calm down..
     
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  20. JohntheJack

    JohntheJack Senior Member

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