Invest in ME Conference 12: First Class in Every Way
OverTheHills wraps up our series of articles on this year's 12th Invest in ME International Conference (IIMEC12) in London with some reflections on her experience as a patient attending the conference for the first time.
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IV Ganciclovir anyone?

Discussion in 'Antivirals, Antibiotics and Immune Modulators' started by thecatswhiskers, Feb 25, 2011.

  1. Jenny

    Jenny Senior Member

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    London
    Very sorry to hear of your IV problems - hope things are getting easier.

    I've been on the Valtrex now for nearly 3 months. No change for the better or worse. I got it from the doc at the Royal Free Fatigue clinic on a private script.

    But just today my GP has agreed to give me another 8 weeks of Valtrex on a NHS script! Must be some mistake ;)

    Jenny
     
  2. thecatswhiskers

    thecatswhiskers

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    Hi!

    Well after prolonged side effects (kidney pain etc) I finally feel a bit better from the drug now. My Dr hasn't allowed me yet to start the Valtrex but has said at the moment to start Artesunate which I did yesterday (started off tiny and building up slowly); with a view to adding Valtrex in later.
    I know what you're saying about the Valtrex and how the AV's work, and that's my worry too ... You need the immune system to kick in itself unless you want to be on them indeterminately. I'm going to try the Imunovir again in the hope that it'll help; someone else who has Lyme & EBV at the clinic I go to has found it tremendously helpful, and after 2 week her glands went down for the 1st time in 9 years! She also says she doesn't feel like she's fighting something the entire time now either.
    Will try the proper stuff 1st, and then if I get on well with that, I'll look into the homemade version.

    My Dr is also going to look into Nexavir (Kutapressin) for me, to see if that's an option.

    I'm going to read up up on SLO, it sounds interesting.

    Thanks for all your helpful info ..... all of you are brill! :eek:)
     
  3. heapsreal

    heapsreal iherb 10% discount code OPA989,

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    australia (brisbane)
    hi whiskers,
    How are u travelin now? hopefully feeling better. Did u start valtrex? i think you will find its not as hard to tolerate as ganciclovir, valtrex and famvir have a very good safety profile.

    cheers!!!
     

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