frozenborderline
Senior Member
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Have you heard 'Origin Story Pt. 3' by Headless Youth Podcast on SoundCloud?
We talk about Tahoe outbreak and nanoparticles theory
We talk about Tahoe outbreak and nanoparticles theory
Welcome to Phoenix Rising!
Created in 2008, Phoenix Rising is the largest and oldest forum dedicated to furthering the understanding of, and finding treatments for, complex chronic illnesses such as chronic fatigue syndrome (ME/CFS), fibromyalgia, long COVID, postural orthostatic tachycardia syndrome (POTS), mast cell activation syndrome (MCAS), and allied diseases.
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Significant differences were seen between the prevalence of CFS in all groups of family members relative to the published community prevalence of 0.422% (spouses/partners: 3.2%, p < 0.001; offspring: 5.1%, p < .001; parents and siblings: 1.1%, p < 0.02; second and third degree blood relatives 0.8%, p < 0.02). The prevalence of CFS was higher in genetically unrelated household contacts and in nonresident genetic relatives than in the community, indicating that both household contact and genetic relationship are risk factors for CFS.
This feels surreal to type. And I have actually been in denial for a while. But I can no longer deny that my wife now also has CFS. Her illness mirrors mine to a T. We have seen every doc in every specialty, virtually all the tests come back normal, as they did for me. We share so many little specific symptoms. It’s obvious to me that we are suffering from the same disease.
I think it may come down to shared environment and shared slight genetic predisposition. My sister has mcas and probably has the hereditary alpha tryptasemia gene like me, but also the fact we grew up in a literally toxic environment probably explains both of us being sick. she doesnt have PEM, but she has a lot of similar mcas symptoms, there's a venn diagram overlapRelated discussions:
Prevalence of Chronic Fatigue Syndrome and Chronic Fatigue Within Families of CFS Patients
https://forums.phoenixrising.me/thr...atigue-within-families-of-cfs-patients.46305/
I have had CFS for 6 years and my wife just developed it too
https://forums.phoenixrising.me/thr...ears-and-my-wife-just-developed-it-too.81560/