1. Patients launch $1.27 million crowdfunding campaign for ME/CFS gut microbiome study.
    Check out the website, Facebook and Twitter. Join in donate and spread the word!
9th Invest in ME International ME Conference, 2014 - Part 1: Autoimmunity and ME
Mark Berry begins a series of articles on the 9th Invest in ME International ME Conference in London, with a look at three presentations on autoimmunity
Discuss the article on the Forums.

International Awareness Day, May 12th 2013: Worldwide Protests and Events

Discussion in 'Phoenix Rising Articles' started by Mark, May 10, 2013.

  1. Phoenix Rising Team

    Phoenix Rising Team

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    View the Post on the Blog

    View the Post on the Blog
    Simon, Valentijn, Ember and 1 other person like this.
  2. snowathlete

    snowathlete

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    Thanks Mark - really handy to have all those resources listed in one place!
  3. May12th

    May12th

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    The May 12th ME/FM Facebook page team have arranged to have Niagara Falls lit up with ME/FM colours.

    The Niagara Parks Commission of Niagara Falls Canada has confirmed that Niagara Falls will be illuminated in blue from 9:45 to 10:00 PM EST representing Myalgic Encephalomyelitis. They have also confirmed that Niagara Falls will be illuminated in purple from 10:15 to 10:30PM EST representing Fibromyalgia. (http://www.niagaraparks.com/attractions/falls-illumination.html )

    This event can be watched on the falls webcam at:

    http://www.niagarafallslive.com/Niagara_Falls_Webcam.htm

    May 12th Facebook Team
    www.facebook.com/May12th.Awareness
    beaker, ggingues, snowathlete and 2 others like this.
  4. BobM

    BobM

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    Reno, NV
    Thanks PR for putting these Actions all together for us to see and take part in.

    Bob Miller
    snowathlete, Simon and Valentijn like this.
  5. Simon

    Simon

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    Thanks for the comprehensive round-up, Mark.

    I had no idea ME Awareness Day was set up on Florence Nightingale's birthday - what a great idea. Love the plan to illuminate the Niagara Falls for ME, and Bob Miller's sky dive too.

    Also thanks to my sister, running 10k to raise £500 for the ME Association this month as Jane's Jog: http://www.justgiving.com/JanesJog
    Ember, Sasha and snowathlete like this.
  6. Sasha

    Sasha Fine, thank you

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    Nice job rounding this huge amount of info up!

    As some people may have seen, we've got a new calendar feature on PR:

    http://forums.phoenixrising.me/index.php?threads/calendar-of-me-cfs-events.23091/

    that simply consists of a thread that people can use to notify us (me and welcome first volunteer Little Bluestem) of ME/CFS events that we then edit into the first post on that thread.

    Low-tech, but effective, I hope!

    Must confess this sudden deluge of ME Awareness Week events has caught me short so I'm cheating for now and providing a link to this article rather than each event.

    Other interesting events already on there, though. I'm particularly hoping that people will notify us of expected publication dates (even ballpark) of interesting studies. There are some we're all waiting for with bated breath...

    Anyway, hijack over - thanks again, Mark, for doing such a good job getting all this stuff together. It looks like it was a lot of work!
    Simon likes this.
  7. Mark

    Mark Acting CEO

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    Thanks everyone, glad you like it.

    I've added the Niagara Falls event to the article.
    Simon likes this.
  8. Roy S

    Roy S former DC ME/CFS lobbyist

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    Twitter CFS/ME List – May 12 ME/CFS Awareness Day
     
    http://www.getupandgoguru.com/2013/05/11/twitter-cfsme-people-list-may-12-mecfs-awareness-day/
    Twitter search for ME/CFS
    https://twitter.com/search?q=#MECFS&src=hash
     
    https://twitter.com/SoniaPoulton
    Sonia Poulton
    @
    SoniaPoulton
    Journalist. Broadcaster. Social Commentator. Mum. Has an attitude about all injustice - and doesn't care who knows it.
     
    https://twitter.com/AcademicAnge
    Angela Kennedy
    @
    AcademicAnge
    Sociologist; My book - Authors of our own Misfortune? The Problems with Psychogenic Explanations for Physical Illness; Also Anti-Breed Specific Legislation
     
    https://twitter.com/WesselyS
    https://twitter.com/clarercgp

     
    (no comment)
     
     
  9. GcMAF Australia

    GcMAF Australia Senior Member

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    And World Wide Lyme Protest Day
    The events in the Lyme sphere are sure to advance things for all.
    Sorry I have been so busy
    to write more
    Many events across Australia, NZ and other countries.
    http://worldwidelymeprotestaustralia.weebly.com/index.html
    merylg likes this.
  10. Ember

    Ember Senior Member

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    Anybody listening?
  11. Sushi

    Sushi Moderator and Senior Member Albuquerque

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    I just logged in--thanks!
    Sushi
    Ember likes this.
  12. Nielk

    Nielk

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    I just logged on at the end of it. Was this recorded?
  13. Ember

    Ember Senior Member

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    Yes, the talks were recorded. They'll be available later on Dr. Stein's website.
  14. Sushi

    Sushi Moderator and Senior Member Albuquerque

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    I tried to upload a screen shot of Dr. Bateman's chart but failed! Apparently it has to be a PDF. It is still up if anyone else is able to do it.

    Sushi
  15. wdb

    wdb Admin

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    Attached Files:

    Sushi and Ember like this.
  16. Kina

    Kina Moderation Team Lead

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    Here's a screenshot too. Untitled.png
    Nielk, allyb, Sushi and 1 other person like this.
  17. Ember

    Ember Senior Member

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    International ME/CFS & FM Awareness Day – May 12th
    By Clark Ellis • ProHealth.com • April 23, 2013
    snowathlete likes this.
  18. Ember

    Ember Senior Member

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    The scene in Westminster today during the mass collapse for M.E. demo | 12 May 2013

    by Tony Britton on May 12, 2013

    [​IMG]
    The scene at 3pm in Westminster today during the ‘Fall down for M.E.’ demonstration. Photo taken (with thanks) from the Action for ME Twitter feed:

    “RT @actionforme 83 people and two dogs – excellent turnout! We’ll have our video of the event online tomorrow. pic.twitter.com/oJFNORi6xC”
    Nielk and snowathlete like this.
  19. Sasha

    Sasha Fine, thank you

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  20. Ember

    Ember Senior Member

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    Perhaps 83 people and two dogs will skydive next year.;)
    Sasha likes this.

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