August 8th, 2016: Understanding and Remembrance Day for Severe Myalgic Encephalomyelitis
Jody Smith joins with other ME voices in honor of Understanding and Remembrance Day for Severe Myalgic Encephalomyelitis.
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Invest in ME Biomedical Research Colloquium 2017 #BRMEC7

Discussion in 'Upcoming ME/CFS Events' started by Jo Best, Dec 20, 2016.

  1. deleder2k

    deleder2k Senior Member

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    Day two: "B-vitamins in ME/CFS Dr. Ingrid G. Rekeland, Bergen, Norway"

    Why on earth will a researcher from Haukeland speak about B-vitamins in ME/CFS? Is it really B-cells, or is it B-vitamins? I haven't heard they've said anything about B-vitamins before.
     
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  2. BurnA

    BurnA Senior Member

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    It's listed in the agenda under clinical trials, - is there a trial on B vitamins ?

    In the same section is an Immunadsorbtion trial talk given by Carmen Scheibenbogen, i dont see her name in the list for the conference, pity because it would be interesting to know more about this.
     
  3. deleder2k

    deleder2k Senior Member

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    It is either a typo or it could be a major thing. I'll start digging.
    [​IMG]
     
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  4. deleder2k

    deleder2k Senior Member

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    To my knowledge there has been no study on B-vits, but some patients has tried it and has been reporting back to Haukeland. What I hear from one patient is that he takes 200 mg b1, 200 mg b2, and 2x500 mg pyruvate daily. Apparently symptoms improved.

    This is all I know. Usually I have more to say when I talk to people around Haukeland. I don't know what to make of it. Does pyruvate have anything to do with b-vits?

    I wasn't sure whether to share this or not, but since the dr. is speaking about b-vits at the conference I guess it can't harm. I must emphasise that the daily treatment plan was received from a patient. It was not a recommendation to him from Haukeland. I have no clue if it is the "right" dose, if it is safe, or if it is worth tryin' at all. I can just say that it is all very cheap when I looked at iHerb.
     
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  5. Jo Best

    Jo Best Senior Member

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  6. Jo Best

    Jo Best Senior Member

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    Update on the Pre-Conference evening dinner by Invest in ME Research in their Facebook group:

     
  7. Jo Best

    Jo Best Senior Member

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  8. Jo Best

    Jo Best Senior Member

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  9. emsho

    emsho

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    Scotland
    @Jo Best big thank you to all the volunteers who must be working hard to make the colloquim happen :thumbsup::thumbsup::heart:
     
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  10. Jo Best

    Jo Best Senior Member

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  11. Jo Best

    Jo Best Senior Member

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    Hear hear! :hug:
     
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  12. Daisymay

    Daisymay Senior Member

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    Jo could you please provide a link for the early bird buying of conference videos, I'm not managing to find it, thanks.
     
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  13. Jo Best

    Jo Best Senior Member

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  14. Jo Best

    Jo Best Senior Member

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    Last edited: Jun 1, 2017
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  15. jpcv

    jpcv Senior Member

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    SE coast, Brazil
    I have just ordered mine :):thumbsup::balloons:
     
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  16. Jo Best

    Jo Best Senior Member

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    Enjoy! :)
     
  17. Jo Best

    Jo Best Senior Member

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    Posted by Invest in ME Research (IiMER) in their Facebook group:

    day 2.jpg

    b76.jpg

    fb.JPG
     
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  18. Jo Best

    Jo Best Senior Member

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    Last edited: Jun 1, 2017
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  19. Jo Best

    Jo Best Senior Member

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  20. Jo Best

    Jo Best Senior Member

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