Review: 'Through the Shadowlands’ describes Julie Rehmeyer's ME/CFS Odyssey
I should note at the outset that this review is based on an audio version of the galleys and the epilogue from the finished work. Julie Rehmeyer sent me the final version as a PDF, but for some reason my text to voice software (Kurzweil) had issues with it. I understand that it is...
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James Coyne talk for patients/carers, Belfast Castle, N. Ireland, Tues Feb 7

Discussion in 'General ME/CFS News' started by Sasha, Jan 8, 2016.

  1. Sasha

    Sasha Fine, thank you

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  2. Keela Too

    Keela Too Sally Burch

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    I'll get organised in a bit to add image versions of the flyers we have.

    Basically 2 events are being organised:

    - An Open event at Belfast Castle on Sunday 7th February 3-5pm

    and

    - A professionals only event at Stormont Tuesday 9th February 6.30 - 8.30pm aimed at MLAs, scientists, health professionals, and key health decision makers. This event must be pre-booked because of security at Stormont.

    Bookings: hope4mefibro @ outlook . com

    Should be very interesting. I am seriously hoping for enough spoons to be there.
     
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  3. Sasha

    Sasha Fine, thank you

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    Will anybody be video-ing, recording, etc., @Keela Too? (I know that's a lot to organise).
     
  4. Keela Too

    Keela Too Sally Burch

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    Yes the Irish ME Trust are sponsoring the recording of the Stormont event.
    We are also hoping to have some live tweeting. I'll do it if I'm able to get there...
    #PACEni will be the tag. My daughter might tweet if I can't.
     
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  5. Keela Too

    Keela Too Sally Burch

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    We are putting together information packs for the professionals attending the Stormont event. This is is a bit of an unexpected addition to our annual budget (inviting James Coyne to speak in N.Ireland was a spontaneous decision when the opportunity arose) but one we feel very worthwhile.

    We will manage to fund everything by hook or by crook, but if anyone feels so inclined to help with this endeavour, it is possible to sponsor the event here:

    https://mydonate.bt.com/events/jamescoyneni/271212
     
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  6. Sasha

    Sasha Fine, thank you

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    I think you should start a new thread to ask for donations - most people who aren't in Belfast probably won't read this thread but a lot of people might want to donate (especially if you mention in the title that it will be put on YouTube or wherever). :)
     
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  7. Keela Too

    Keela Too Sally Burch

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    Thanks @Sasha for that suggestion. I'll start a new thread in a few days when I have more time/energy to answer questions etc. Also once I've got the images sorted for the flyers.
    (Is there a way to donate emergency spoons too.... our committee could do with a few!)

    PS The patient talk is on Sunday 7th Feb 3pm, (the one on the 9th is by invitation only for medical professionals, MLAs etc.) @Sasha could you perhaps edit the header of this thread to the 7th please.
     
    Sasha likes this.
  8. Sasha

    Sasha Fine, thank you

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    It says the 7th (maybe a mod edited it!).
     
  9. Mark

    Mark Former CEO

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    I edited it when I saw Keela's post.
     
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  10. Sasha

    Sasha Fine, thank you

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    Excellent! Good luck with both events. Really looking forward to seeing this on YouTube.
     
    Keela Too likes this.
  11. Keela Too

    Keela Too Sally Burch

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    Excited now. Deep breath!
     
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  12. Daisymay

    Daisymay Senior Member

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    Very best of luck with the two events, thanks to everyone who is involved. I hope you get a lot of professionals to the Tuesday event and their eyes and minds are duly opened!
     
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  13. Keela Too

    Keela Too Sally Burch

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    Mark or @Sasha the event on 7th is tomorrow... ie Sunday... could you do another edit of the headline? Maybe add #PACEni there too if you can. Cheers
     
  14. Sasha

    Sasha Fine, thank you

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    I'd thought I'd start a new thread for the live tweeting - shall I do that now, and bump it tomorrow?
     
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  15. Keela Too

    Keela Too Sally Burch

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    Yes sounds good @Sasha Thank you.
     
    Sasha likes this.
  16. Sasha

    Sasha Fine, thank you

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    Keela Too likes this.

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