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9th Invest in ME International ME Conference, 2014 - Part 2: Pathogens and the Gut
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Jan 18th Webinar with Dr. Lucinda Bateman

Discussion in 'General ME/CFS News' started by George, Jan 11, 2010.

  1. _Kim_

    _Kim_ Guest

    Cort did you try manually downloading the software as CJ did?
     
  2. CJB

    CJB Senior Member

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    Cort, I had to disable the security software to get the program launched.
     
  3. CJB

    CJB Senior Member

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    She's now describing the virus.
     
  4. flybro

    flybro Senior Member

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    pluto
    thank you for the updates,

    please keep them coming
     
  5. _Kim_

    _Kim_ Guest

    So far, the slides have been almost the same as her other lecture that she gave in December. (The only new slide I've seen is one about the Imperial College Study)
     
  6. CJB

    CJB Senior Member

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    Retroviruses cause:

    weakness
    wasting
    ataxia (imbalanced gait or walk)
    arthritis
    dementia
    neuropathy (damage to nerves)

    Any condition characterized by immune dysfunction -- sorry slide changed
     
  7. anne_likes_red

    anne_likes_red Senior Member

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    She's describing the history of the study into retroviruses.

    Those patients in the original Science study were severely ill.

    A Japanese study showed 1 - 2% in the general population showed evidence of XMRV.
     
  8. CJB

    CJB Senior Member

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    Study cohort were a select group who showed low NK cell function, abnormal RNase L pathway, elevated cytokines. May NOT represent CFS sufferers generally and more research is needed to clear this up.

    XMRV has an association with CFS in the study but has not been proven to be the cause. We have a lot more to do to know what that association means. It may be present for other reasons because of other illnes that has caused ID.

    There have been hints of retrovirus (defritas) in the past.

    I'm getting tired -- someone else take over!
     
  9. Cort

    Cort Phoenix Rising Founder

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    Yes tried it both ways. Kept getting 'Install Error" unable to find Folder - I'm using Vista, it should be able to handle it. I don't know how to disable the Security - I'll just get the archived verson. (And send the webinar company a nasty message as well :))
     
  10. _Kim_

    _Kim_ Guest

    Slide on XMRV testing

    [​IMG]
     
  11. CJB

    CJB Senior Member

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    Cort, open your security software. There should be options for turning it off. I had to restart my computer a couple of times, too. There's another hour to go -- keep trying!!
     
  12. CJB

    CJB Senior Member

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    Kim -- you rock!! I thought I was having a flashback when I saw the same thing in your message I'm seeing on the screen!!!!!!
     
  13. _Kim_

    _Kim_ Guest

    Slide: Treatment of XMRV

    [​IMG]
     
  14. Nina

    Nina Senior Member

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    Totally stupid question: Dr. Bateman just said that having antibodies against XMRV does not prove that you have an active infection (my wording, not hers). But considering that a retrovirus will stay in your body forever, doesn't that prove that you have it in you? Active or not, it might become active at any time. Or is it possible that you had contact with the virus and your immune system was able to fight it off completely?

    Edit: Ok, Kim's slide just answered this: It may be confounded...
     
  15. _Kim_

    _Kim_ Guest

    Who is studying XMRV

    [​IMG]
     
  16. anne_likes_red

    anne_likes_red Senior Member

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    She has suggested that groups of people are hunkered down in their labs all over (the US at least) studying XMRV right now. She said the Retrovirology community is "on fire".
     
  17. anne_likes_red

    anne_likes_red Senior Member

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    Good work Kim!

    :D
     
  18. flybro

    flybro Senior Member

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    pluto
    :Retro smile:still here, hanging on every post
     
  19. _Kim_

    _Kim_ Guest

    Slide: Misc. Questions

    [​IMG]
     
  20. anne_likes_red

    anne_likes_red Senior Member

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    Most people (assume she means scientists) would argue that the IC study was looking for something different than the Science study, rather than that there is no XMRV in the UK study participants.
     

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