Hi everyone my husband and I are thinking about ivf in the intent of a surrogate. We were hoping to use my own eggs but there's a lot of medication even on mild ivf and they include putting ur pituitary gland to sleep for a couple of days ! Had anyone done this and how have they felt? We are worried it will make my m.e or fibro worse and cause problems later ! Hence the thought of adoption but we found out that one will be more draining x
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Ivf or adoption
- Thread starter Becca 36
- Start date
mirshine
Senior Member
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- 469
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- Dublin, Ireland
Wow, no idea on advice, but good luck x
I have tried several IVF attempts, no success.
This was 2005-6, right after catching chicken pox followed by ME. Though I was not diagnosed then.
Since this was more than 10 years ago, I feel they have now better ways of doing it.
It was not good for me, the medication for the secession of the menstruation was bad but I handled the hormone injections OK, I had very problematic embryo transfers somehow, especially the last one. After that we've decided not to try again.
Good luck.
This was 2005-6, right after catching chicken pox followed by ME. Though I was not diagnosed then.
Since this was more than 10 years ago, I feel they have now better ways of doing it.
It was not good for me, the medication for the secession of the menstruation was bad but I handled the hormone injections OK, I had very problematic embryo transfers somehow, especially the last one. After that we've decided not to try again.
Good luck.
Aw thank you for your reply. I'm sorry it didn't help you. I was worrying about taking medication to stop the pituitary gland for a couple of days I can handle hormones lol I know m.e people have problems with that in the first place xx
taniaaust1
Senior Member
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- 13,054
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- Sth Australia
Shutting down your pituitary gland could really screw your ME up and you may not recover from doing that. In ME/CFS there is already a general suppression of the hypothalamic/pituitary/adrenal (HPA) axis, often associated with adrenal fatigue. So you'll be messing with something which already is a bit messed up in ME/CFS. Have you thought about if you go through IVF and find it has made you a lot worst.....
Are you aware that it is a one in four chance that each natural child of yours will end up with ME/CFS too.. this is something a couple of the ME/CFS specialists have found in thier patients and children.
From these forums there also seems to be a higher risk of our children also being born with Autism. It has also been found that we are more likely to have children born with some very rare major abnormalities then someone who hasnt got ME/CFS (some ME specialists have talked about that).
So you also should consider that you have more chance of having a disabled child and have you will cope if something like this occurs.
I personally suggest you adopt due to these risks and hence you can make sure you have a healthy child. Children with disabilities if that happened are much harder to take care of.
Are you aware that it is a one in four chance that each natural child of yours will end up with ME/CFS too.. this is something a couple of the ME/CFS specialists have found in thier patients and children.
From these forums there also seems to be a higher risk of our children also being born with Autism. It has also been found that we are more likely to have children born with some very rare major abnormalities then someone who hasnt got ME/CFS (some ME specialists have talked about that).
So you also should consider that you have more chance of having a disabled child and have you will cope if something like this occurs.
I personally suggest you adopt due to these risks and hence you can make sure you have a healthy child. Children with disabilities if that happened are much harder to take care of.
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I've done nearly 7 stim cycles for ivf, countless lesser cycles. Started at age 34. Even went to CCRM in Colorado for two cycles. I'm about to do another attemp on a FET in May.
I did not produce good eggs. At age 37 we did egg donor. Best decision ever, on the first go, I got pregnant with twins.
The only thing that ever made my system go nuts was the birth control. Apparently for me it's worse than being pregnant with twins with 24 hour and 9 months of morning sickness. I refuse to take it.
After those babies were out I was back to my pre pregnancy days. The Meds or the pregnancy did not effect my condition. Although my food allergies went away during pregnancy which was awesome!!!!
A lot of the meds are not needed. Ask your doc to do low stims, it will be cheaper too.
I did not produce good eggs. At age 37 we did egg donor. Best decision ever, on the first go, I got pregnant with twins.
The only thing that ever made my system go nuts was the birth control. Apparently for me it's worse than being pregnant with twins with 24 hour and 9 months of morning sickness. I refuse to take it.
After those babies were out I was back to my pre pregnancy days. The Meds or the pregnancy did not effect my condition. Although my food allergies went away during pregnancy which was awesome!!!!
A lot of the meds are not needed. Ask your doc to do low stims, it will be cheaper too.
I teach special ed. And I study autism and the only proven link they have ever found is a 1%increase in risk if the male ( sperm donor) is above age 40. Other than that they are still theorizing its causes. There does seem to have a genetic family component to it, but they are still not sure what it is.
They have studied Ivf and disabilities and there is no greater risk than the general population. Moreover you can now have a genetic test done on the embryo to see if its normal or chromosomally abnormal. You can even select the gender.
They have studied Ivf and disabilities and there is no greater risk than the general population. Moreover you can now have a genetic test done on the embryo to see if its normal or chromosomally abnormal. You can even select the gender.
My eggs were good, dr said it was very promising but no result after 4 attempts. Embryo's never resulted in pregnancy. This was the first time mitochondrial problem mentioned in my life. Although my eggs were more than good not enough I was told, not sufficient energy produced by my cells for the pregnancy. This lack of energy, possibly due to mitochondrial failure.
I was not diagnosed ME by then, this was immediately after my horrendous chicken pox episode and I was not so well. Obviously ME issues were lurking.
I was advised to have a surrogate mother using my own eggs. By that time I could not find anyone who would do this for me and I was not sure if we were OK with this.
I haven't regretted not pushing further. I believe it was the right decision for us.
I was not diagnosed ME by then, this was immediately after my horrendous chicken pox episode and I was not so well. Obviously ME issues were lurking.
I was advised to have a surrogate mother using my own eggs. By that time I could not find anyone who would do this for me and I was not sure if we were OK with this.
I haven't regretted not pushing further. I believe it was the right decision for us.
Invisible Woman
Senior Member
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- 1,267
Hi @Becca 36. Can't offer advice but I really wish you every success.
I became ill just at the point where we were staring to consider a family. I was concerned about a pre existing condition that runs in my family (not ME) before I became ill.
I think not having kids was the right thing for us and my husband agrees. We both wish things could have been different though. Just yet another aspect of how this horrible disease complicates life and robs us of wonderful parts of life that most people take for granted.
I became ill just at the point where we were staring to consider a family. I was concerned about a pre existing condition that runs in my family (not ME) before I became ill.
I think not having kids was the right thing for us and my husband agrees. We both wish things could have been different though. Just yet another aspect of how this horrible disease complicates life and robs us of wonderful parts of life that most people take for granted.
This is one of the most tournamented issues I have dealt with. Knowing what to do so you have no regrets in life. For ME, it was worse than having a minimal life sick life due to me/fibro. Because if I worked hard/ studies, tried different protocols, I would and have improved my me/ fibro significantly. I am in control. There was nothing I could do about my infertility situation. Not to mention that damn loud biological clock that was ticking....
I wish you the best in your decisions.
I wish you the best in your decisions.