Phoenix Rising: The Gift That Keeps on Giving All Year Long
This holiday season Jody Smith turns her eyes to the people of Phoenix Rising and gives thanks for you all ...
Discuss the article on the Forums.

INVITATION: PATIENT INPUT ON CANADIAN ORPHAN DRUG FRAMEWORK

Discussion in 'Action Alerts and Advocacy' started by parvofighter, Jul 5, 2013.

  1. parvofighter

    parvofighter Senior Member

    Messages:
    440
    Likes:
    124
    Canada


    INVITATION FOR PATIENTS TO GIVE FEEDBACK ON THE


    CANADIAN ORPHAN DRAFT DRUG FRAMEWORK PROPOSED BY HEALTH CANADA!


    This info is being re-posted with permission from the Canadian Organization for Rare Disorders.


     
  2. parvofighter

    parvofighter Senior Member

    Messages:
    440
    Likes:
    124
    Canada
    Canadian patients - here's your chance to shape the draft ORPHAN DRAFT DRUG FRAMEWORK PROPOSED BY HEALTH CANADA!

    (BUMP) :thumbsup:
     
  3. Firestormm

    Firestormm Guest

    Messages:
    5,823
    Likes:
    6,018
    Cornwall England
    Hi Parvo - can I ask what it is please? Thanks. It's rather a heavy pdf. file and I am interested. A short summation would suffice. Not Canadian (obviously) but you might get some more interest with an explanation from those who are? :thumbsup:
     
  4. Sasha

    Sasha Fine, thank you

    Messages:
    15,146
    Likes:
    36,359
    UK
    It looks like it's for 'rare' diseases defined as affecting 1 in 2,000 of the population or fewer - presumably that's us out, then, but maybe of general interest to Canadian patients?
     

See more popular forum discussions.

Share This Page