Invisible Illness Awareness Week 2016: Our Voices Need to Be Heard
Never heard of Invisible Illness Awareness Week? You're not alone. Jody Smith sheds a little light to make it more visible
Discuss the article on the Forums.

IOM Gives Chronic Fatigue Syndrome New Name and Definition

Discussion in 'Institute of Medicine (IOM) Government Contract' started by Dr.Patient, Feb 10, 2015.

  1. Dr.Patient

    Dr.Patient There is no kinship like the one we share!

    Messages:
    505
    Likes:
    553
    USA
    http://www.medscape.com/

    Please create a free account for yourself, you can read the attitudes of some physicians in the comments section, thanks.
     
    halcyon likes this.
  2. Gingergrrl

    Gingergrrl Senior Member

    Messages:
    9,148
    Likes:
    23,382
    USA
    @Dr.Patient I saw the comment that I think you wrote (someone copied into another thread, I did not log into medscape) and if it was your comment, I just want to say, "Well-done." And if it wasn't, then well-done to whoever did write it!
     
  3. minkeygirl

    minkeygirl But I Look So Good.

    Messages:
    4,678
    Likes:
    4,643
    Left Coast
  4. minkeygirl

    minkeygirl But I Look So Good.

    Messages:
    4,678
    Likes:
    4,643
    Left Coast
    From Wikipedia: Seid or Seiðr, an Old Norse term for a type of sorcery or witchcraft....
     
  5. Dr.Patient

    Dr.Patient There is no kinship like the one we share!

    Messages:
    505
    Likes:
    553
    USA
    Thank you, that was me.
     
    Iquitos, Roy S, alex3619 and 6 others like this.
  6. Scarecrow

    Scarecrow Revolting Peasant

    Messages:
    1,876
    Likes:
    5,287
    Scotland
    :eek:

    Also, and I can't vouch for this because I'm not a gaelic speaker:

    SEID (gaelic) = Tympany, a swelling of the body from flatulence
     
    taniaaust1 and aimossy like this.
  7. Gingergrrl

    Gingergrrl Senior Member

    Messages:
    9,148
    Likes:
    23,382
    USA
    I thought so and it was very well written although it made me sad to hear about your current circumstances. I agree with you that if there were a way to create a group of former healthcare professionals (doctors, nurses, social workers, physical therapists, etc, etc) whose careers have been ended by ME/CFS (or SEID or whatever you want to call it) we might be able to provide a different perspective for research or advocacy. Do you have any ideas how to organize such a thing?
     
    Iquitos, taniaaust1, Sean and 5 others like this.
  8. Dr.Patient

    Dr.Patient There is no kinship like the one we share!

    Messages:
    505
    Likes:
    553
    USA
    I have been thinking about setting up a website for this for about 2 years now, but had no strength to do it. May be soon I will do that!
     
    beaker, Sean, jeff_w and 2 others like this.
  9. alex3619

    alex3619 Senior Member

    Messages:
    12,411
    Likes:
    34,772
    Logan, Queensland, Australia
  10. Gingergrrl

    Gingergrrl Senior Member

    Messages:
    9,148
    Likes:
    23,382
    USA
    @Dr.Patient I got your PM and would LOVE to help you to create a group for this. I have an appt so won't be able to respond until later this evening. I have no technical skills so would be useless as far as creating a website but I have lots of other ideas. I envision ways that former healthcare professionals can help this cause (worldwide- not just US professionals.) To be continued... :)
     
    beaker, AndyPandy, picante and 2 others like this.
  11. jeff_w

    jeff_w Senior Member

    Messages:
    295
    Likes:
    1,258
    @Dr.Patient and @Gingergrrl - I have designed and created many websites. I can do this part of the project. This is an extremely worthy cause and I can't think of a more important way to spend my energy.

    When professionals (doctors, mental health workers, etc.) hear the ME/CFS stories of other professionals, they will be so much more likely to listen and take positive action.
     
    Helen, Iquitos, taniaaust1 and 10 others like this.
  12. Gingergrrl

    Gingergrrl Senior Member

    Messages:
    9,148
    Likes:
    23,382
    USA
    @jeff_w Thank you for offering and you are awesome (I already knew that!) and we should maybe open a group PM for anyone interested in this idea. I want to hear exactly what @Dr.Patient envisioned and suspect it is similar to my idea and to what you are proposing. I also think it should involve university and medical school students (basically students in the healthcare field) who have been struck down by ME/CFS before even getting into their career in addition to someone like me who had a very successful career for 16 yrs which was abruptly ended by this illness.
     
    GaryK, Dr.Patient and jeff_w like this.
  13. jeff_w

    jeff_w Senior Member

    Messages:
    295
    Likes:
    1,258
    @Gingergrrl @Dr.Patient

    We can, in addition to a Group PM, create a forum "Group" for those interested in this idea, using the "Groups" tab on the horizontal menu.
     
    Sean, Dr.Patient and Gingergrrl like this.
  14. lnester7

    lnester7 Seven

    Messages:
    2,348
    Likes:
    3,347
    USA
    Since emotional can trigger does the funds will keep going to the Psys????
     
  15. heapsreal

    heapsreal iherb 10% discount code OPA989,

    Messages:
    8,833
    Likes:
    8,099
    australia (brisbane)
    thanks for that link, i have just posted a few links for non believers to think about, i hope they read it with an open mind.
     
    Gingergrrl likes this.
  16. Gingergrrl

    Gingergrrl Senior Member

    Messages:
    9,148
    Likes:
    23,382
    USA
    @heapsreal I was wondering how the press is presenting this news is Australia today? Sorry if you already said this elsewhere.
     
  17. heapsreal

    heapsreal iherb 10% discount code OPA989,

    Messages:
    8,833
    Likes:
    8,099
    australia (brisbane)
    I havent looked yet.
    hopefully griffith university can nip any BS in the bud
     
    Sean, GracieJ and Gingergrrl like this.
  18. daisybell

    daisybell Senior Member

    Messages:
    1,601
    Likes:
    7,355
    New Zealand
    Count me in! I am an SLT/SLP, who worked in the health system for 16 years until I got too sick.... Now nearly a year into my hopefully temporary retirement.....
     
    Gingergrrl likes this.
  19. Gingergrrl

    Gingergrrl Senior Member

    Messages:
    9,148
    Likes:
    23,382
    USA
    @daisybell we'd be happy to add you and haven't created a group yet and just started discussing in a PM.
     
    daisybell likes this.
  20. alex3619

    alex3619 Senior Member

    Messages:
    12,411
    Likes:
    34,772
    Logan, Queensland, Australia
    heapsreal and Gingergrrl like this.

See more popular forum discussions.

Share This Page