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Hunting down the cause of ME/CFS & other challenging disorders - Lipkin in London
In a talk to patients in London on 3rd September, Dr. W. Ian Lipkin described the extraordinary lengths he and his team are prepared to go to in order to track down the source of an illness, with examples ranging from autism to the strange case of Kawasaki disease.
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Is M.E contagious ?

Discussion in 'Other Health News and Research' started by AndrewB, Aug 8, 2011.

  1. Sparrowhawk

    Sparrowhawk Senior Member

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    West Coast USA
  2. Esther12

    Esther12 Senior Member

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    Not worth worrying about imo.

    Lots of things in life are uncertain, but there isn't good evidence for CFS being contagious in the way that something like HIV is. It is complicated though, as there does seem to be a genetic component which can effect families, and it's also likely that lots of different conditions get lumped together under the 'CFS' label - so some of them could be contagious.

    I'd worry more about catching stuff from them, as illnesses can affect people with CFS worse than is normal.

    Personally, I avoid exchanging saliva with too many people, and wouldn't give blood or anything like that, but I don't worry about it beyond basic hygiene things. Lots of people who are healthy could be harbouring some life changing pathogen - who knows? One can either descend to life destroying paranoia, or enjoy a hug every now and again.
     
    xchocoholic and Sparrowhawk like this.
  3. SickOfSickness

    SickOfSickness Senior Member

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    Yes you hear of spouses contracting the illness, but many of those could be from identical exposures, in my opinion. For example, because they both live in a house with mold, both ate something and got a parasite, both had high stress for three years, or both traveled somewhere and got a virus.

    For related people, then what you said is a big factor too, one of them having a milder ME/CFS that later is worse and gets diagnosed. Or they have the genetic predisposition and only get sick after some event, like catching a bad virus years after the first relative was diagnosed.
     
  4. SickOfSickness

    SickOfSickness Senior Member

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    Here are more threads about contagion:
    http://forums.phoenixrising.me/index.php?threads/transmission-possible-threat-to-loved-ones.11714/
    http://forums.phoenixrising.me/inde...afe-to-have-unprotected-sex-with-cfids.13244/
    http://forums.phoenixrising.me/index.php?threads/is-me-cfs-a-type-of-aids.12415/
    http://forums.phoenixrising.me/inde...lograft-theory-of-disease-transmission.21289/

    In this long thread, some discussion on page 15. I did not look beyond page 15. http://forums.phoenixrising.me/index.php?threads/is-it-a-new-disease-or-its-cfs.19062/page-15
     
    Sparrowhawk likes this.
  5. Sushi

    Sushi Moderator and Senior Member Albuquerque

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  6. Allyson

    Allyson *****

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    just because close family members have it do not mean it is contagious - could be genetic too- similary sposees ma choose each other for similar lifestyle qualities


    A genetic illness may not manifest for many years so may appear to "COME on " when in fact symptoms are just beginning to manifest

    however many are now being tested for and diagnosed with LYme disease so you may want to check that out too as that has not been tested for much until now and is difficult to test for too. this may account for the cluster outbreaks and have similar symptoms to ME/cfs


    Ally
     

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