Review: 'Through the Shadowlands’ describes Julie Rehmeyer's ME/CFS Odyssey
I should note at the outset that this review is based on an audio version of the galleys and the epilogue from the finished work. Julie Rehmeyer sent me the final version as a PDF, but for some reason my text to voice software (Kurzweil) had issues with it. I understand that it is...
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Interview with Dr. Mark Vink (English version)

Discussion in 'General ME/CFS News' started by Grigor, Oct 2, 2017.

  1. Grigor

    Grigor Senior Member

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  2. Hutan

    Hutan Senior Member

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    This is worth reading. Very moving and nicely translated.

    Edit - and slams PACE :)
     
    Last edited: Oct 3, 2017
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  3. anni66

    anni66 mum to ME daughter

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    Very good translation and insight into living with this illness. It should be widely shared.
     
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  4. Barry53

    Barry53 Senior Member

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    Got it in one :thumbsup: (the 2nd sentence of course).
     
    Last edited: Oct 3, 2017
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  5. Joh

    Joh Inactivist

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    HI @Grigor, I'm just at the beginning and looking forward to reading this, thank you for the translation! :)
    The 2015 should be a 2005.

    Edit: Finished it, great article! Mark Vink is an inspiration.
     
    Last edited: Oct 3, 2017
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  6. Jesse2233

    Jesse2233 Senior Member

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    this man is the definition of a hero
     
    Jo Best, Dolphin, anniekim and 11 others like this.
  7. ScottTriGuy

    ScottTriGuy Stop the harm. Start the research and treatment.

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    My comment on Anil's blog:

    Wow, I didn't realize / know Mark Vink was also a severely ill ME patient. We have so many hidden-by-ME heroes in our community. Thanks for sharing Mark's story and efforts. It is both sad and inspiring.
     
    Mij, slysaint, Jo Best and 13 others like this.
  8. unicorn7

    unicorn7

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    Big applause for this interview!! Nice to see it translated on your website:)

    The interview was in one of the bigger papers in the Netherlands last saturday. I viewed it with blendle.
    On sunday the article was the headline from blendle:thumbsup:
    and on monday is was the most often viewed article of the weekend:thumbsup:

    I'm liking the attention:):)
     
  9. Joh

    Joh Inactivist

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    As someone who lives not far from the Dutch border, I'm very impressed by the Dutch patient community as a whole. They are 40.000 pwME vs. 300.000 in the neighbor country Germany, but have much, much more advocacy work going on - great Millions Missing events (the one in Den Haag seemed huge, loved the pictures), several buildings + a bridge + a train station in blue light on international ME day this year, regularly translate articles (e.g. trial by error by David Tuller), organized a visit and talk by Linda Tannenbaum on the worldwide OMF End ME/CFS tour, have already announced several Unrest screenings, the blogs by Lou and Anil, the articles and research by Mark... :thumbsup::thumbsup::thumbsup:
     
  10. Grigor

    Grigor Senior Member

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    So cool to read all your comments. Mark is indeed amazing. I'm happy he's on my blog now. Felt people needed to read this.
     
    Last edited: Oct 3, 2017
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  11. boombachi

    boombachi Senior Member

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    Thank you to Mark for using his precious energy to fight for us and thank you grigor for the translation.:thumbsup:
     
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  12. Grigor

    Grigor Senior Member

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    Thank you, I didn't translate though. 3 unknown ME patients did :)
     
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  13. boombachi

    boombachi Senior Member

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    Sorry, I misunderstood. :whistle:Thank you for bringing the interview to our attention and my appreciation goes out to the unknown translators. :)
     
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  14. Grigor

    Grigor Senior Member

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    Haha. Yes mine too. It's great because it's the first article by this journalist where the Dutch PACE-trial friends were not asked for their opinion.
    She always put a little section with them talking down any advances that were being made like for example in Norway or whatever. So this is quite a switch. It's very positive and big....
     
  15. Alululu

    Alululu

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    Yesss normally they always let the 'Dutch Wessely' have his say, reducing the impact of the content of the article. But now this time! :D
     
  16. aaron_c

    aaron_c Senior Member

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    One of them was me! But the idea and all the organizing was all...well, an anonymous ME patient superstar.
     
  17. Grigor

    Grigor Senior Member

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    Thank you very much
     
  18. GalaxiiGrl

    GalaxiiGrl

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    I was the other “named” editor.
     
  19. Grigor

    Grigor Senior Member

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    I added you guys at the bottom of the page. Super thankful that it got translated. I think it's one of the best articles we've ever had in the Netherlands.
     
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  20. Dolphin

    Dolphin Senior Member

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