Phoenix Rising tells QMUL: release the PACE trial data
Mark Berry, Acting CEO of Phoenix Rising, presents the Board of Directors’ open letter to Queen Mary University of London (QMUL) urging them to release the PACE trial data, and hopes that other non-UK organisations will join British charities in the same request...
Discuss the article on the Forums.

Is M.E contagious ?

Discussion in 'Other Health News and Research' started by AndrewB, Aug 8, 2011.

  1. Sparrowhawk

    Sparrowhawk Senior Member

    Messages:
    494
    Likes:
    280
    West Coast USA
  2. Esther12

    Esther12 Senior Member

    Messages:
    8,449
    Likes:
    28,522
    Not worth worrying about imo.

    Lots of things in life are uncertain, but there isn't good evidence for CFS being contagious in the way that something like HIV is. It is complicated though, as there does seem to be a genetic component which can effect families, and it's also likely that lots of different conditions get lumped together under the 'CFS' label - so some of them could be contagious.

    I'd worry more about catching stuff from them, as illnesses can affect people with CFS worse than is normal.

    Personally, I avoid exchanging saliva with too many people, and wouldn't give blood or anything like that, but I don't worry about it beyond basic hygiene things. Lots of people who are healthy could be harbouring some life changing pathogen - who knows? One can either descend to life destroying paranoia, or enjoy a hug every now and again.
     
    xchocoholic and Sparrowhawk like this.
  3. SickOfSickness

    SickOfSickness Senior Member

    Messages:
    2,307
    Likes:
    2,242
    US

    Yes you hear of spouses contracting the illness, but many of those could be from identical exposures, in my opinion. For example, because they both live in a house with mold, both ate something and got a parasite, both had high stress for three years, or both traveled somewhere and got a virus.

    For related people, then what you said is a big factor too, one of them having a milder ME/CFS that later is worse and gets diagnosed. Or they have the genetic predisposition and only get sick after some event, like catching a bad virus years after the first relative was diagnosed.
     
  4. SickOfSickness

    SickOfSickness Senior Member

    Messages:
    2,307
    Likes:
    2,242
    US

    Here are more threads about contagion:
    http://forums.phoenixrising.me/index.php?threads/transmission-possible-threat-to-loved-ones.11714/
    http://forums.phoenixrising.me/inde...afe-to-have-unprotected-sex-with-cfids.13244/
    http://forums.phoenixrising.me/index.php?threads/is-me-cfs-a-type-of-aids.12415/
    http://forums.phoenixrising.me/inde...lograft-theory-of-disease-transmission.21289/

    In this long thread, some discussion on page 15. I did not look beyond page 15. http://forums.phoenixrising.me/index.php?threads/is-it-a-new-disease-or-its-cfs.19062/page-15
     
    Sparrowhawk likes this.
  5. Sushi

    Sushi Senior Member Albuquerque

    Messages:
    14,383
    Likes:
    21,552
    Albuquerque
  6. Allyson

    Allyson

    Messages:
    1,684
    Likes:
    680
    Australia, Melbourne
    just because close family members have it do not mean it is contagious - could be genetic too- similary sposees ma choose each other for similar lifestyle qualities


    A genetic illness may not manifest for many years so may appear to "COME on " when in fact symptoms are just beginning to manifest

    however many are now being tested for and diagnosed with LYme disease so you may want to check that out too as that has not been tested for much until now and is difficult to test for too. this may account for the cluster outbreaks and have similar symptoms to ME/cfs


    Ally
     
  7. herpesbaby

    herpesbaby Senior Member

    Messages:
    178
    Likes:
    158
    This disease mostly affects lower middle class. It's a disease that is triggered by stress over money/ambitions. That means no, no celebrity is infected...
     
  8. Kina

    Kina

    Messages:
    10,132
    Likes:
    17,219
    Sofa, UK
    ME is not a disease triggered by stress over money/ambitions.
     
  9. herpesbaby

    herpesbaby Senior Member

    Messages:
    178
    Likes:
    158
    Could it be triggered by stress?
     
  10. Kina

    Kina

    Messages:
    10,132
    Likes:
    17,219
    Sofa, UK
    What do you mean by 'stress'?
     
  11. herpesbaby

    herpesbaby Senior Member

    Messages:
    178
    Likes:
    158
    Emotional trauma
     
  12. Kina

    Kina

    Messages:
    10,132
    Likes:
    17,219
    Sofa, UK
    Trauma is different from stress. If you are equating the two, are you asking if psychological stress can cause ME.
     
  13. Sushi

    Sushi Senior Member Albuquerque

    Messages:
    14,383
    Likes:
    21,552
    Albuquerque
    None of the above has any evidence. It is not a "lower middle class" illness and celebrities do have it. We even have a thread on that topic.
     
  14. jimells

    jimells Senior Member

    Messages:
    2,000
    Likes:
    6,111
    northern Maine
    (from Wikipedia)
    The movie is on Youtube.
     
    Last edited: Jul 4, 2017
  15. Snowdrop

    Snowdrop Rebel without a biscuit

    Messages:
    2,896
    Likes:
    10,091
    @herpesbaby

    I appreciate that you are relatively new here and new to this disease but where do you get the support for this pronouncement? There are people literally from all walks of life and all levels of society. Even here on PR there are people who lost their former lives as Dr's, Engineers, School teachers, Entrepreneurs, Professional Athletes and Artists, Business people, even rocket scientists (NASA), Librarians, Research Scientists, Actors (see Alberta Watson who was on Nikita) a thread here: http://forums.phoenixrising.me/index.php?threads/in-memory-of-alberta-watson.36777/

    You seem to have an understanding of this illness as described by popular media. This is a misconception that the (particularly UK) psychiatric community wish to present as the 'real' explanation so they can 'own' the disease and therefore it's treatment (CBT/GET)

    For a better understanding of this read anything here on the PACE trial.

    Consider this. You are a young professional. You have a nice life and earn a good income. You get ME. You are severely sick and no longer able to work. You spend your savings on various treatments that you think might help you -- you are desperate to get well. So what will your financial situation look like? Many here have fallen into lower middle class by virtue of being sick. NOT because they were lower income earners. That's not to say that lower earners can't also become ill same as anyone else. Some people get struck down while still completing their education too.

    That's not to say the the majority of people with ME are in the lower income brackets (I have no idea -- and I don't think there is any clear well done robust research on it) And without that research it is impossible to truly know.
     
    Valentijn, Hutan and Gingergrrl like this.
  16. Sushi

    Sushi Senior Member Albuquerque

    Messages:
    14,383
    Likes:
    21,552
    Albuquerque
    If they are in the lower income brackets, it is because they have ME/CFS and can't work! Probably the majority of members here used to function in a professional capacity in their careers of choice.
     
    ScottTriGuy, Valentijn and Gingergrrl like this.
  17. Snowdrop

    Snowdrop Rebel without a biscuit

    Messages:
    2,896
    Likes:
    10,091
    Exactly.
     
  18. Mithriel

    Mithriel Senior Member

    Messages:
    676
    Likes:
    776
    Scotland
    ME/CFS as they call it now may turn out to be a "many causes, same outcome" disease but in the old days before CFS was invented, ME was the disease that came in epidemics, often in conjunction with polio epidemics and was often referred to as abortive poliomyelitis. Like polio it was an individual, extreme reaction to a common infection (like measles encephalitis).

    It was commoner in nurses, doctors, teachers, those who mixed with infected people all the time. Polio was one of those illnesses that is not so severe if you catch it young so its devastating effects were often found in older children with better housing thus better hygiene.

    Stress affects the immune system so it can be a factor in getting a disease ( most people I know with MS - I go to a centre - became ill during a stressful period) but that DOESN'T make it psychogenic.

    I don't think I am infectious, I hug my grandchildren, but I keep my blood away from people and I won't donate organs.

    Mithriel
     

See more popular forum discussions.

Share This Page