My days are very paced.. with precise amounts of time for doing physical activity etc (yoga to me is counted as physical as it does try to get my heart rate up). I keep my activity levels the same with careful monitoring and if I do more one day.. that goes into consideration for my next day (or I'll start crashing). My pacing is so careful tht I usually know percisely at what amount of doing something I will crash (often know within 10 mins of the amount of activity I can do for a day from the very start of the day) eg I know I can do 2hrs and 10-20mins of on feet activity per day all up at the most (and then have to rest next day). I know that 15 mins of tai chi will make me ill (it affects me more then vaccumming as its less moving around) etc etc
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Thanks, yes but my point is Tania, if you observe how much time you spend upright - rather that in activity - would that make your calculation more precise.
And if you factor in the heat as well.... my symptoms much worse in the heat.
If this theory is correct standing up will make you sicker than an activity done lying down
I am not sure yet how PEM fits in - i get that very badly too but i do not need to exercise to cause a crash. I suspect something to do with lack of blood supply to muscles and adrenalin being released constantly and lack of blood to brain.
the heat and hot food make all my symptoms worse and that is a big argument in favour of this stretchy vein theory; I would love feed back from anyone on this please.
nothing else explains why heat consisitently and precdictably makes things worse, and this theory does; it also explains why alco=hol tolerance is low in us and airplanes - extrea vasodilatation.
eg i recently discovered Pho as a tasty way ot get in electroylytes
but realised i felt bad after it... why ? they serve it so hot. Now I order it to go and serve it tepid at home and do not feel bad after it. All that heat in your abdo near the major abdominal blood vessels must be causing vasodilation. Plus te Pho restaurants tend to be hot and steamy.