I wanted to share my thoughts as the year ends, it's been a bad one for me, the first one of my illness and finally get to see a specialist next week to figure out what I've got- (so far, it's a self diagnosis) As my health declines over the months, as the photosensitivity prevented me to see the summer, as the headaches are pounding as I talk, I have gradually resigned myself to stay home, and have isolated myself a bit more each day, week, months. I rarely phone out anymore, since it's gives me a hedache and in the same time my friends stopped calling. And beside, I haven't got news, other than aches, pains, and new symptoms. One old friend is actually scared to visit because it might be "catchy". (she is actually a nurse) What do you say to that- I think this is the most depressing part of my illness- and it feels endless. It is accompanied by the lack of understanding from doctors and people from work and people that think I should get off my butt and go back to work. ETA: And then what happen if you want to get out of the isolation but you only exacerbate the symptoms, then you don't try anymore in FEAR of getting into a crash? My question to you is how do you cope as the months go by and as the illness does its hurts, with the lack of social contacts?