The other day I went to my acupuncturist and she has lyme disease. For the most part, her herbs and treatment have really not done much. Because she is having a hard time with this thought, in her mind, I have Lyme disease. I have been tested like crazy for Lyme. Igenex and all of the previous Western Blot tests over a 24 year period and they always come back negative. No co infection or anything. Absolutely 100% negative. I didn't start having pain until my 13th year of being ill. For years I had perfect cognitive ability. I am so tired when I am not responding to something of people saying I have lyme, or all of my lyme friends thinking I have lyme. I have friends with Lyme who have been on ABX for 6 years and they are sicker than when they started. I really don't want the diagnosis, which my lyme friend explained the other day can be based just on symptoms. I don't want any ABX. Having said that, I am afraid I am missing something. I am not an in bed-housebound kind of CFS person. I work, get out, etc. I am not a high functioning person, but compared to many...I am out and about everyday. I also spend days in bed at times, but I can take care of myself. I drive, go to the store and last night I danced for hours at my friends. I usually do something everyday. Anyway, not sure what to think and it scares me. Don't know what to believe anymore. Thoughts? Even if I was diagnosed, the thought of the runaround with ABX freaks me out. I have heard twice in one week, "Chronic Fatigue Syndrome is really just Lyme disease." Seriously? It is? I thought Chronic Fatigue Syndrome was Chronic Fatigue Syndrome.