The 12th Invest in ME Conference, Part 1
OverTheHills presents the first article in a series of three about the recent 12th Invest In ME international Conference (IIMEC12) in London.
Discuss the article on the Forums.

Jason Article: Small Wins Matter in Advocacy Movements: Giving Voice to Patients.

Discussion in 'Latest ME/CFS Research' started by CBS, Aug 25, 2011.

  1. CBS

    CBS Senior Member

    Messages:
    1,502
    Likes:
    844
    I didn't see this posted yet. Mods - feel free to delete this thread if it is already been put up.

    Small Wins Matter in Advocacy Movements: Giving Voice to Patients.
    Jason LA.
    DePaul University, Chicago, IL, USA, ljason@depaul.edu.

    Am J Community Psychol. 2011 Aug 20. [Epub ahead of print]Abstract

    Abstract

    Jason does a nice job of outlining many of the elements leading to change in the last few years (I know that sometimes its hard to see the change but I think it is there - while not nearly fast enough).

    I found this take on patient advocacy refreshing and more than a bit ironic given all that Simon Wessely has been up to in the past few weeks. Both Jason and Wessely are trained in research on the psychological aspects of health (Jason is a psychologist and Wessely is a psychiatrist) but to Wessely, his focus has morphed into obsession with self and an inability to see the big picture because of the alleged actions a a few (delusions of grandeur mixed with rage over a lack of appreciation and a persecution complex?). Jason sees the whole. I strongly suspect that Wessely will only part of the conversation for as long as he can keep the spotlight on himself. Jason, by contrast, will have a lasting impact. He is an inspiration. Dr. Jason, Thank You!
     
    SOC and WillowJ like this.
  2. Enid

    Enid Senior Member

    Messages:
    3,309
    Likes:
    858
    UK
    Very refreshing to read - thanks very much for posting CBS.
     
  3. WillowJ

    WillowJ คภภเє ɠรค๓թєl

    Messages:
    3,763
    Likes:
    4,839
    WA, USA
    Jason is a wise man.

    Thanks for this and for your commentary, CBS.
     
  4. LaurelW

    LaurelW Senior Member

    Messages:
    584
    Likes:
    209
    Utah
    :victory:Leonard Jason is my hero!
     
  5. Dolphin

    Dolphin Senior Member

    Messages:
    10,368
    Likes:
    26,610
  6. RustyJ

    RustyJ Contaminated Cell Line 'RustyJ'

    Messages:
    1,188
    Likes:
    885
    Noosaville, Aust
    This paper is pretty shallow and doesn't seem to say very much except that there was increased advocacy. Duh.

    There was only one trigger: the WPI finding. Jason has all but ignored this. He has ignored also the most recent changes in the CAA and the major falling out between CAA and many patients, as well as the shift away from patient advocacy.

    The changes within the CDC & co have amounted to naught. Mangan has proven himself to be a public relations appointment aimed at quelling the unrest. Many of the problems plaguing the CDC's attitude to patients has not altered, and in fact seem even more entrenched.

    Funding has not increased, and in fact may have decreased.

    Again, one of the most significant events of the year, the new definition was not due to patient advocacy, but the voluntary effort of researchers.

    Advocacy has been galvanized but it has been placated with frenetic public relations efforts and not real change.
     
  7. WillowJ

    WillowJ คภภเє ɠรค๓թєl

    Messages:
    3,763
    Likes:
    4,839
    WA, USA
    thanks for that :Retro smile:

    Indeed

     

See more popular forum discussions.

Share This Page