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Jason ROCKS!: Constructive Debate With the CDC on Empirical Case Definition of CFS

Discussion in 'Latest ME/CFS Research' started by shrewsbury, Feb 20, 2010.

  1. shrewsbury

    shrewsbury member

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    Fred Springfield posted this to co-cure today (my spaces & bolds). Jason is one of my ME/CFS heroes. Love that he's getting criteria needs published now. Very timely.

    THis seems to be in response to Reeves reply to a Jason 2009 study. I missed them 1st go round.

    William C. Reeves, Brian M. Gurbaxani, Jin-Mann S. Lin, and Elizabeth R. Unger
    A Response to Jason et al. (2009), "Evaluating the Centers for Disease Controls Empirical Chronic Fatigue Syndrome Case Definition" Journal of Disability Policy Studies 2010 20: 229-232

    Evaluating the Centers for Disease Controls Empirical Chronic Fatigue Syndrome Case Definition
    Leonard A. Jason, Natasha Najar,Nicole Porter, Christy Reh
    This version was published on September 1, 2009
    Journal of Disability Policy Studies, Vol. 20, No. 2, 93-100 (2009)
    DOI: 10.1177/1044207308325995
     
  2. _Kim_

    _Kim_ Guest

    My university doesn't have a subscription to the Journal of Disability Policy Studies. Can anyone else access the full text on these articles? The abstracts are a big tease.
     
  3. CBS

    CBS Senior Member

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    Western US
    I can't get it either (not done trying). The DePaul's Center for Community Research didn't have any of these listed or linked either (http://condor.depaul.edu/~ljason/cfs/). Not surprising but I thought I'd try.
     
  4. Hope123

    Hope123 Senior Member

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    Here is the article that was sent to me:
     

    Attached Files:

  5. Gerwyn

    Gerwyn Guest

    does the WPI know

    Does the wpi know that the oxford criterea used in britain will have an even higher rate of patients with depression than CDC. Can someone tell them?
     
  6. Dolphin

    Dolphin Senior Member

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    Don't forget that the Oxford criteria is only sometimes used. It wasn't used for the XMRV studies.
     
  7. Dolphin

    Dolphin Senior Member

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    Elizabeth Unger is the acting head of the CDC CFS program!
     
  8. shrewsbury

    shrewsbury member

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    Sagepub articles by Jason and Reeves on the CDC definition of CFS free for 1 week

    yikes Tom - good spot - but yikes!

    The new Acting Head of the CDC CFS recently publishing with Reeves. NOT an auspicious beginning.As she is the last name, that means that she may have not had much to do with the study, right (lots of wishful thinking and fingers crossed here - very scientific!)? Still, she did put her name on it. Wish I were feeling a bit better. Would like to check out her history.

    Someone must have done some finagaling. The Jason studies (and others) are available free for a month. The Co-Cure moderators posted the below today. I'm passing the torch here team - I hope someone else is up to getting them into the library.

     
  9. Dolphin

    Dolphin Senior Member

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    Thanks IF.

    But just to be clear that the response to the Jason article was published in Sept 2009 so before she was head.

    It's a pretty aggressive letter. To be honest, it's a bit more like a rant. And if they weren't the CDC, I don't think they'd be let write such a long letter.

    So not good that she signed such a letter.

    But at the same time, my guess is that Reeves wrote most of it and other people were asked to sign it.

    The authors of the original criteria the letter defends were:
    so only 3 out of the 10 people signed it (or 2 out of 9 if you exclude Reeves).

    Jin-Mann S. Lin is a math/stat person in the CDC as I recall - not sure if she would have strong views or if pressure was put on her or some sort of statistical advice was taken. Even if there was some statistical advice, the criteria are still a rubbish way to define CFS and people shouldn't be rushing to defend them in my opinion.
     
  10. Katie

    Katie Guest


    Actually, it's the second to last name that has the least to do with a study, the first and last did the most. :(
     
  11. shrewsbury

    shrewsbury member

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    Thanks for the clarity Tom - my sentence does leave it open as to when she co-authored with Reeves, pre or post Acting Head - hadn't realized that.
     
  12. Gerwyn

    Gerwyn Guest

    The patients selected for the IC study were selected by criterea set by Sharpe et al 1991 they are otherwise known as the oxford criterea which most of the london psychiatrists use and many others
     
  13. Dolphin

    Dolphin Senior Member

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    http://www.plosone.org/article/info:doi/10.1371/journal.pone.0008519
     

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