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Created in 2008, Phoenix Rising is the largest and oldest forum dedicated to furthering the understanding of, and finding treatments for, complex chronic illnesses such as chronic fatigue syndrome (ME/CFS), fibromyalgia, long COVID, postural orthostatic tachycardia syndrome (POTS), mast cell activation syndrome (MCAS), and allied diseases.
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I was eyeing one off in the chemist yesterday and wondered if it would be worthwhile. I would love to know how low my bp goes when I hit the deck, which is quite regularly lately. And I am dreading summer because my bp barely lets me function.
Has anyone got one?.
Thanks i'm now convinced and will shop around for one, online is probably the cheapest place though.
I don't have POTS, I have had a problem with my bp having massive drops whilst I am going about my normal daily routine for many many years. I have even passed out on a peak hour train on my way home from a course (that was when I was just getting sick) thank god the doors were closed or I wouldn't be here now!. I haven't been able to get any help from doctors either. I have no idea what is going on.
Hey Tulip,
Seeing as you are a fellow Aussie- I might be able to help you with names of Doctors who are dysautonomia aware and experienced with treating/diagnosing blood pressure disorders and autonomic dysfunction. It sounds like it could be neurally mediated hypotension/neurocardiogenic syncope (same thing). http://www.dinet.org/NCS/ncs.htm
Does it happen straight away when you stand up or after prolonged periods?
If you'd like I can PM you some names of Doctors who are good with autonomic dysfunction (cardios & neuros mostly). If you want to PM me your city or state
I suggest to get recommendations from others here on what types they find best rather then going for the cheapest.
I used to borrow my nannas (which I dont think was a cheap one) but found I had a lot of issues with hers due to my BP behaving so strangely.. it ends up erroring out A LOT to the point that at times I cant even take mine. (i think the narrowing of the pulse pressure I get at times causes the erroring).
Hey Tulip,
Seeing as you are a fellow Aussie- I might be able to help you with names of Doctors who are dysautonomia aware and experienced with treating/diagnosing blood pressure disorders and autonomic dysfunction. It sounds like it could be neurally mediated hypotension/neurocardiogenic syncope (same thing). http://www.dinet.org/NCS/ncs.htm
Does it happen straight away when you stand up or after prolonged periods?
If you'd like I can PM you some names of Doctors who are good with autonomic dysfunction (cardios & neuros mostly). If you want to PM me your city or state