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Created in 2008, Phoenix Rising is the largest and oldest forum dedicated to furthering the understanding of, and finding treatments for, complex chronic illnesses such as chronic fatigue syndrome (ME/CFS), fibromyalgia, long COVID, postural orthostatic tachycardia syndrome (POTS), mast cell activation syndrome (MCAS), and allied diseases.
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I've wondered about that too as I think my problems is similar to yours
What I remember is that one of the members (@Rebecca2z ) who got most benefits from Rituximab was being fed through tubes and now eats normally (or something like it). Hope she can confirm that.
I've had IBS my whole life before a sudden onset of seemingly progressive ME in Nov 2011. At what point of ME illness (and why) is someone put on a feeding tube? Is it due to gastroparesis, or malabsorption, or being too weak to eat i.e. chew and swallow or any other specific reasons I may not have mentioned?