Phoenix Rising: The Gift That Keeps on Giving All Year Long
This holiday season Jody Smith turns her eyes to the people of Phoenix Rising and gives thanks for you all ...
Discuss the article on the Forums.

Jennifer brea- does anyone know what treatments she is doing?

Discussion in 'General ME/CFS Discussion' started by alice111, Mar 28, 2015.

  1. alice111

    alice111 Senior Member

    Messages:
    396
    Likes:
    328
    Canada
    given her latest updates it seems Jen has been having some pretty tremendous I improvements.
    I heard her interview on NPR and she mentioned various things she has done including moving to a dry climate, and antiviral (can't remeber which one.. )

    Does anyone know what else she has done, and what she feels is responsible for her improvements?
     
    MEMum and Starlight like this.
  2. SDSue

    SDSue Southeast

    Messages:
    1,066
    Likes:
    3,021
    Florida
    I saw her tweeting some things, too, and had the same questions. I looked back over her tweets and couldn't find an answer. I'll be following!
     
    MEMum and Starlight like this.
  3. halcyon

    halcyon Senior Member

    Messages:
    2,292
    Likes:
    5,365
    She is a member here (@JenB) but I'm not certain that she comes around very often. Maybe you can send her a PM and see if she'd be willing to come over and describe her treatments.
     
  4. halcyon

    halcyon Senior Member

    Messages:
    2,292
    Likes:
    5,365
    Looking through her Twitter I see mention of at least Equilibrant and Valcyte.
     
    MEMum, Starlight, Gingergrrl and 2 others like this.
  5. SickOfSickness

    SickOfSickness Senior Member

    Messages:
    2,306
    Likes:
    2,241
    US
    She has done so many things! It seems like she has tried everything because she had the financial means, and has the supportive husband.

    She has done FAR saunas.

    Coffee enemas.

    I believe she has an oxygen tank and it helps her not crash as easily or as hard.

    Many dietary changes.

    Chlorella.

    She said magnesium was big for her but I don't know what else was the biggest for her, besides moving.
     
    SueJohnPat, sb4, MEMum and 5 others like this.
  6. charlie1

    charlie1 Senior Member

    Messages:
    305
    Likes:
    275
    Canada
    Would love to know what type of magnesium and dosage.
     
    Starlight likes this.
  7. xena

    xena Senior Member

    Messages:
    122
    Likes:
    76
    i think she is doing some form of mold avoidance from her facebook page. she's really a champ for doing this documentary.
     
    Starlight likes this.
  8. Starlight

    Starlight Senior Member

    Messages:
    124
    Likes:
    658
    It's good to read these posts and get some idea about what has helped Jen. Would love to be able to try some of the drugs.
     
  9. perrier

    perrier Senior Member

    Messages:
    510
    Likes:
    876
    You say moving: from where to where? I thought her husband was at Harvard.
     
  10. Joh

    Joh Inactivist

    Messages:
    715
    Likes:
    4,441
    Germany
    She moved to LA and that's where the main Unrest team works now. Her husband is at Princeton. I realize I sound like a creepy fan, but I just read everything about Unrest because I like the campaign so much. :)
     
    Jan, perrier, slysaint and 1 other person like this.
  11. SickOfSickness

    SickOfSickness Senior Member

    Messages:
    2,306
    Likes:
    2,241
    US
    Well my post was written over 2.5 years ago, and when I wrote it, it was already in the past. She had done the mold-avoidance thing and moved to a few different dry places. I can't remember exactly where but something like Arizona.
     
  12. SueJohnPat

    SueJohnPat Sue

    Messages:
    150
    Likes:
    239
    Medford NJ
    I read that she is perusing “ mold avoidance” . If you go to Paradigm Change and Erik Johnson’s Facebook group it is discussed. I am 53 year old Mom and my kids are in high school. Moving to an rv Park in Joshua Tree Ca is my

    winter fantasy but not my reality. I have 2 teeenagers in NJ and a husband with a job in NJ .

    However moving to a home closer to the Jersey shore with good “ outdoor “ sleeping spaces . Instead of “perfect” trying to find good enough. Moving to Medford Nj next to the pine barrens.
    I see many people scared of all the details and looking for the ideal but just getting out of the bad mold might be better than nothing or not doing anything due to fear.
     
  13. NelliePledge

    NelliePledge plodder

    Messages:
    770
    Likes:
    3,487
    She said on TV today she is taking antivirals
     
    mrquasar, SueJohnPat and Webdog like this.
  14. SueJohnPat

    SueJohnPat Sue

    Messages:
    150
    Likes:
    239
    Medford NJ
    I am also taking antivirals now that it is winter getting symptoms again mold avoidance is much harder stuck in a Motel.
     
    pibee likes this.
  15. Avena

    Avena

    Messages:
    45
    Likes:
    53
     
  16. Avena

    Avena

    Messages:
    45
    Likes:
    53
     
  17. SueJohnPat

    SueJohnPat Sue

    Messages:
    150
    Likes:
    239
    Medford NJ
    Until more research is done on this it is a guessing game. Mold avoidance was huge for me but in no way can anyone say anything is “ the answer”.
    If money and family were no object I would be out in the desert now.
    I am going to go back on valtrex starting Wednesday.
    Like everyone else I look at what the most prominent and well connected are doing and copy them.
    Sorry to hear Jen is still struggling but as we all know this takes time.
     
    Orla likes this.

See more popular forum discussions.

Share This Page