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IrsiCaixa's new study:Researching new tools for diagnosing CFS:HELP with the fundraising campaign!

Discussion in 'Fundraising' started by serg1942, Mar 20, 2014.

  1. Bob

    Bob

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    €6,070 reached! 37 days to go! €29,000 target.
     
    Last edited: Mar 22, 2014
    Sasha likes this.
  2. Bob

    Bob

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  3. Bob

    Bob

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    Edit: Please ignore this post for now, because it seems that they've given incomplete bank transfer details.

    I think these are the details for an international bank transfer...

    IBAN: ES 68 0182-1413-69-0201553881
    BIC or SWIFT: ESMMXXX


    http://www.asssem.org/2014/03/arranca-la-campana-de-recogida-de_20.html

    (Don't copy these details from a Google translation, as it changes the details.)

    @Gijs
     
    Last edited: Mar 24, 2014
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  4. serg1942

    serg1942 Senior Member

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    Fantastic Bob!, thank you very much for translating and for posting the International bank account!!!

    Best!
    Sergio
     
    Bob likes this.
  5. Bob

    Bob

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    I've sent this out this Tweet - please feel free to retweet it:
    https://twitter.com/bobbobme/status/448137713519054848


    Alternatively, please feel free to copy the text to send out your own tweet:

    And this is the image that I uploaded to my Tweet. Please feel free to download it, and use it:
    Pledge 3.png


    And, in case helpful, this is the text used in the image:
     
    Last edited: Mar 24, 2014
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  6. Legolas

    Legolas

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    Belgium
    I can't use this to transfer money from Belgium.
    There is someting missing in the BIC. It should be 8 to 11 letters. (http://en.wikipedia.org/wiki/ISO_9362)

    For example:
    http://swift-code.bankslookup.com/BIC/Spain/MADRID/BANCO SANTANDER S.A.
     
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  7. barbc56

    barbc56 Senior Member

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    29,000 euros. equals 40,133.10 US dollars. If this is incorrect, please post the correct amount as my head today feels like it's swathed in cotton, making thinking straight an almost impossible task.:rolleyes:

    @serg1942 Thanks for this information! I have only had time to skim it but it looks quite interesting. :thumbsup:

    Barb
     
    Bob likes this.
  8. Bob

    Bob

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    Looks correct to me! :)
     
    Last edited: Mar 24, 2014
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  9. Bob

    Bob

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    Yes, it seems that they've missed out some digits. I think they may have missed out the first four digits which identify the bank. But they've identified their bank, elsewhere, as 'BBVA'.

    So perhaps the bic-swift code should be:

    BBVAESMMXXX

    This seems to be the bic-swift code for the BBVA bank in Spain.

    @serg1942, would you be able to contact them about this?
     
    Last edited: Mar 24, 2014
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  10. parvofighter

    parvofighter Senior Member

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    Pledge/payment via Paypal works fine from Canada. Thanks @serg1942 and Bob for the info. Go IrisCaixa!
     
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  11. serg1942

    serg1942 Senior Member

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    Hi guys! Thank you very much for continuing helping raising th needed money for this study. I do think it is really worth helping this team to be able to carry out the following up work and to publish their results.

    I will be a week disconnected from the Internet because I am traveling to Brussels to visit my doctor, so please excuse if I cannot attend the thread and the possible issues, like the one with the bank account. I am going to let them know now tough, hoping they solve it soon!

    In the meanwhile THANK you very much for helping here!

    I will be back soon!
    Sergio

    PS. yeap, the amount in dollars seems correct, although it looks much higher!! I rather see it in euros! :)
     
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  12. Bob

    Bob

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    €7,820 raised. 34 days to go.

    No update on the international bank transfer details yet.
     
  13. Bob

    Bob

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    €10,260 raised. 28 days to go.
     
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  14. Gijs

    Gijs Senior Member

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    I still can not donate :-(
     
  15. Bob

    Bob

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    I can't guarantee it, but these may be the international bank transfer details:

    IBAN:
    ES 68 0182-1413-69-0201553881

    BIC/SWIFT:

    BBVAESMMXXX
     
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  16. serg1942

    serg1942 Senior Member

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    Thank you Bob, actually those numbers are correct. They have confirmed to successfully received international bank transfers.

    Actually, they already have almost 17.000 euros, as they have broken down on their Webseite: http://www.asssem.org

    The extra amount comes mainly from their own funds, but also from the bank transfers

    So they need about 12.800 euros to make it, and there are 26 days left!

    Best!
    Sergio
     
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  17. Bob

    Bob

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    Great news, thanks for the update Sergio.
     
  18. bambi

    bambi

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    Hi all,

    I see that there is not much ongoing effort here to help fund this study. Most probably because of lack of information. So I will try to provide a bit more info.

    It is very important that independent groups from all around the globe are following up with immune marker studies. These studies have to been repeated again and again in order to be validated and gain recognition.

    Many here are under the false impression that one single study by one high profile researcher will find ONE marker which is unique to ME. This is not how this works. It is a cluster of immune markers, called cluster of differentiation, which will be part of diagnosis for ME. CD markers are used widely for research, differential diagnosis, monitoring and treatment of disease. If you want to learn more about cell surface markers please check out this fun site. You can click on each cell pic and the CD marker associated with it will pop up https://www.biolegend.com/cell_markers

    For more information on the very important and interesting topic TREGS, please read the following post http://www.mecfsforums.com/index.php?topic=16077.0 or visit a new blog in the making http://moms4science.weebly.com/i-read-and-share.html

    (I am in the process to get more information on the results of the second study and the one planned. I promise I will get back with more information on what we can expect from this study, but I think if you read the post by Anushka on Tregs you will get a good sense of how important this study is.)


    Here is the new link to the English page and the site for donations.

    http://www.verkami.com/locale/en/projects/8246

    Here is a bit more personal information from Clara Velverde:

    "There are 3 studies: one published already by Julian Blanco about the immunology of ME/CFS,another one we did, the patients, on immunological biomarkers (that is not published) and now the 3rd one is the one that Julian will start as soon as we get the 29000 euros (we are having a hard time getting the money as people in Spain are out of work and those who are sick, well, we have no income). this third study will be on the Tregs. I think that Julian will talk about it at the Invest in ME conference in London."

    I also have a power point presentation in English by Dr. Blanco but do not manage to upload it here. Maybe some one from admin can help?

    PLEASE SUPPORT THIS STUDY AND PASS THE DONATION PAGE ON TO FRIENDS AND FAMILY !

    That is all for now.
     
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  19. Bob

    Bob

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    Hi bambi,
    Thank you for the information.
    If you are able to save the powerpoint doc as a PDF, then you'll be able to upload the PDF.
    Let me know if you can't, and I'll be able to do it for you via email.
    Bob
     
  20. bambi

    bambi

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    Hi Bob,
    The presentation is in PDF format and I tried uploading it, but it did not work. I will try to forward it to you.
     

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