1. Patients launch $1.27 million crowdfunding campaign for ME/CFS gut microbiome study.
    Check out the website, Facebook and Twitter. Join in donate and spread the word!
Ergonomics and ME/CFS: Have You Hurt Yourself Without Knowing It?
Having a chronic illness like ME/CFS can make it hard to avoid problems that come from bad ergonomics. Jody Smith has learned some lessons the hard way ...
Discuss the article on the Forums.

Is it fibromyalgia or cfs?

Discussion in 'General ME/CFS Discussion' started by Sherezade, Dec 16, 2013.

  1. Sherezade

    Sherezade Guest

    Messages:
    97
    Likes:
    47
    Hello again!

    So, the diagnoses that i received in august 2012 was fibromyalgia, but i had doubts because these symptoms remained after a viral infection.

    I have all the symptoms of both syndromes, how can i tell them apart?
     
  2. determined

    determined Senior Member

    Messages:
    295
    Likes:
    59
    USA: Deep South
    Maybe others who know the current consensus will weigh in, but I think they are both part of the same dysregulation. Dysregulation of what? It seems like EVERYTHING.
     
    Sherezade, PennyIA and ggingues like this.
  3. SickOfSickness

    SickOfSickness Senior Member

    Messages:
    1,875
    Likes:
    959
    US
    Since you have symptoms of both, you probably have both, which is common.

    I have both, and sometimes can't tell them apart and sometimes I'm clearer on which is which. If you haven't had them long it would be confusing.

    Knowing which symptom is which illness doesn't help me. (Beyond being nice to understand a little.)
     
    Sherezade likes this.
  4. redrachel76

    redrachel76 Senior Member

    Messages:
    300
    Likes:
    266
    Israel
    With Fibromyalgia, pain improves with gentle exercise.

    In CFS alone (or CFS + secondary Fibromyalgia), all symptoms worsen with exercise.

    Fibromyalgia is just the tender points really. The other symptoms are optional.
     
    Sherezade and determined like this.
  5. PennyIA

    PennyIA Senior Member

    Messages:
    302
    Likes:
    382
    Iowa

    The thing that gets me about Fibromyalgia - is that if I'm in a lot of pain and not routinely practicing relaxation technicques - I tend to tense up. The more I tense up, the more I hurt... and eventually all the tender points start to hurt. And I end up with enough points to qualify for the fibromyalgia label. But, if I'm good about practicing relaxation and keep my muscles loose - I have one or two tender points and don't qualify for the label.

    Seems to me that the 'diagnosis' technique for fibromyalgia needs a little work.

    As it was, my mother was diagnosed with fibromyalgia even though she had all the ICC criteria to qualify for an ME/CFS diagnosis AND suffered PEM. The only treatment she was offered was antidepressants.

    I also have all the ICC criteria to qualify for the ME/CFS diagnosis and suffer PEM - but don't have enough tender points hurting often enough to qualify for the fibromyalgia diagnosis and am currently undiagnosed.... although I am fully aware that whatever I have is not helped by my methylation defects so am refusing all attempts to get me on antidepressants and am pursuing treatment for methylation issues. Supposedly my doctor is helping me by not labeling me as a CFS patient - but I'm not sure I understand the benefit of being undiagnosed vs. being diagnosed with a label that isn't understood nor fully studied and is probably a collection of illnesses as yet undefined. sigh.
     
  6. determined

    determined Senior Member

    Messages:
    295
    Likes:
    59
    USA: Deep South
    I agree with redrachel76 that exercise does help with fibromyalgia symptoms, and exacerbates the CFS symptoms. When I'm in "fibro mode," not only can I exercise but it helps (as does meditation and yoga). When I was in my worst CFS mode, even raising my arm to brush my hair set off the characteristic weakness/fatigue that I knew so well. For me, it seems to be one extreme or the other.
     
    Allyson likes this.
  7. Sherezade

    Sherezade Guest

    Messages:
    97
    Likes:
    47
    Thank you for your inputs. I have an aunt that has been living with fibromyalgia for 20 years, and she's got sjogrens and other health issues but not cfs. So, I guess that fibromyalgia runs in my genes.

    I understand also that the main symptom in cfs is PEM, but I'm not sure if i have that one. Let me give you an example and you could tell me if this is PEM: one week ago i went to Moskow to visit a friend, the first day that i arrived i was able to rest enough, but the second day she took me all around the city, and she made me eat gluten because her mom had cooked a very special meal with soy sauce! :( Anyway, that night i went to bed around midnight, i sweated all night and i couldn't get up until 2 pm the next day. Then i got dressed and went out until very late. The next day i was out all day without problem, and the day after that i travelled from Moskow to UK without any issue. Yes, when i arrived i was tired but not exhausted. Also, some days the temperature dropped to -16 degrees and even though i'm not very fond of the cold weather i was able to resist.

    So, the fact that i couldn't get up after a busy day and eating gluten is PEM? If not, when must i expect to get PEM?
     
  8. SickOfSickness

    SickOfSickness Senior Member

    Messages:
    1,875
    Likes:
    959
    US
    It does not sound like PEM to me (from the information given) because you were OK after getting out of bed. PEM has delayed recovery. I believe yours is delayed compared to a healthy person due to Fibro.

    Also PEM can be delayed onset. Not all the time but it is one reason I think Fibro instead, from your story.
     
    Sherezade likes this.
  9. Allyson

    Allyson *****

    Messages:
    1,684
    Likes:
    670
    Australia, Melbourne

    raising arms over your head is an extra stress on the heart if you have POTS- some people even loose vision temporarily when they do this


    Ally
     
  10. Allyson

    Allyson *****

    Messages:
    1,684
    Likes:
    670
    Australia, Melbourne

    it is a common error to confuse eating gluten with being upright as the cause of a flare or severe fatigue

    we go out all day and eat gluten - but it may be it is the beig upright all day that causes the issues due to OI
    not that gluten - or more likely high fructose foods will not cause thri own problems in us

    see this link for more on OI /POTS and this whole issue

    http://forum.notcrazy.net/index.php?topic=9571.0


    A
     
    Sherezade likes this.

See more popular forum discussions.

Share This Page