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    Created in 2008, Phoenix Rising is the largest and oldest forum dedicated to furthering the understanding of and finding treatments for complex chronic illnesses such as chronic fatigue syndrome (ME/CFS), fibromyalgia (FM), long COVID, postural orthostatic tachycardia syndrome (POTS), mast cell activation syndrome (MCAS), and allied diseases.

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Jen Brea: What happens when you have a disease doctors can't diagnose - TED Talk!

A.B.

Senior Member
Messages
3,780
It looks like the servers are down due to the video going viral.

I haven't watched it yet. I think the title is brilliant because it speaks to a broader audience that may not have a particular interest in ME.
 
Very compelling and moving. Thank you so much @JenB for this one-of-a-kind piece of advocacy. Historical, even.

I found everything great about this presentation, and loved this one part in particular:

"Chronic fatigue syndrome... For decades that's the name that meant that this (picture of someone falling asleep on a computer) has been the dominant image of a disease that can be as serious as this (picture of Whitney Dafoe…)."

What a powerful sequence…Brilliant.
 

Mel9

Senior Member
Messages
995
Location
NSW Australia
@JenB

Don't worry. I am waiting for the official link. I don't want it to be hit by a copyright notice.

PS I totally didn't cry during your talk *sniffle*.

Thank you so much. I could feel your fatigue deep in my bones. You are a superstar!


I got Very emotional too. I loved the way the audience was clapping noiselessly for Jen.