Phoenix Rising tells QMUL: release the PACE trial data
Mark Berry, Acting CEO of Phoenix Rising, presents the Board of Directors’ open letter to Queen Mary University of London (QMUL) urging them to release the PACE trial data, and hopes that other non-UK organisations will join British charities in the same request...
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Joe Biden promotes data sharing ...

Discussion in 'Other Health News and Research' started by sarah darwins, Jul 19, 2016.

  1. sarah darwins

    sarah darwins I told you I was ill

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    Cornwall, UK
  2. sarah darwins

    sarah darwins I told you I was ill

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    "... announced a deal to share data from Australian patients with researchers around the world"

    Amazing. I didn't even know that was possible ;)
     
  3. JaimeS

    JaimeS Senior Member

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    Very cool @sarah darwins ! There really is no excuse for a lack of data-sharing anymore...
     
  4. *GG*

    *GG* Senior Member

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    Ah, privacy concerns?

    GG
     
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  5. JaimeS

    JaimeS Senior Member

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  6. Invisible Woman

    Invisible Woman Senior Member

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    The bold emphasis is mine but loving the dig at PACE here....
     
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  7. JaimeS

    JaimeS Senior Member

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    Yes, that's one of their favorite rationales: "we are just protecting the patients!"
     
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  8. barbc56

    barbc56 Senior Member

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    I heard that patient #65789%# hasn't paid his taxes.

    Of all the excuses to not share data this is the easiest to refute.

    Go Joe!
     
    Invisible Woman likes this.

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