Discussion in 'Phoenix Rising Articles' started by Mark, May 10, 2013.
View the Post on the Blog
View the Post on the Blog
Thanks Mark - really handy to have all those resources listed in one place!
The May 12th ME/FM Facebook page team have arranged to have Niagara Falls lit up with ME/FM colours.
The Niagara Parks Commission of Niagara Falls Canada has confirmed that Niagara Falls will be illuminated in blue from 9:45 to 10:00 PM EST representing Myalgic Encephalomyelitis. They have also confirmed that Niagara Falls will be illuminated in purple from 10:15 to 10:30PM EST representing Fibromyalgia. (http://www.niagaraparks.com/attractions/falls-illumination.html )
This event can be watched on the falls webcam at:
May 12th Facebook Team
Thanks PR for putting these Actions all together for us to see and take part in.
Thanks for the comprehensive round-up, Mark.
I had no idea ME Awareness Day was set up on Florence Nightingale's birthday - what a great idea. Love the plan to illuminate the Niagara Falls for ME, and Bob Miller's sky dive too.
Also thanks to my sister, running 10k to raise £500 for the ME Association this month as Jane's Jog: http://www.justgiving.com/JanesJog
Nice job rounding this huge amount of info up!
As some people may have seen, we've got a new calendar feature on PR:
that simply consists of a thread that people can use to notify us (me and welcome first volunteer Little Bluestem) of ME/CFS events that we then edit into the first post on that thread.
Low-tech, but effective, I hope!
Must confess this sudden deluge of ME Awareness Week events has caught me short so I'm cheating for now and providing a link to this article rather than each event.
Other interesting events already on there, though. I'm particularly hoping that people will notify us of expected publication dates (even ballpark) of interesting studies. There are some we're all waiting for with bated breath...
Anyway, hijack over - thanks again, Mark, for doing such a good job getting all this stuff together. It looks like it was a lot of work!
Thanks everyone, glad you like it.
I've added the Niagara Falls event to the article.
Twitter CFS/ME List – May 12 ME/CFS Awareness Day
Twitter search for ME/CFS
Journalist. Broadcaster. Social Commentator. Mum. Has an attitude about all injustice - and doesn't care who knows it.
Sociologist; My book - Authors of our own Misfortune? The Problems with Psychogenic Explanations for Physical Illness; Also Anti-Breed Specific Legislation
And World Wide Lyme Protest Day
The events in the Lyme sphere are sure to advance things for all.
Sorry I have been so busy
to write more
Many events across Australia, NZ and other countries.
I just logged in--thanks!
I just logged on at the end of it. Was this recorded?
Yes, the talks were recorded. They'll be available later on Dr. Stein's website.
I tried to upload a screen shot of Dr. Bateman's chart but failed! Apparently it has to be a PDF. It is still up if anyone else is able to do it.
Here's a screenshot too.
International ME/CFS & FM Awareness Day – May 12th
By Clark Ellis • ProHealth.com • April 23, 2013
The scene in Westminster today during the mass collapse for M.E. demo | 12 May 2013
by Tony Britton on May 12, 2013
The scene at 3pm in Westminster today during the ‘Fall down for M.E.’ demonstration. Photo taken (with thanks) from the Action for ME Twitter feed:
“RT @actionforme 83 people and two dogs – excellent turnout! We’ll have our video of the event online tomorrow. pic.twitter.com/oJFNORi6xC”
Photo of Bob Miller doing his fundraising skydive
Perhaps 83 people and two dogs will skydive next year.
You can also try a Google Site Search
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