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ME/CFS and the Magic of the Canine Factor
There's been plenty of research indicating that having pets is good for your health. I never really noticed any particular benefits to having cats, though that may have had more to do with my cats. They've been fairly indifferent to my presence and we've shared a live-and-let-live...
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Jan 18th Webinar with Dr. Lucinda Bateman

Discussion in 'General ME/CFS News' started by George, Jan 11, 2010.

  1. _Kim_

    _Kim_ Guest

    Slide: Worst Case Scenario

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  2. _Kim_

    _Kim_ Guest

    Slide: VIPdx

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  3. _Kim_

    _Kim_ Guest

    Slide: Light research on PEM

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  4. anne_likes_red

    anne_likes_red Senior Member

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    Our job is to help sustain this interest.

    Dr Batemans advice to her CFS patients (she has 1000) is to remain patient, and flexible. Trust that Science will bring the truth.

    The "best" test still needs to be established.
  5. _Kim_

    _Kim_ Guest

    Slide: Light research on PEM part II

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  6. _Kim_

    _Kim_ Guest

    Slide: Light research on PEM part III

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  7. Cort

    Cort Phoenix Rising Founder

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    Nice screenshots Kim! After not being able to turn off security software and restarting computer and trying again - I'll just follow the screenshots. Beautiful - I'll definitely use these :) I love Light's research.
  8. anne_likes_red

    anne_likes_red Senior Member

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    Lucinda Bateman has a very nice voice.

    :D
  9. CJB

    CJB Senior Member

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    That last slide is super exiting research about post-exertional malaise. They're going to send the 50-60 (?) patients who participated in this study and had these results blood to test for XMRV.

    She's talking about this as a marker for CFS and if not it's a marker for fatigue. It can be demonstrated that there's pathology that correlates to reported symptoms. YAYYYYYYYY!
  10. anne_likes_red

    anne_likes_red Senior Member

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    Important to know that the graphs Kim has just posted are all on the SAME scale - for healthy controls, for CFS patients, and for people with MS.
    It is a measure for symptoms.
  11. Cort

    Cort Phoenix Rising Founder

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    Its such great stuff. The CFIDS Association helped fund it actually. I love Dr. Bateman's demeanor -very calm, very settled - very objective. Love your signature CJB. Those graphs are UNBELIEVABLE. CFS patients are like Mt. Vesuvius. Interesting that MS patients were so low given they suffer from mysterious fatigue as well.
  12. Nina

    Nina Senior Member

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    Wow, that is so impressive! I'm glad that this kind of research is making progress, if only we knew how to speed this along to make some kind of test available for everyone.
  13. Cort

    Cort Phoenix Rising Founder

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    The problem with this research is that its really cutting edge; there's nothing comparable to it anywhere else except for FM. Because he's breaking new ground it takes awhile for the research community to catch up. (Sometimes a long while). The key is getting him funding, funding and funding and getting other groups to replicate it. They did get a good NIH grant a couple of years ago - pretty unusual for CFS
  14. anne_likes_red

    anne_likes_red Senior Member

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    People who recover after a few years may not be connected to XMRV (she's speculating) although they're connected to many of the other viral players in CFS.
  15. CJB

    CJB Senior Member

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    She's answering questions about testing. She hasn't tested one of her patients yet. She's anxious to know which are positive and how their symptoms correlate, but doesn't think the test is reliable enough yet.
  16. anne_likes_red

    anne_likes_red Senior Member

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    And she has over 1000 patients.
  17. CJB

    CJB Senior Member

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    Asked if these findings pertain to fibromyalgia -- bottome line - don't know.
  18. flybro

    flybro Senior Member

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    pluto
    still here,

    big big thank you
  19. anne_likes_red

    anne_likes_red Senior Member

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    Best guess. Reliable test should be available within a year.

    Suzanne Vernon says the blood supply task force is currently looking for XMRV - if it turns out there is indication of infection there the provision of a standardised test will be accelerated.
  20. Cort

    Cort Phoenix Rising Founder

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    Hasn't tested anybody! That tells you something.

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