1. Patients launch $1.27 million crowdfunding campaign for ME/CFS gut microbiome study.
    Check out the website, Facebook and Twitter. Join in donate and spread the word!
The ePatient Revolution
Ryan Prior shares his experience and his thoughts from attending the Stanford Medicine X Conference as he contemplates the rising of the ePatient Revolution ...
Discuss the article on the Forums.

International Awareness Day, May 12th 2013: Worldwide Protests and Events

Discussion in 'Phoenix Rising Articles' started by Mark, May 10, 2013.

  1. Phoenix Rising Team

    Phoenix Rising Team

    Messages:
    650
    Likes:
    1,016
    View the Post on the Blog

    View the Post on the Blog
     
    Simon, Valentijn, Ember and 1 other person like this.
  2. snowathlete

    snowathlete

    Messages:
    2,176
    Likes:
    2,573
    UK
    Thanks Mark - really handy to have all those resources listed in one place!
     
  3. May12th

    May12th

    Messages:
    35
    Likes:
    36
    The May 12th ME/FM Facebook page team have arranged to have Niagara Falls lit up with ME/FM colours.

    The Niagara Parks Commission of Niagara Falls Canada has confirmed that Niagara Falls will be illuminated in blue from 9:45 to 10:00 PM EST representing Myalgic Encephalomyelitis. They have also confirmed that Niagara Falls will be illuminated in purple from 10:15 to 10:30PM EST representing Fibromyalgia. (http://www.niagaraparks.com/attractions/falls-illumination.html )

    This event can be watched on the falls webcam at:

    http://www.niagarafallslive.com/Niagara_Falls_Webcam.htm

    May 12th Facebook Team
    www.facebook.com/May12th.Awareness
     
    beaker, ggingues, snowathlete and 2 others like this.
  4. BobM

    BobM

    Messages:
    47
    Likes:
    49
    Reno, NV
    Thanks PR for putting these Actions all together for us to see and take part in.

    Bob Miller
     
    snowathlete, Simon and Valentijn like this.
  5. Simon

    Simon

    Messages:
    1,455
    Likes:
    4,647
    Monmouth, UK
    Thanks for the comprehensive round-up, Mark.

    I had no idea ME Awareness Day was set up on Florence Nightingale's birthday - what a great idea. Love the plan to illuminate the Niagara Falls for ME, and Bob Miller's sky dive too.

    Also thanks to my sister, running 10k to raise £500 for the ME Association this month as Jane's Jog: http://www.justgiving.com/JanesJog
     
    Ember, Sasha and snowathlete like this.
  6. Sasha

    Sasha Fine, thank you

    Messages:
    8,389
    Likes:
    7,474
    UK
    Nice job rounding this huge amount of info up!

    As some people may have seen, we've got a new calendar feature on PR:

    http://forums.phoenixrising.me/index.php?threads/calendar-of-me-cfs-events.23091/

    that simply consists of a thread that people can use to notify us (me and welcome first volunteer Little Bluestem) of ME/CFS events that we then edit into the first post on that thread.

    Low-tech, but effective, I hope!

    Must confess this sudden deluge of ME Awareness Week events has caught me short so I'm cheating for now and providing a link to this article rather than each event.

    Other interesting events already on there, though. I'm particularly hoping that people will notify us of expected publication dates (even ballpark) of interesting studies. There are some we're all waiting for with bated breath...

    Anyway, hijack over - thanks again, Mark, for doing such a good job getting all this stuff together. It looks like it was a lot of work!
     
    Simon likes this.
  7. Mark

    Mark Acting CEO

    Messages:
    4,528
    Likes:
    2,004
    Sofa, UK
    Thanks everyone, glad you like it.

    I've added the Niagara Falls event to the article.
     
    Simon likes this.
  8. Roy S

    Roy S former DC ME/CFS lobbyist

    Messages:
    441
    Likes:
    451
    Illinois, USA
    Twitter CFS/ME List – May 12 ME/CFS Awareness Day
     
    http://www.getupandgoguru.com/2013/05/11/twitter-cfsme-people-list-may-12-mecfs-awareness-day/
    Twitter search for ME/CFS
    https://twitter.com/search?q=#MECFS&src=hash
     
    https://twitter.com/SoniaPoulton
    Sonia Poulton
    @
    SoniaPoulton
    Journalist. Broadcaster. Social Commentator. Mum. Has an attitude about all injustice - and doesn't care who knows it.
     
    https://twitter.com/AcademicAnge
    Angela Kennedy
    @
    AcademicAnge
    Sociologist; My book - Authors of our own Misfortune? The Problems with Psychogenic Explanations for Physical Illness; Also Anti-Breed Specific Legislation
     
    https://twitter.com/WesselyS
    https://twitter.com/clarercgp

     
    (no comment)
     
     
     
  9. GcMAF Australia

    GcMAF Australia Senior Member

    Messages:
    661
    Likes:
    553
    And World Wide Lyme Protest Day
    The events in the Lyme sphere are sure to advance things for all.
    Sorry I have been so busy
    to write more
    Many events across Australia, NZ and other countries.
    http://worldwidelymeprotestaustralia.weebly.com/index.html
     
    merylg likes this.
  10. Ember

    Ember Senior Member

    Messages:
    1,728
    Likes:
    1,781
    Anybody listening?
     
  11. Sushi

    Sushi Moderator and Senior Member Albuquerque

    Messages:
    7,076
    Likes:
    6,039
    Albuquerque
    I just logged in--thanks!
    Sushi
     
    Ember likes this.
  12. Nielk

    Nielk

    Messages:
    5,272
    Likes:
    5,279
    Queens, NY
    I just logged on at the end of it. Was this recorded?
     
  13. Ember

    Ember Senior Member

    Messages:
    1,728
    Likes:
    1,781
    Yes, the talks were recorded. They'll be available later on Dr. Stein's website.
     
  14. Sushi

    Sushi Moderator and Senior Member Albuquerque

    Messages:
    7,076
    Likes:
    6,039
    Albuquerque
    I tried to upload a screen shot of Dr. Bateman's chart but failed! Apparently it has to be a PDF. It is still up if anyone else is able to do it.

    Sushi
     
  15. wdb

    wdb Admin

    Messages:
    860
    Likes:
    655
    London
     

    Attached Files:

    Sushi and Ember like this.
  16. Kina

    Kina Moderation Team Lead

    Messages:
    5,664
    Likes:
    4,332
    Ontario, Canada
    Here's a screenshot too. Untitled.png
     
    Nielk, allyb, Sushi and 1 other person like this.
  17. Ember

    Ember Senior Member

    Messages:
    1,728
    Likes:
    1,781
    International ME/CFS & FM Awareness Day – May 12th
    By Clark Ellis • ProHealth.com • April 23, 2013
     
    snowathlete likes this.
  18. Ember

    Ember Senior Member

    Messages:
    1,728
    Likes:
    1,781
    The scene in Westminster today during the mass collapse for M.E. demo | 12 May 2013

    by Tony Britton on May 12, 2013

    [​IMG]
    The scene at 3pm in Westminster today during the ‘Fall down for M.E.’ demonstration. Photo taken (with thanks) from the Action for ME Twitter feed:

    “RT @actionforme 83 people and two dogs – excellent turnout! We’ll have our video of the event online tomorrow. pic.twitter.com/oJFNORi6xC”
     
    Nielk and snowathlete like this.
  19. Sasha

    Sasha Fine, thank you

    Messages:
    8,389
    Likes:
    7,474
    UK
  20. Ember

    Ember Senior Member

    Messages:
    1,728
    Likes:
    1,781
    Perhaps 83 people and two dogs will skydive next year.;)
     
    Sasha likes this.

See more popular forum discussions.

Share This Page