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Jamie's blog of March 2, 2012 - Gc-Maf

Discussion in 'GcMAF' started by Overstressed, Mar 12, 2012.

  1. Overstressed

    Overstressed Senior Member

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    Hi,

    Jamie touches Gc-Maf on her latest blog:

    "I am starting to hear some very negative things about GcMAF (in addition to some early positive reports), so I would like to urge those trying it to exercise caution. I would not push through. The negative reports sound like worsening inflammation, cytokine storm, sometimes after initial improvement. It never made much sense to me; it seems like pushing in the wrong direction. Our macrophages are already over-activated."


    I've added it to the Gc-Maf section, since it's not about her latest blog in general, just the Gc-Maf -part of it. If it has been posted already, please feel free to delete...


    Best regards,
    OS.
  2. Lou

    Lou Senior Member

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    Jamie's an M.D., right? All I know is gcmaf did much to help me and I still have benefits long after my last injection. Maybe I quit just in time.

    Regarding her comment of pushing in the wrong direction, that our macrophages are already over-activated: I certainly could be wrong but I thought we had a problem with our macrophages being inactivated by the cutting off of two sugars normally attached to the vitamin d receptor. Please set me straight if this is incorrect.
  3. Daffodil

    Daffodil Senior Member

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    i used to think the gcmaf makes the infected cells "visible" to the macrophages...

    anyway, i have done 4 injections so far and its obviously working. wonder when the crash will come.
  4. Sushi

    Sushi Moderator and Senior Member Albuquerque

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    Don't expect a crash! You may not get one. It only happens to some and that is often when the dose is too high!

    Many of us have had very good experience with GcMAF.

    Best,
    Sushi
    SOC and anne_likes_red like this.
  5. Daffodil

    Daffodil Senior Member

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    lol thank you sushi. i just desperately dont want to be disappointed again....cuz this is really working.
  6. Ocean

    Ocean Senior Member

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    Is this something people take on their own or only under a doctor's supervision? If through a doctor, of the U.S. specialists, which ones prescribe it? Is there a certain profile you need to have that makes this a suitable treatment for you? What is the approximate cost per month? Thanks to anyone who can answer any of these questions. Or maybe I should ask them on a new thread.
  7. Daffodil

    Daffodil Senior Member

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    hi ocean. dr. derek enlander in NYC and dr. jeff bradstreet in georgia(?) uses it. i dont think you need a certain profile, but i am not sure. the cost varies a lot, depending on where you get it. dr. demeirleir in beligum uses it too. the cost varies greatly, depending on where you get it. you can also order it from europe (gcmaf.eu or BGLI) and take it on your own, without doctor's supervision. you will need to know which bloodwork to get, though.

    it is apparently also available from Israel ($1000 a dose?) and Japan.

    Dr. Enlander charges about $270 a vial (i think). one vial has 100 ng and that is 1 dose ..However, most people cannot take the full dose. Dr. Enlander starts you at 1/4th the dose.
  8. Ocean

    Ocean Senior Member

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    Thanks Daffodil. How often does one take one dose? I wonder what the profile is for who it suits best. My best bet is eventually getting to a doc that uses it as obviously they would know the profile. I wonder if Peterson uses it. I'd considered trying to see him but I know he doesn't accept all patients unfortunately.
  9. Daffodil

    Daffodil Senior Member

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    hi ocean. i think peterson will accept you if your NK cell function is low....but i dont think he is using GcMAF. though i could be wrong. i dont know that there is a specific profile for gcmaf.... demeirleir was doing some vitamin d receptor testing or something...i dont know the details....i think its just if you have higher than normal nagalase you are a candidate...but there is no reliable nagalase test, i am told.

    dr. enlander currently starts patients at 0.25 ng so 1/4th a vial. some people take the full dose but most cannot handle it. some take only 1/10th.

    dr. demeirleir charges much less for the gcmaf.
  10. 3CFIDS@ourhouse

    3CFIDS@ourhouse still me

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    Does Dr. Bradstreet take only autistic patients? His blog looks otherwise but that was my understanding.
  11. Ocean

    Ocean Senior Member

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    Thanks so much Daffodil. Two more questions:

    1. Is the NK cell function something I can ask my regular doctor (rheumatlogist to have tested)?

    2. So when you say a full dose or a fourth of a dose, how long does that last? Like the $270 price is that for a month, a week, or ...?

    Thank you so much!
  12. Daffodil

    Daffodil Senior Member

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    well the $270 is for 1 vial, which is 100 nanograms....so if you take 1/4th, it will last you 4 weeks, since you take it weekly. with Dr. Enlander, you will also be on Hepapressin which is an additional cost...$40 per weekly injection. Dr. DeMeirleir uses Nexavir instead.

    Keep in mind that some people are just ordering the GcMAF themselves from GcMAF.eu or BGLI.

    About the NK cell function test....i thought it was available at LabCorp but I could not find it just now, so I am not sure what happened. Anyway, you can just contact UNVEX at 775 682 8280 in Nevada and ask them to send you a kit. Then your doctor can sign the requisition and send off your blood to them. The test is about $375 and the results take 24 - 48 hrs.

    xoxoxoxo
  13. Daffodil

    Daffodil Senior Member

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    3CFIDS...i think i have heard of one CFS patient who sees Dr. Bradstreet for GcMAF...so I think he sees CFS people too.
  14. Ocean

    Ocean Senior Member

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    Thank you so much for that info Daffodil.
  15. heapsreal

    heapsreal iherb 10% discount code OPA989,

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    GcMAF eu, From there web site We are not doctors, but manufacturing biomedical scientists. Our GcMAF is 600, and 60 packing and shipping, or 660 total for a vial of 2.2ml, which is up to eight doses, one 100ng, 0.25ml dose a week. Delivery is overnight in Europe, and we guarantee that on arrival it will be good, active GcMAF.

    SO tell me if i am wrong but 100ng/.25ml once a week will last 8 weeks from the above company??
    For the aussies out there 660 euro is $820 aussie dollars, thats $100 a week??
    ANy latest news from other aussies using MAF, eg getting it through customs etc?

    cheers!!!
  16. Forebearance

    Forebearance Senior Member

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    When Dr. Jamie gets the negative reports, I hope she understands that GcMAF is an experimental treatment, so if one tries it one has to take a LOT of responsibility for one's own health, and not just blindly follow the doctor's orders.
  17. Sushi

    Sushi Moderator and Senior Member Albuquerque

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    And she is probably not seeing the positive reports. I am one of those who have been helped by GcMAF and I know of many others.

    Sushi
  18. anne_likes_red

    anne_likes_red Senior Member

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    Aussies have been able to collect it from Auckland heaps. No problems taking it through in a thermos so far. As far as I know you can't bring it in to Aus via mail or courier 9from either NZ or Europe) and I'm not sure about the details of getting it through on your person. Probably like me and mutaflor, we just don't mention it.
    That 8 weeks worth should last 16 - 32 weeks IMO.
    Anne.

  19. mellster

    mellster Marco

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    Hi Ocean,

    NK cell function is a simple standard test provided by Quest and LabCorp and usually covered by insurance if prescribed by a doctor - any doctor can write it up.

  20. alex3619

    alex3619 Senior Member

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    It is clear from a recent KDM video that GcMAF can induce IRIS, most likely if there are substantial untreated infections. So now he starts doses low and runs comprehensive screening for infections first. However there are some very good results from GcMAF. Bye, Alex

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