Invest in ME Conference 12: First Class in Every Way
OverTheHills wraps up our series of articles on this year's 12th Invest in ME International Conference (IIMEC12) in London with some reflections on her experience as a patient attending the conference for the first time.
Discuss the article on the Forums.

Is chronic fatigue syndrome finally being taken seriously?

Discussion in 'General ME/CFS News' started by worldbackwards, Apr 4, 2016.

  1. worldbackwards

    worldbackwards A unique snowflake

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    Earth
  2. Jonathan Edwards

    Jonathan Edwards "Gibberish"

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    SamanthaJ, beaker, L'engle and 20 others like this.
  3. hellytheelephant

    hellytheelephant Senior Member

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    Hooray! An article about ME which is neither sensationalist nor wildly inaccurate. The photo is also not too wide of the mark @Sasha.
     
  4. A.B.

    A.B. Senior Member

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    And an article that admits that the medical establishment is very dismissive of CFS patients.
     
  5. GreyOwl

    GreyOwl Dx: strong belief system, avoidance, hypervigilant

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    Would somebody please respond to this:

     
  6. sarah darwins

    sarah darwins I told you I was ill

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  7. Jonathan Edwards

    Jonathan Edwards "Gibberish"

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    I couldn't find that on the comments. When was it put up, can you tell?
     
    TiredSam likes this.
  8. TiredSam

    TiredSam The wise nematode hibernates

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    I'm happy with the article, it's written for general readers and there's only so much information they can take in at once without getting bored. I like the fact that the PACE hyperlink leads to Charles Shepherd's Lancet Psychiatry letter so that our case is well presented on that. The comments section is easier to read if you order them by recommendations first, that way all the ignorant trolls sink to the bottom.

    I was also impressed by this comment:

    Perhaps "Once falsely diagnosed by many doctors as psychological illness" would be better, and then refer to the appalling dismissal we face somewhere else. Although the problem really arises because we are diagnosed with psychological illnesses that don't exist, and when we refer to that as dismissal, it can seem disrespectful to people who have real psychological illnesses.
     
    SamanthaJ, L'engle, barbc56 and 7 others like this.
  9. sarah darwins

    sarah darwins I told you I was ill

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    I think this link will get you there, Jonathan:

    Reply

    If not, it's under a comment posted by Motdoc about 3 hours ago.

    edit: that user - glyndwr1404 - appears to have a bit of previous in flaming PWME.
     
    Last edited: Apr 4, 2016
    Invisible Woman likes this.
  10. msf

    msf Senior Member

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    ´New research suggests that ME has its roots in infection.´

    Well. duuuuuuuuuuuuuh...
     
    Scarecrow and Justin30 like this.
  11. Valentijn

    Valentijn Senior Member

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    Wow, a mainstream media outlet a taking a explicit swipe at PACE (albeit a gentle one)!
     
    L'engle, Jennifer J, Comet and 8 others like this.
  12. GreyOwl

    GreyOwl Dx: strong belief system, avoidance, hypervigilant

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    MeSci likes this.
  13. Sidereal

    Sidereal Senior Member

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    Pretty tepid article that looks great in comparison to the usual bilge they print about us.
     
    beaker, Esther12, Jennifer J and 9 others like this.
  14. msf

    msf Senior Member

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    I notice that Hornig seems to think that infection has something to do with autoimmunity in ME.
     
  15. sarah darwins

    sarah darwins I told you I was ill

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    I think you have to be logged in (or log in again) for those comment links to work. Easiest way to find that particular comment thread is to order by oldest first - the originating comment by Motdoc was one of the first on that article.

    edit: apologies. Hadn't noticed you had posted a different link, @GreyOwl.
     
    Last edited: Apr 4, 2016
  16. Yogi

    Yogi Senior Member

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    This is an fairly good article. It is a good start for this journalist who has I believe not written about it before. It would be good if he built upon this and did a proper guardian investigation like today's Panama tax files.

    Here is his Twitter and bio:

    https://mobile.twitter.com/dcwriter89

    He asked why it took so long:



    In one word -
    Wessely

    Overall good article but this just shows how the low standards have been in UK media.
     
    L'engle, Jennifer J, Kati and 9 others like this.
  17. Cheshire

    Cheshire Senior Member

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    That explains why he came to the MECFS field
     
    SamanthaJ, L'engle, barbc56 and 18 others like this.
  18. worldbackwards

    worldbackwards A unique snowflake

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    I thought this was for the US website but it seems the author is British. Are there any namby-pamby, wishy-washy, bleeding heart liberals who can tell us if this is the print edition?
     
    Scarecrow, Chezboo, *GG* and 6 others like this.
  19. Sean

    Sean Senior Member

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    A small but significant step forward for the mainstream media.
     
    rosie26, Jennifer J, Comet and 7 others like this.
  20. Aurator

    Aurator Senior Member

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    I kept expecting to find SMC propaganda in this somewhere, and felt a bit cheated when I got to the end and found that David Cox appears to be his own man ploughing his own furrow. Where have you been hiding all this time, David? How is it that the BPS-school Ringwraiths never got to you?

    Though I'm pleased with the article, I'm bracing myself for the possibly inevitable counterstroke: some patronising little nuggets from Esther Crawley, perhaps, or yet another irrelevant homily from an evangelical psychiatrist about how undeniably real psychological illnesses are. I think we all know the deal by now. It's not over till it's over.
     

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