The Power and Pitfalls of Omics: George Davey Smith’s storming talk at ME/CFS conference
Read about the talk that stole the show at a recent ME/CFS conference in Simon McGrath's two-part blog.
Discuss the article on the Forums.

Jen Brea: What happens when you have a disease doctors can't diagnose - TED Talk!

Discussion in 'General ME/CFS News' started by JohnnyD, Jan 17, 2017.

  1. JohnnyD

    JohnnyD Senior Member

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  2. hellytheelephant

    hellytheelephant Senior Member

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    Thanks @JohnnyD - was just about to post this. It's great- and it made me cry. We are so lucky to have such a persuasive and mighty woman putting our case- I can't WAIT for the film!
     
  3. Kalliope

    Kalliope Senior Member

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    Wow.. just... wow..

    *wiping tears*

    Thank you, Jen Brea!
     
    dangermouse, Dolphin, MEMum and 15 others like this.
  4. Joh

    Joh Inactivist

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    :heart: Simply perfect. Jen said absolutely everything that needs to be said. I cried. Thank you, thank you, thank you!!! I'm off to e-mail it to everybody I know and afterwards will watch it again. :)
     
    dangermouse, mirshine, MEMum and 15 others like this.
  5. Molly98

    Molly98 Senior Member

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    Wow, Wow, Wow!
    Amazing, from Jen B, made me cry too.
    Thank you so so much, will be sending it to all I know.
    a Big :thumbsup:
     
  6. Sasha

    Sasha Fine, thank you

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    Thanks, @JohnnyD - I'm just about to watch this.

    Would you like to add "TED Talk" to your thread title so that people know what it is? I think a lot of people will want to see it!
     
  7. alyosh

    alyosh

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    That was a fascinating and moving talk. I'll be volunteering to translate it to Spanish, because there is barely any awareness of this disease in Latin American countries like mine, and content like this could help change that. Thank you, Jen!
     
  8. Sasha

    Sasha Fine, thank you

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    Absolutely stellar job, @JenB! Congratulations.

    You hit it smack on the nose, what this whole thing has been about - profound sexism and the inability of some clinicians to simply say, "I don't know."

    How can we leverage this?
     
  9. Old Bones

    Old Bones Senior Member

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    Excellent job, @JenB . I was moved to tears.

    Have posted a link on a family member's Facebook page -- guaranteed to reach pretty well everyone in our extended family, and beyond.
     
  10. Joh

    Joh Inactivist

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    Wow, it went live this morning and already has 17.000 views!!!! :rocket: (Ok, several hundreds are from me, I'm in love, but still!) At the moment the site has technical difficulties, maybe because millions of missing people worldwide try to watch it? :globe:
     
  11. lnester7

    lnester7 Seven

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    I think we just crashed the TED talk server. Keep sharing the link!!!
     
  12. Cheesus

    Cheesus Senior Member

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    How many times to do you reckon the TED servers have broken under the weight of the popularity of its videos?!

    Good work, folks!
     
    Last edited: Jan 17, 2017
  13. Cheesus

    Cheesus Senior Member

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    As soon as TED uploads it to Youtube I will share it in the videos section of Reddit. If people take to it and it is upvoted, it has the potential to reach a massive audience.
     
  14. JenB

    JenB

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    Please don't share Leonard Jason's link (e.g., on Reddit). It's not supposed to be posted like this and may eventually be taken down. Thanks!
     
  15. Cheesus

    Cheesus Senior Member

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    @JenB

    Don't worry. I am waiting for the official link. I don't want it to be hit by a copyright notice.

    PS I totally didn't cry during your talk *sniffle*.

    Thank you so much. I could feel your fatigue deep in my bones. You are a superstar!
     
    Last edited: Jan 17, 2017
  16. A.B.

    A.B. Senior Member

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    It looks like the servers are down due to the video going viral.

    I haven't watched it yet. I think the title is brilliant because it speaks to a broader audience that may not have a particular interest in ME.
     
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  17. JohnnyD

    JohnnyD Senior Member

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    Good idea - done!
     
  18. erin

    erin Senior Member

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    In tears. She put it all in such powerful way. Thank you Jen Brie.
     
  19. Christian Godbout

    Christian Godbout

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    Very compelling and moving. Thank you so much @JenB for this one-of-a-kind piece of advocacy. Historical, even.

    I found everything great about this presentation, and loved this one part in particular:

    "Chronic fatigue syndrome... For decades that's the name that meant that this (picture of someone falling asleep on a computer) has been the dominant image of a disease that can be as serious as this (picture of Whitney Dafoe…)."

    What a powerful sequence…Brilliant.
     
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  20. Mel9

    Mel9 Senior Member

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    I got Very emotional too. I loved the way the audience was clapping noiselessly for Jen.
     

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