1. Patients launch $1.27 million crowdfunding campaign for ME/CFS gut microbiome study.
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Nitric oxide and its possible implication in ME/CFS (Part 2 of 2)
Andrew Gladman explores the current and historic hypotheses relating to nitric oxide problems in ME/CFS. This second article in a 2-Part series puts nitric oxide under the microscope and explores what it is, what it does and why it is so frequently discussed in the world of ME/CFS....
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It's all in the Gut. Why we get ME/CFS

Discussion in 'The Gut: De Meirleir & Maes; H2S; Leaky Gut' started by redo, Mar 26, 2011.

  1. Beyond

    Beyond 10% of discount in iHerb!--> PEZ915

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    lol and don´t forget the vagina part.

    OK Elph, an infection can and will cause leaky gut, And it does not need to be an intestinal infection. Yes parasites and candida cause it too. Stress and low adrenal hormones will cause it too. Celiac disease causes it too. Exposure of the gut lining to toxic substances will create a disrupted intestinal lining too. NSAIDs cause it as well. Lots of things cause an inflammed and leaky gut. But our interest lays in how to treat it. Erradicating pathogenic bacteria and getting high number of the beneficial ones is very important in addressing it, but so is rebuilding and soothing the GI tract.
    Daffodil likes this.
  2. Daffodil

    Daffodil Senior Member

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    i guess its possible that it is gut flora but that doesn't explain why antiretrovirals have helped people with CFS. repeated fecal transplants have not worked. manipulating gut flora will decrease inflammation so it is not without value. i am too fogged up and not educated enough to argue any further...i hope it is only gut flora but i highly doubt it. they have only scratched the surface in their knowledge about the gut so far so time will tell.

    i will never forget how my brain, which had been SEVERELY fogged, swollen, and agonizing enough to make me decide to take my life.....started to clear on AZT. this proved to me...this just has to be retroviral.
  3. Wayne

    Wayne Senior Member

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    Here's a Testimonial on how one person treated it, and has been CFS free for over 5 years.
  4. Wayne

    Wayne Senior Member

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    Hi Daffodil, just a thought here: --- The retroviral activation may have been secondary to altered gut function, which compromised your immunity and allowed the retrovirus to proliferate. Even though the AZT apparently helped lower your retroviral levels, perhaps it still wasn't addressing a more primary cause. Like I say, just a thought. :)
    rosie26 likes this.
  5. Beyond

    Beyond 10% of discount in iHerb!--> PEZ915

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    Wayne, I will try to read the GAPS book again. :) Sometimes you need to come back and look closer.
    Wayne likes this.
  6. Wayne

    Wayne Senior Member

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    Beyond, you may find these videos of interest:

    A series of 16 YouTube videos by Natasha Campbell-McBride

    I've only watched one video so far, but I find her to be very credible and interesting.
  7. Elph68

    Elph68 Senior Member

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    Hi Daffodil .... As I said, everything went to hell after I did what I did .... and my Stool analysis shows I have a butt full of mouth bugs .....
    aimossy likes this.
  8. rosie26

    rosie26 Senior Member

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    What will you do Elph will you go onto long term antibiotic's ? I think I read that you said 3-6 months doxy and azithro then FMT worked/got rid of CFS ?
  9. Elph68

    Elph68 Senior Member

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    I am waiting for my treatment to start yes .... My next appointment is in November .... The thing is, I found somebody who agreed that my bowel problem can be fixed. If you go in and say i want antibiotics to fix my CFS .... that is too big a stretch and you won't get anywhere .... BUT, if you can get a full stool analysis and then go in and say that these bugs cause disbyosis and leaky gut and need 8+ weeks to remove from gut ..... you have a better shot at it .... and as a result, if your symptoms improve, then you have another doctor with an open mind who may try it on the next one .... Just a thought ....
    Jon_Tradicionali, aimossy and rosie26 like this.
  10. aimossy

    aimossy Senior Member

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    you are going to that clinic Elph68 would be great to hear a run down of what the clinic has been doing with you tests and treatment etc. good luck with it all!!
    rosie26 likes this.
  11. rosie26

    rosie26 Senior Member

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    Keep us informed how you go Elph68 , would be interesting. I query quite strongly a bacterial cause regarding my M.E as problems of a certain kind started happening to me about 10-15 years before my collapse with M.E. Thanks for all your info, it is helpful. x


    Edit. I query a resistant kind of bacteria, but could be wrong.
    aimossy likes this.
  12. Elph68

    Elph68 Senior Member

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    Yeah I am aimossy, there is 3 of us .... so we will see what happens ....
    aimossy likes this.
  13. aimossy

    aimossy Senior Member

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    fingers crossed!!
  14. Shanjaq

    Shanjaq

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    I found this thread in a search for a connection between taking D-Ribose and Candida flare-up, which I experienced quite badly in the gut... I just wanted to say there might still be a way to take it without feeding the yeast: get a "Pollen Press" and compress small amounts into tablets for sublingual use. Seems to be working so far!

    I prefer to use a 1" stainless steel sleeve with a 1/4" inner diameter and two 1/2" length, 1/4" diameter steel rod sections and a 1-ton press, but you can also use a hammer. There are a lot of aluminum-based Pollen Presses out there (see ebay) but I'm a bit concerned about the tablet absorbing aluminum oxides under the extreme pressures involved; Stainless steel would be preferable I think.

    Hope this helps!
  15. leela

    leela Slow But Hopeful

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    Thanks for the tip, @Shanjaq, amd welcome to the forums! :)
  16. MeSci

    MeSci ME/CFS since 1995; activity level 6

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    You can buy bean/seed sprouters quite cheap, e.g. ebay and Amazon. I think I picked mine up in a charity shop! With sprouters you can change the water as often as you want. You could probably improvise one using a sieve or strainer.
    Beyond likes this.
  17. leela

    leela Slow But Hopeful

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    I have a seed sprouter and I have a tough time getting certain seeds to grow. Broccoli (which is in the main seed mix I bought)
    seems particularly problematic for some reason.

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