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Is it a new disease or its CFS ?

Discussion in 'Immunological' started by Omar88, Aug 26, 2012.

  1. Omar88

    Omar88 Senior Member

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    I think i got those balanitis too as i have something like this but am not sure is it this or some kind and HPV but i dont think it is HPV because its not warts !

    I will try to have biopsy test for it so i would be sure what is it (OUCH) !!

    this is the first time your girlfriend having symptoms ? when you get a new infection the white blood cells get down then rise up again and i hope that is her case ,,,,
  2. Sherezade

    Sherezade Guest

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    Hi guys,

    The more i Think about it, the more i get convinced that i caught the chinese virus. First of all, i got all the symptoms described, all of them, I didn't miss one! In my country there's been a huge chinese inmigration in the last years, so, i guess that could be a way of transmission, specially if is so contagious like it's supposed to be.
    Anyway, I talked to my infectologist about the chinese virus. She denied that such a thing existed, she said that people make up things and post them in the internet to make people terrified. And then she told me that none retrovirus in transmitted by saliva. Anyway, that make me doubt, I don't know what to think, really.
    I'm trying with all my heart and mind to believe in the doctors, but it's difficult when i have all these awful symptoms.

    I just wanted to share that with you guys, let me know what you think.
  3. Sushi

    Sushi Moderator and Senior Member Albuquerque

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    You might want to watch the latest video interview with Dr. Chia where he talks about whether or not ME/CFS is infectious:

    http://forums.phoenixrising.me/inde...dr-chia-part-3-me-cfs-alert-episode-40.21623/

    Sushi
  4. taniaaust1

    taniaaust1 Senior Member

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    I dont think Ive heard it being called a retovirus... no one knows what kind of virus it is. Mainstream doctors wouldnt have heard of this as other then making news in China some time ago, it didnt make any news elsewhere.

    It could even be a new "type" of virus which just hasnt been discovered yet! Im sure they havent discovered everything yet.

    Its probably not worth worrying over unless you caught the thing you have or have passed something on to others.
  5. hivlikevirus

    hivlikevirus

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    Wait, what? Weepy? On penis(?!). Been showering 2-3 times a day (just water no soap) and it seems to be slowly drying / healing. But f***k, all this stuff can really put you off sex for good, huh(?) What happened to him after that? It all just cleared up or...?

    ?!!??!!?!?!!??! Don't know whether to laugh or cry. W H A T. Really(?!?!?!?!)

    Neurologist here is only only Tuesday through Thursday (so haven't booked yet) but hopefully there won't be too much of a wait for an appointment. Will definitely make sure we physically get all and any results. That's quite an important point actually:

    Guys, if you're having tests done - please make sure you physically get a printout / copy of all of the results and keep them somewhere safe.

    The doctor we saw the other day didn't even MENTION the depleted iron levels. To be honest, I don't think he even saw them / bothered reading them properly. 'Glucose fine, blood levels fine... ooh, allergy to grass!' If I hadn't asked for a copy we literally wouldn't even know about it. Shocking really.

    Are you taking anything for this? Post-appointment we immediately went to go and buy some iron supplements but all of the packaging says 'not to be used for the treatment of iron deficiency conditions'. Huh?!

    No, this has been going on for almost 5 months or so now - just used to talk to you under another name over on medhelp.

    Yeah, me too. All of the symptoms are definitely there anyway. And my girlfriend is Chinese, hmm...(!)

    I know it's hard but we will get there (slowly), in the meantime just try and relax and look after ourselves. Whatever it is - if anything - it's not gonna kill us anytime soon and hey, at least it's not HIV!
  6. taniaaust1

    taniaaust1 Senior Member

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    No.. it didnt clear up itself, it just got worst and worst till he couldnt even put his jeans on as it was too sore for anything to be touching. He had to go to the doctor and get stuff for thrush (I think she also put him on oral meds for it too).



    Yeah the medical person I saw really said that. Sometimes one wonders where their brains get to.


    No I arent taking anything for my iron.. as long as Im able to maintain my blood levels (even without the stores) my specialist seems to be happy to only comment on my low stores but not tell me to do anything else. (I know many other specialists would have me on something for that with my stores making me classified as borderline anemiac due to the no stores even thou the blood levels are okay .. the blood test results said borderline anemia). I couldnt take iron anyway even if he told me too.. it gives me severe constipation and I got a bowel prolapse last year when a medication gave me more constipation (take care with amytripyline it slows peristalsis and can wreck your bowel). It put my IBS-C out of control to the point where I almost had to have surgery.
  7. Hip

    Hip Senior Member

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    People with this Chinese virus do get better after one or two years. One man named Hanchuchu, who posted on this forum, caught the Chinese virus and was pretty ill, having severe anxiety symptoms, severe depression, anhedonia, suicidal thoughts, and severe constant chest pain. But after two years he got much better.

    So if you do have the Chinese virus, Sherezade, you probably will be much better in a year or two.


    In China, the "HIV-like" virus is taken seriously by researchers there, but the Chinese government tend to deny the virus is real.
  8. Survivor84

    Survivor84 Senior Member

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    I recently sent an e-mail to professor Nicolson describing our situation and giving him links to this forum and hivlikevirus website. This is the response I got
    Dear Tanya,

    Your situation is more common than you realize. Often patients contract
    chronic infections from sexual activity. The more common ones that can
    cause the type of chronic systemic conditions are intracellular bacterial
    infections, such as Mycoplasma, Chlamydia, etc. There are tests for these
    infections, but they are not always accurate and usually depend on
    detection at maximum symptom severity--otherwise they usually come up
    negative.

    Such infections almost always progress to systemic infections involving
    most if not all organs and tissues, resulting in complex symptoms that do
    not provide physicians with a reliable indicator of infection type or even
    that an infection is involved. In certain patients they can cause even
    worse autoimmune and degenerative diseases.

    I have attached some treatment information for the most common types of
    infections found in circumstances such as yours. As you will see much of
    this you can do yourself, but some will require a physician's input and
    council.

    Prof. Emeritus Garth Nicolson
    taniaaust1 and hivlikevirus like this.
  9. Survivor84

    Survivor84 Senior Member

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    He sent 3 pdf files. What do you guys think of what he is saying?
  10. hivlikevirus

    hivlikevirus

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    Bleak reading but at the same time: wonderful to have a professional opinion and even more so: one that actually tells us we're not just crazy. Will maybe just choose to ignore the almost inevitable full-body degenerative disease prognosis right now though...(!) We'll beat this before then - promise!

    Is there any chance you could maybe upload the attachments here? There's an 'Upload a File' button when you create a post - hopefully it'll work for pdfs. (If not, could please forward them to me and I'll host them on the site for everyone else? My e-mail address is same as my username here, just @gmail.com on the end.)

    Thank you so much for getting in touch with him and posting that here btw! He sounds like a great contact to have!
  11. Survivor84

    Survivor84 Senior Member

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    I will do that. I did email him again and encouraged him to please check out this forum along with the emergency report from China and your website as well. I wish he would consider doing a case study on one of us.
  12. urraco2012

    urraco2012

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    Finally a real doctor with logical thinking. Regrettable today doctors are just a mediator between patients and laboratory tests, I think they lost their scientific thinking and for them is just black or white depending on the results of the tests.
    I think basically the same that Mr Nicolson, somehow we are more susceptible for sexual or casual infections and that progress in our body to become chronic.

    Can you send the treatment information?
    Teedot likes this.
  13. Survivor84

    Survivor84 Senior Member

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    Yes I will. I think there is one major culprit going unrecognized, but because ppl are unaware they have it and are not being treated, the culprit is reeking havoc and creating other infections that may be easy to transmit. Maybe that's why some people are experiencing more or less symptoms and the incubation period may be different. I feel with prostitutes they are probably carrying more than others because they have been exposed to so much more from there line of work. Maybe that's why even low risk situations are even being effected.
  14. Survivor84

    Survivor84 Senior Member

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    Here are the files, i hope it worked, let me know

    Attached Files:

  15. Omar88

    Omar88 Senior Member

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    It took him 3 years as the last time you mentioned this ! while others takes 2 years as you said to get better but the question is whither we got the Chinese virus and we could get over it or not ?!

    I wish that we will cause its painful :(
  16. Omar88

    Omar88 Senior Member

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    Good work Tanya as we discussed this i want to you and the guys in USA to talk with him so he could take your samples and maybe ours too so he could search for some infections on them ,,,,

    Try your best with that Prof Garlth is a good person and he might help us in this !

    I really think its a virus than a microbe but we need to role this out first

    Beside we need to connect with other doctors like Chia and Enlander so we will be recognize as a group and would

    be test for our disease cause , no one will listen to us except CFS/ME real doctors so guys in Europe and USA we should try them all and we need to start making a schedule for that !!
  17. Survivor84

    Survivor84 Senior Member

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    Omar I emailed him again to see if he is still taking patients and ask if it was possible use this as a study and encouraged him to check this forum, emergency report from China and the HIV like virus
    Com. I hope he will actively help. Sushi suggested we look for researchers on pubmed
  18. Survivor84

    Survivor84 Senior Member

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    Question is lets say the symptoms subside and we feel better, we need to know if its chronic and will it remain transmissible?
  19. Omar88

    Omar88 Senior Member

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    A good researcher would be a CFS/ME doctor that he is an infection disease doctor too in the same time as they have the biggest interest in us and if we could find other doctors we wont mind am sure !

    Good question but believe if my symptoms disappear i wont think about this again cause i really want to forget those years of my life :)
  20. Sherezade

    Sherezade Guest

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    Thank you sushi, i watched the video and listened very carefully. As i understood Dr Chia thinks that this disease is only infectious in the acute phase and not in the chronic phase. But i respectfully doubt that observation based in my case. The guy that infected me was obviosly in his chronic phase, i think he's been sick since long before. He doesn't drive himself and i think he's got some degree of dementia already. He is a very agressive person.

    Anyway, i will consider the words of Dr Chia seriously because he is the experienced doctor, and specially because i can't live with the guilt of being infecting other people. I need some peace to my mind.

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