Severe ME Day of Understanding and Remembrance: Aug. 8, 2017
Determined to paper the Internet with articles about ME, Jody Smith brings some additional focus to Severe Myalgic Encephalomyelitis Day of Understanding and Remembrance on Aug. 8, 2017 ...
Discuss the article on the Forums.

International Day of Persons with Disabilities:The debilitating truth about Chronic Fatigue Syndrome

Discussion in 'General ME/CFS News' started by aimossy, Dec 3, 2014.

  1. aimossy

    aimossy Senior Member

    Messages:
    1,096
    Likes:
    3,791
    alex3619, rosie26, NK17 and 8 others like this.
  2. justy

    justy Donate Advocate Demonstrate

    Messages:
    5,312
    Likes:
    12,097
    U.K
    Just spotted this online also... For once they have a fantastic picture to go with the headline- a person in a wheelchair, and they even talk to someone who is a part time wheelchair user like so many of us have to be. So gratefult hat they got this right!
     
    NK17, merylg, Simon and 4 others like this.
  3. Sasha

    Sasha Fine, thank you

    Messages:
    12,789
    Likes:
    34,217
    UK
    Finally! An article about ME illustrated by a photo of a person in a wheelchair, not a tired model with immaculate make-up and blow-dried hair looking faintly weary while sitting at an office computer in her full-time job.

    I already like it and I haven't even read it!
     
    JAM, rosie26, Revel and 11 others like this.
  4. Sasha

    Sasha Fine, thank you

    Messages:
    12,789
    Likes:
    34,217
    UK
    We crossed, @justy! Great minds...
     
    justy likes this.
  5. justy

    justy Donate Advocate Demonstrate

    Messages:
    5,312
    Likes:
    12,097
    U.K
    They are taking comments.
     
    Valentijn and Sasha like this.
  6. Valentijn

    Valentijn Senior Member

    Messages:
    14,281
    Likes:
    45,824
    Though the person in a wheelchair is in a physical therapy office. The bars in front of them are for people relearning to walk or balance. Not that it would really help with ME patients, since our arms aren't anymore likely to support us than our legs.

    But yeah, still a much better photo than usual!
     
    Mij, merylg, catly and 2 others like this.
  7. Sidereal

    Sidereal Senior Member

    Messages:
    3,097
    Likes:
    17,179
    Good article. The one thing I thought was misleading was referring to the woman's relapse as "severe" when she was still holding down a full-time job. To my mind severe ME is housebound/bedbound.
     
    Wildcat, *GG*, Revel and 2 others like this.
  8. Revel

    Revel Senior Member

    Messages:
    408
    Likes:
    2,462
    Interesting point of view in the comments section to this article:

    "I'm so tired of the claim "There is no treatment". There are dozens of effective treatments for CFS/ME. The access needs to be improved, but it doesn't mean that treatment doesn't exist".

    Tell us more, please??
     
  9. Snow Leopard

    Snow Leopard Hibernating

    Messages:
    4,615
    Likes:
    12,454
    South Australia
    She is pushing her book (without actually mentioning it)

    http://www.brokenmarionettebook.com/
     
    WillowJ likes this.

See more popular forum discussions.

Share This Page