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A disease with two faces? Re-naming ME/CFS
Persuasion Smith covers the bases on the misleading and disreputable name for our disease we've all been saddled with ...
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Is it a new disease or its CFS ?

Discussion in 'Immunological' started by Omar88, Aug 26, 2012.

  1. 8eraser8

    8eraser8

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    Sure give me your email and I will send email to u
     
  2. urraco2012

    urraco2012

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    I found this webpage https://sites.google.com/site/newhivaidslikeviruschina/home, not seems very pro, but its something. I guess most of u have read some pages like this, but I only want to ask, If this is so clear and affecting so many people, why this is not in the media? If you search something about it you can find just some articules from 2012, 2011, explaining that this is something rare, genetic and not infective desease. Why so many lies about it? Really the govs are trying to hide this? (Im not talking just about chinese gov, we all know eeuu have a lot of experience hiding real intentions in everything to the people). We really have to do something to put this on the paper...
     
  3. 8eraser8

    8eraser8

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    Simply because its common people that have been infected, not the powerful government officials or scientists. Common people are just numbers for gov, and a liability when common people are no longer productive and infected
     
  4. urraco2012

    urraco2012

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    I dont know how reliable is this page, but curiously is exactly the same symptoms that I had, even the thyroid enlargement! is incredible how identical is this information! Apparently symptoms tend to decrease and others remain indefinitely? The scaring issue is the organ damage, symptoms can be horrible and a nightmare, but supposedly have to decrease with time, but organs doesnt recover with the time... ufff, cant understand that even at this times is possible to hide something so big
     
  5. realconcern

    realconcern

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    Hi - new here.

    Been experiencing multitude of symptoms for 4 months. Tested conclusively negative for HIV/HTLV. I'm 29 yr old male. Had low risk encounter with a woman. One night stand. Unprotected oral both ways. Thought for sure it was HIV then HTLV despite low risk. First symptom was UTI like. UTI resolved within 2 weeks of exposure, but as soon as UTI cleared up tons of new things began. Many symptoms have resolved like nausea (lasted 2 weeks), fatigue (lasted 2 months), tingling limbs (2 weeks), rectal mucous discharge (1 week), and severe nightsweats (2 months). Other symptoms remain: white coating on tongue, red pin pricks dots on palm, non itchy red knuckles, weird skin imprints (that take extra time to disappear), receding gums, and most recently a swollen tongue. Has anyone here noticed a swollen tongue? If i stick my tongue out there are noticeable teeth marks around the edges and it looks swollen (it was never like this before - and i know because i'd been watching the white tongue so closely). My CBC is all within "normal" range. Also i never ran a fever, in fact my body temp has constantly been on the low side - like 97 faranheit. Infectious disease doc is stumped. Looking for support.

    I have not seen much written in this forum about 1)red pin prick dots, 2)rectal mucous, and 3)swollen tongue. Have any of you had those symptoms too, or just me?

    Despite these pesky, lingering symptoms, my body feels close to normal again. Very strange. Thanks for all your contributions here. It's been nice to read.
     
    tonydewitt likes this.
  6. Survivor84

    Survivor84 Senior Member

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    Realconcern, where are you from?
     
  7. realconcern

    realconcern

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    USA; Encounter also occurred in USA.
     
  8. Survivor84

    Survivor84 Senior Member

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    where in the US?
     
  9. Survivor84

    Survivor84 Senior Member

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    Thank you realconcern for joining the forum. If you can please get anybody else that would be great, we are better in numbers. Your story is all to familiar to us and the symptoms. Any information you can provide would be appreciated.
     
  10. Omar88

    Omar88 Senior Member

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  11. Omar88

    Omar88 Senior Member

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    Tried what ?!?!'

     
  12. Omar88

    Omar88 Senior Member

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    I had a UTI symptoms in the beginning of my symptoms , its much better than but is till have some !
     
  13. 8eraser8

    8eraser8

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    Omar did you or anyone try to contact the following virology centers? Since this is unknown virus, we should focus on virologist not standard doctors, this is above their knowledge

    Center for Virology at Mount Sinai School of Medicine
    Madison Avenue
    New York, NY 10029

    College of Veterinary Medicine & Biological Sciences
    105 Infectious Disease Annex
    Colorado State University
    Fort Collins, CO 80523

    Gladstone Institute of Virology & Immunology
    1650 Owens Street
    San Francisco, CA 94158

    Institute of Human Virology
    725 West Lombard Street
    Baltimore, MD 21201

    Johns Hopkins Bloomberg School of Public Health
    615 North Wolfe Street
    Baltimore, MD 21205

    University of Maryland
    22 S. Greene Street
    Baltimore, MD 21201

    The Scripps Research Institute
    10550 N. Torrey Pines Road
    La Jolla, CA 92037

    U.S. Army Medical Research and Materiel Command
    504 Scott Street
    Fort Detrick, MD 21702

    U.S. Army Medical Research Institute of Infectious Diseases
    1425 Porter Street
    Frederick, MD 21702

    University of Michigan
    Medical Sciences Research Bldg. III
    1150 West Medical Center Drive
    Ann Arbor, MI 48109

    UTMB - Galveston National Laboratory
    301 University Boulevard
    Galveston, TX 77555

    Walter Reed Army Institute of Research
    503 Robert Grant Avenue
    Silver Spring, MD 20910
     
  14. ronR

    ronR

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    India / singapore

    Do you know anyone from china with this virus, did a CD4 count ??
    And did anyone after many years got any serious alignments like autoimmune diseases /thyroid problem/joint problems ??


    U mentioned EBV, even I feel its a new type of herpes group virus ,yet to be discovered....only a virologist can confirm that....and its effect on CD4 CELLS .
     
    Teedot likes this.
  15. Survivor84

    Survivor84 Senior Member

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    Ok I really need the help of the group and an honest opinion on wether or not going to the media is a good idea. It seems as though this issue has gone on long enough unrecognized. Im sure that there were other people at some point that faught hard with doctors and what not. But has anyone gone to the media to be heard? There are people that have been dealing with this for years beyond us. Its surprising its gone on this long. If anyone has forum references with stories available from people all other, please send them to me.Any imput appreciated
     
    Sherezade and ronR like this.
  16. ronR

    ronR

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    India / singapore
  17. ronR

    ronR

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    India / singapore
    Those are some stories of people with hiv like pathogen
    Check the links in my above posts.
     
    Teedot likes this.
  18. ronR

    ronR

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    India / singapore
    ehealthforum.com/health/certain-hiv-positive-but-negative-tests-t229803.html#axzz2KQOwubnD

    Here is a thread from another forum . Check so many people struggling like us .
     
  19. ronR

    ronR

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    India / singapore
  20. Survivor84

    Survivor84 Senior Member

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    We all need to post our story on www.hivlikevirus.com and tell other people from other forums to do the same as well, so our stories will be compiled as one. Sherezade what do you think? I'd rather know about my future then worry about what ifs and unknowns.
     

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