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Invest in ME now fundraising for a Rituximab trial!

Discussion in 'Fundraising' started by snowathlete, Jun 7, 2013.

  1. sproggle

    sproggle Jan

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    Sasha likes this.
  2. Sasha

    Sasha Fine, thank you

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    Wow - and I would expect that to really pick up once they've got more info out. Very well done to them! :thumbsup:
  3. Sasha

    Sasha Fine, thank you

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  4. Bob

    Bob

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  5. Battery Muncher

    Battery Muncher Senior Member

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    Glad to hear this. One problem with ME/CFS fundraising, in my (very limited) experience, is that they don't co-ordinate their efforts well. Hopefully Rituximab can provide a focal point over the coming months.
    Valentijn and Sasha like this.
  6. Sasha

    Sasha Fine, thank you

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    Wow - someone just dropped £1,000 on their Justgiving page (with Gift Aid, which brings it to £1,250).

    Their total is £11,900 now - and as far as I know they don't even have a press release out. If they can do this without even trying, I wonder how fast this fund will move once they're really underway.

    Good news for the UK! :)
    Bob and Battery Muncher like this.
  7. Battery Muncher

    Battery Muncher Senior Member

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    And now they've hit the £12k mark! :)
    Bob and Sasha like this.
  8. Firestormm

    Firestormm Senior Member

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  9. sproggle

    sproggle Jan

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    Really pleased this info is now public, with Professor Edwards on board (and IiME liaising with the Norwegians as well) it should prove to be a top class study :)
    Battery Muncher likes this.
  10. sproggle

    sproggle Jan

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  11. Battery Muncher

    Battery Muncher Senior Member

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    Over £13,000 pounds now! :thumbsup: That's £3,000 between July 6th-July20th (two weeks/14 days)!

    Also, very pleased to see J Edwards on board :)
    Sasha likes this.
  12. Kate_UK

    Kate_UK Senior Member

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  13. Sasha

    Sasha Fine, thank you

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  14. Sasha

    Sasha Fine, thank you

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    £15k now! :balloons:
    Battery Muncher and Bob like this.
  15. Kate_UK

    Kate_UK Senior Member

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  16. Sasha

    Sasha Fine, thank you

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  17. Bob

    Bob

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    I don't know where to post minor news about UK Rituximab studies, as there are so many threads.

    There are some Rituximab study discussions in the latest minutes (July 2013) from the Forward ME Group:
    http://www.meassociation.org.uk/?p=16383

    The minutes are worth reading in full, but here are the extracts re Rituximab, taken out of context...

  18. Firestormm

    Firestormm Senior Member

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    Bob Yes there are rather a lot of disparate Rituximab threads; it can be hard knowing where to place things or whether to create new threads all the time... Still all good stuff :)
    Bob likes this.
  19. sproggle

    sproggle Jan

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    The MATRIX.

    A new idea from the Let's Do It For ME team.

    The aim of the Matrix project is to help to raise as much as possible of the estimated £350,000 required to fund this trial by inviting 100 pledges to raise or donate £1000 each.

    We invite patients, families, friends and ME support groups to support us and join this fundraising exercise to begin the UK rituximab Trial which IiME have initiated.

    http://www.investinme.org/IIME UK Rituximab Trial Matrix.htm
    Sasha likes this.
  20. Sasha

    Sasha Fine, thank you

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    Terrific idea! :thumbsup:
    sproggle likes this.

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