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INVITATION: PATIENT INPUT ON CANADIAN ORPHAN DRUG FRAMEWORK

Discussion in 'Action Alerts and Advocacy' started by parvofighter, Jul 5, 2013.

  1. parvofighter

    parvofighter Senior Member

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    Canada


    INVITATION FOR PATIENTS TO GIVE FEEDBACK ON THE


    CANADIAN ORPHAN DRAFT DRUG FRAMEWORK PROPOSED BY HEALTH CANADA!


    This info is being re-posted with permission from the Canadian Organization for Rare Disorders.


  2. parvofighter

    parvofighter Senior Member

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    Canada
    Canadian patients - here's your chance to shape the draft ORPHAN DRAFT DRUG FRAMEWORK PROPOSED BY HEALTH CANADA!

    (BUMP) :thumbsup:
  3. Firestormm

    Firestormm Senior Member

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    Cornwall England
    Hi Parvo - can I ask what it is please? Thanks. It's rather a heavy pdf. file and I am interested. A short summation would suffice. Not Canadian (obviously) but you might get some more interest with an explanation from those who are? :thumbsup:
  4. Sasha

    Sasha Fine, thank you

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    UK
    It looks like it's for 'rare' diseases defined as affecting 1 in 2,000 of the population or fewer - presumably that's us out, then, but maybe of general interest to Canadian patients?

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