Review: 'Through the Shadowlands’ describes Julie Rehmeyer's ME/CFS Odyssey
I should note at the outset that this review is based on an audio version of the galleys and the epilogue from the finished work. Julie Rehmeyer sent me the final version as a PDF, but for some reason my text to voice software (Kurzweil) had issues with it. I understand that it is...
Discuss the article on the Forums.

Ivf or adoption

Discussion in 'General ME/CFS Discussion' started by Becca 36, Mar 13, 2017.

  1. Becca 36

    Becca 36

    Messages:
    3
    Likes:
    2
    Hi everyone my husband and I are thinking about ivf in the intent of a surrogate. We were hoping to use my own eggs but there's a lot of medication even on mild ivf and they include putting ur pituitary gland to sleep for a couple of days ! Had anyone done this and how have they felt? We are worried it will make my m.e or fibro worse and cause problems later ! Hence the thought of adoption but we found out that one will be more draining x
     
    Invisible Woman likes this.
  2. mirshine

    mirshine Senior Member

    Messages:
    469
    Likes:
    1,610
    Dublin, Ireland
    Wow, no idea on advice, but good luck x
     
    Invisible Woman likes this.
  3. Becca 36

    Becca 36

    Messages:
    3
    Likes:
    2
    Thank you was just wondering if anyone's gone through any of this ☺
     
  4. erin

    erin Senior Member

    Messages:
    749
    Likes:
    2,103
    I have tried several IVF attempts, no success.
    This was 2005-6, right after catching chicken pox followed by ME. Though I was not diagnosed then.
    Since this was more than 10 years ago, I feel they have now better ways of doing it.
    It was not good for me, the medication for the secession of the menstruation was bad but I handled the hormone injections OK, I had very problematic embryo transfers somehow, especially the last one. After that we've decided not to try again.
    Good luck.
     
    Invisible Woman and mirshine like this.
  5. Becca 36

    Becca 36

    Messages:
    3
    Likes:
    2
    Aw thank you for your reply. I'm sorry it didn't help you. I was worrying about taking medication to stop the pituitary gland for a couple of days I can handle hormones lol I know m.e people have problems with that in the first place xx
     
    erin likes this.
  6. erin

    erin Senior Member

    Messages:
    749
    Likes:
    2,103
    Yes that first bit was pretty bad for few days then it settles and you go and start injecting you move on quickly really. I don't think it's that difficult.
    Best luck!
     
  7. taniaaust1

    taniaaust1 Senior Member

    Messages:
    11,904
    Likes:
    12,727
    Sth Australia
    Shutting down your pituitary gland could really screw your ME up and you may not recover from doing that. In ME/CFS there is already a general suppression of the hypothalamic/pituitary/adrenal (HPA) axis, often associated with adrenal fatigue. So you'll be messing with something which already is a bit messed up in ME/CFS. Have you thought about if you go through IVF and find it has made you a lot worst.....

    Are you aware that it is a one in four chance that each natural child of yours will end up with ME/CFS too.. this is something a couple of the ME/CFS specialists have found in thier patients and children.

    From these forums there also seems to be a higher risk of our children also being born with Autism. It has also been found that we are more likely to have children born with some very rare major abnormalities then someone who hasnt got ME/CFS (some ME specialists have talked about that).

    So you also should consider that you have more chance of having a disabled child and have you will cope if something like this occurs.

    I personally suggest you adopt due to these risks and hence you can make sure you have a healthy child. Children with disabilities if that happened are much harder to take care of.
     
    Last edited: Mar 14, 2017
  8. place

    place Be Strong!

    Messages:
    300
    Likes:
    73
    US
    I've done nearly 7 stim cycles for ivf, countless lesser cycles. Started at age 34. Even went to CCRM in Colorado for two cycles. I'm about to do another attemp on a FET in May.

    I did not produce good eggs. At age 37 we did egg donor. Best decision ever, on the first go, I got pregnant with twins.

    The only thing that ever made my system go nuts was the birth control. Apparently for me it's worse than being pregnant with twins with 24 hour and 9 months of morning sickness. I refuse to take it.

    After those babies were out I was back to my pre pregnancy days. The Meds or the pregnancy did not effect my condition. Although my food allergies went away during pregnancy which was awesome!!!!

    A lot of the meds are not needed. Ask your doc to do low stims, it will be cheaper too.
     
    erin and Invisible Woman like this.
  9. place

    place Be Strong!

    Messages:
    300
    Likes:
    73
    US
    I teach special ed. And I study autism and the only proven link they have ever found is a 1%increase in risk if the male ( sperm donor) is above age 40. Other than that they are still theorizing its causes. There does seem to have a genetic family component to it, but they are still not sure what it is.

    They have studied Ivf and disabilities and there is no greater risk than the general population. Moreover you can now have a genetic test done on the embryo to see if its normal or chromosomally abnormal. You can even select the gender.
     
    erin likes this.
  10. erin

    erin Senior Member

    Messages:
    749
    Likes:
    2,103
    My eggs were good, dr said it was very promising but no result after 4 attempts. Embryo's never resulted in pregnancy. This was the first time mitochondrial problem mentioned in my life. Although my eggs were more than good not enough I was told, not sufficient energy produced by my cells for the pregnancy. This lack of energy, possibly due to mitochondrial failure.

    I was not diagnosed ME by then, this was immediately after my horrendous chicken pox episode and I was not so well. Obviously ME issues were lurking.

    I was advised to have a surrogate mother using my own eggs. By that time I could not find anyone who would do this for me and I was not sure if we were OK with this.

    I haven't regretted not pushing further. I believe it was the right decision for us.
     
    Valentijn and Invisible Woman like this.
  11. Invisible Woman

    Invisible Woman Senior Member

    Messages:
    1,212
    Likes:
    7,414
    Hi @Becca 36. Can't offer advice but I really wish you every success.

    I became ill just at the point where we were staring to consider a family. I was concerned about a pre existing condition that runs in my family (not ME) before I became ill.

    I think not having kids was the right thing for us and my husband agrees. We both wish things could have been different though. Just yet another aspect of how this horrible disease complicates life and robs us of wonderful parts of life that most people take for granted.
     
    erin likes this.
  12. place

    place Be Strong!

    Messages:
    300
    Likes:
    73
    US
    This is one of the most tournamented issues I have dealt with. Knowing what to do so you have no regrets in life. For ME, it was worse than having a minimal life sick life due to me/fibro. Because if I worked hard/ studies, tried different protocols, I would and have improved my me/ fibro significantly. I am in control. There was nothing I could do about my infertility situation. Not to mention that damn loud biological clock that was ticking....

    I wish you the best in your decisions.
     
    erin likes this.

See more popular forum discussions.

Share This Page