Discussion in 'General ME/CFS News' started by AndyPR, Jul 2, 2017.
Ugh, they come up with the worst names ever. I propose the THEPEOPLEWHOCAMEUPWITHTHISTRIALAREMORONS trial.
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On this subject (SMILE Trial which involves the ridiculous LP) I am utterly speechless!
How on earth is that given any credibility?
What bizarre parallel universe have we stumbled upon?
Part 2 is out
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As part of his investigations, John submiited a Freedom of Information request. It was rejected by Bristol Univeristy.
However he appealed to the Information Commissioner's Office (ICO) and got a reply
last para 45 the commissioner is giving them a chance to reject it again based on the "volatile climate" around ME research - EC still trying to use that BS argument
The ICO must have a Wessely School dedicated room surely?
Very oddly worded. It appears they're still saying they have to comply just that they can use the original parameters of a FOIA request? It's a bit odd isn't it?
Yes, but they didn't though and did provide me the information I requested, which I shall be using in part 3.
Bristol realized they were losing so tried to raise a different reason for exemption. The IC said if they wanted to do that, they'd have to go through the whole process again, but they didn't.
Thanks ..gotcha! Brain doesn't work in the heat. Heck it doesn't work in the cold either!
No problem. I know exactly the feeling. I thought they would in fact try that line, but in the end they didn't.
I might be wrong but I'm beginning to get the sense the ICO has the measure of the PACE and SMILE brigade.
Thank you @JohntheJack for all your hard work on this.
You're welcome. It would be good if something comes of it. We'll see how things develop. Part 3 (and final) to come at the weekend.
The legal team at Bristol Uni aren't stupid. It is easier to hand over the information than face endless legal battles.
They saw QMUL spent £250 000 on legal fees on PACE FOIs
Am picturing EC throwing a tantrum & her teenage daughters telling her to calm down..
Part 3 is now up, if anyone is interested.
You can also try a Google Site Search
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