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Is this normal for CFS?

Discussion in 'General ME/CFS Discussion' started by Alvin2, Mar 2, 2017.

  1. Alvin2

    Alvin2 If humans were rational...

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    One of the many symptoms is that when i do something like lifting a bag of potatoes i can feel not just the energy draining but my brain fog getting worse, as if someone is injecting vinegar into my brain (it actually burns a bit as well as blanking out my consciousness).
     
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  2. arewenearlythereyet

    arewenearlythereyet Senior Member

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    I suffer from limited upper strength. Before getting ill I was able to shovel 9mT of gravel and hardcore by hand from tote bags in an afternoon. Now I can't hold a shopping basket. I now just avoid lifting anything more than 2kg and under that weight limit the time I'm carrying it to 5 minutes. I find that distributing weight with a backpack or similar helps a lot, but this is still for limited times. I have learnt that lifting and carrying weights makes me crash far easier than anything else (walking for example)

    Ive theorised that this is down to explosive contraction of relatively smaller muscle groups (as oppose to walking with your legs which use larger muscles and is only explosive when you run....I never run). I've assumed that the muscles in the arm have to work much harder relatively to the leg muscles and so drain energy quicker. My PEM happens the next day regardless of whether it's activity from arms or legs though?
     
  3. SuzieSam

    SuzieSam Senior Member

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    Yes, me too! It's horrible. Just lifting a heavy pan up can do this to me. You described it perfectly. Just yesterday, I had the energy to cook something, but the thought of getting the pan out the oven made me wince at how it would feel not just in my body, but in my head.
     
  4. Valentijn

    Valentijn Senior Member

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    Abnormal lactic acid production from the muscles, resulting in elevated levels in the CSF and brain?
     
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  5. lnester7

    lnester7 Seven

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    Finally somebody that feels the same. Sorry to hear that. In my case I don't think is lattice acid, because I feel very burning like is acid reflux but in the brain. I particularly think it is csf leak.
     
  6. Alvin2

    Alvin2 If humans were rational...

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    Thanks, i struggle to explain things so by spending many hours finding words i can sometimes make it understandable

    I thought that was just me, i think the same way, i think more about the energy required then the task and avoid accordingly
     
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  7. SuzieSam

    SuzieSam Senior Member

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    Exactly! I totally exhausted myself cooking a lovely meal for my family on Thursday night. I knew I'd be wiped for a couple of days, but that's the devil's bargain I chose to make.

    My kids and husband felt cared for and got some nourishing food. I got satisfaction of a job well done and pride in myself. And 2 days stuck in bed. Worth it! Not cooking again for a while, though...

    But DAMN! EVERYTHING is a matter of evaluating energy expenditure (mental and physical) against consequences. Even being on Phoenix Rising for 10 minutes! Jeeeeez.
     
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  8. maybe some day

    maybe some day Senior Member

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    Yep..its normal.
     
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