Review: 'Through the Shadowlands’ describes Julie Rehmeyer's ME/CFS Odyssey
I should note at the outset that this review is based on an audio version of the galleys and the epilogue from the finished work. Julie Rehmeyer sent me the final version as a PDF, but for some reason my text to voice software (Kurzweil) had issues with it. I understand that it is...
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Interview with neuroscientist Michael VanElzakker: Vagus Nerve, ME/CFS, latent infection and more

Discussion in 'General ME/CFS News' started by Dolphin, Dec 8, 2017.

  1. Dolphin

    Dolphin Senior Member

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    Ben H, ScottTriGuy, edawg81 and 2 others like this.
  2. Sushi

    Sushi Moderation Resource Albuquerque

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    I am wondering whether individual autonomic profiles impact response. For instance, I test as being parasympathetically dominant (i.e. vagus nerve is highly activated) so perhaps patients who have my less common profile might not response well to vagus nerve stimulation? And perhaps those who are more sympathetically dominant would respond better? Just pondering, I haven't tried it.
     
  3. Cam Newton

    Cam Newton

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    The vagus nerve infection theory may be a good idea but it is still 100% speculation. As far as I understand, the best guess of what ME/CFS is, is an autoimmune disease rather than any active infection.
     
  4. lansbergen

    lansbergen Senior Member

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    Well I will keep doing what works for me. Taking the immunemodulator which has many effects on Tcells.
     
  5. soofke

    soofke

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    Dutchy
    or a half-active infection, called a stealth virus
     
  6. Pink

    Pink Senior Member

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    @Sushi , how do you find out your autonomic profile? I think I have some vagus nerve/dysautonima issues, but I'm having trouble finding a good Dr to test me.
     
  7. Sushi

    Sushi Moderation Resource Albuquerque

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    Finding a good doctor is the challenge. I had extensive testing with an autonomic specialist but there are very few of them. You might look on some of the dysautonomia sites for recommendations. The doctor I saw has POTS himself and last I heard, had greatly limited his practice.
     
    Pink likes this.
  8. Pink

    Pink Senior Member

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    My Dr recommended a place but after weeks of waiting they said I need to see a regular neurologist first.
     
  9. Sushi

    Sushi Moderation Resource Albuquerque

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  10. Pink

    Pink Senior Member

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    Thank u @Sushi , I did not think so either. She had contacted a specialized dysautonima center, but they said no.
     
  11. Sushi

    Sushi Moderation Resource Albuquerque

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    If you are okay giving your location you could start a thread asking for recommendations for an autonomic specialist in your area.
     
    Pink likes this.

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