Invest in ME Conference 12: First Class in Every Way
OverTheHills wraps up our series of articles on this year's 12th Invest in ME International Conference (IIMEC12) in London with some reflections on her experience as a patient attending the conference for the first time.
Discuss the article on the Forums.

Interesting Engineering: New Research Sheds Light on the Mystery of CFS

Discussion in 'General ME/CFS News' started by Kalliope, Sep 12, 2017.

  1. Kalliope

    Kalliope Senior Member

    Messages:
    367
    Likes:
    3,549
    Norway
    I follow Interesting Engineering on Facebook (together with over 7 million others) and to my surprise they've written an article on ME-research :woot:
    New Research Sheds Light on the Mystery of Chronic Fatigue Syndrome - Megan Ray Nichols

    - A new study may have found the answer — or at least a piece of the puzzle that is chronic fatigue syndrome. The disorder may, in fact, be related to the body’s immune system. Normally, when the body fights off an infection, the immune system goes back into standby mode after the infection has passed. In individuals with chronic fatigue syndrome, it appears that the immune system doesn’t go back into this standby state after it has defeated the infection.

    - Whatever the case, researchers now have a place to start. They’ve accepted the fact that chronic fatigue syndrome is a real thing, and they know how to diagnose it


    Here is a post on Facebook from Interesting Engineering about the article, in case anyone wants to take part in the discussion.

    I think it is wonderful with such reports about the research field that reach a broad audience.
     
    Last edited: Sep 12, 2017
  2. Barry53

    Barry53 Senior Member

    Messages:
    2,277
    Likes:
    13,708
    UK
    It's a pity the author didn't state the research in question, which would have leant much more weight to the words. And the ad showing someone daintily sneezing with hayfever is a bit unfortunate. But nonetheless I agree, it is good to see this coming more into the open.
     
    Invisible Woman, Kalliope and AndyPR like this.
  3. Kalliope

    Kalliope Senior Member

    Messages:
    367
    Likes:
    3,549
    Norway
    Wonder what Interesting Engineering would think about all the cool gadgets from Ron Davis and his team..
     
    Isaiah 58:11, mango, Barry53 and 6 others like this.
  4. Joh

    Joh Inactivist

    Messages:
    766
    Likes:
    4,655
    Germany
    Can't open the page (with the article). Maybe it crashed because 7 million people want to learn about CFS at the same time. :)
     
    alkt, BurnA, AndyPR and 2 others like this.
  5. anni66

    anni66 mum to ME daughter

    Messages:
    263
    Likes:
    983
    scotland
    Sadly the facebook posts reinforce the udyal stereotypes, perhaps worth multiple corrections ....
     
    AndyPR, ScottTriGuy and Kalliope like this.
  6. Joh

    Joh Inactivist

    Messages:
    766
    Likes:
    4,655
    Germany
    I have to stop reading comments (edited to say: not here, on the general internet :)). No matter how good an article or video is (don't know this one, can't open) the comments are heartbreaking. On facebook:

    And these are harmless compared to other articles. What's wrong with people? It's all because of this stupid name CFS that I hate so much. (Sorry, bad day)
     
    Chezboo, alkt, mango and 11 others like this.
  7. lauluce

    lauluce as long as you manage to stay alive, there's hope

    Messages:
    425
    Likes:
    683
    argentina
    Oh, I'll start to follow them
     
    Kalliope likes this.
  8. Kalliope

    Kalliope Senior Member

    Messages:
    367
    Likes:
    3,549
    Norway
    I understand completely. Some heroes are already out there in the comments spreading the gospel of knowledge and research. Big thanks to all of them - am too spent myself today to join in.
     
    TigerLilea, AndyPR, Valentijn and 4 others like this.
  9. Joh

    Joh Inactivist

    Messages:
    766
    Likes:
    4,655
    Germany
    Can everybody except me open the article?
     
  10. Valentijn

    Valentijn Senior Member

    Messages:
    14,281
    Likes:
    45,834
    There's only two bad comments, and good responses to them.
     
  11. HowToEscape?

    HowToEscape? Senior Member

    Messages:
    513
    Likes:
    679
    That execrable name is highly suggestive. Before I realized I have the disease myself it sounded like "you complain a lot" disease.

    I wouldn't take it personally it's just an uninformed reaction to the name, not the substance. That name needs to go away for that reason.
     
    Kalliope, TiredSam and Joh like this.
  12. AndyPR

    AndyPR Senior Member

    It opened OK for me, perhaps try again?
     
    Kalliope and Joh like this.
  13. Barry53

    Barry53 Senior Member

    Messages:
    2,277
    Likes:
    13,708
    UK
    I notice that when the article opens it puts up a pop-up window as per ...

    upload_2017-9-12_17-9-47.png

    I wonder if your browser is blocking any sites which try to do this? There are browser setting which affect this, but I cannot check at the moment. Anyone else help check this?
     
    Kalliope and Joh like this.
  14. lnester7

    lnester7 Seven

    Messages:
    2,491
    Likes:
    3,607
    USA
    Very bizarre there is no link to the study or any referential links to the material.
     
    AndyPR and Kalliope like this.
  15. Joh

    Joh Inactivist

    Messages:
    766
    Likes:
    4,655
    Germany
    @Barry53, Thanks for your help! My laptop claims the site https://interestingengineering.com/ does not exist. In addition, my laptop gets apparently very sad when I try to read something about engineering (see screenshot). But that's ok, article is not important enough to spend evening fighting with sulky laptop. Maybe my computer is afraid that I will see newer and better computers if I visit an engineering/tech site. Or that we won't spend so much time together anymore if I read the smart article with recommendations and get healthy. Who knows.

    Bildschirmfoto 2017-09-12 um 18.35.01.png
     

    Attached Files:

    AndyPR, Kalliope and TiredSam like this.
  16. *GG*

    *GG* Senior Member

    Messages:
    6,191
    Likes:
    4,829
    Concord, NH
    I had the Notification show up, I blocked it, and can still read the article.

    GG
     
    Joh, Kalliope and Barry53 like this.
  17. Joh

    Joh Inactivist

    Messages:
    766
    Likes:
    4,655
    Germany
    I don't even get the notification, just a grey page (looks like laptop has brainfog) with this sad looking little page. But it's ok, just let me know if article mentions a cure. ;)
     
    AndyPR and Kalliope like this.
  18. Kalliope

    Kalliope Senior Member

    Messages:
    367
    Likes:
    3,549
    Norway
    No, nothing new or important. Just nice to see this disease mentioned on new platforms with many followers :)
     
    Valentijn, AndyPR, Joh and 1 other person like this.
  19. *GG*

    *GG* Senior Member

    Messages:
    6,191
    Likes:
    4,829
    Concord, NH
    I get Internal Server error now.

    GG

    Edit: But not more recently.
     
    Last edited: Sep 13, 2017
    Joh likes this.

See more popular forum discussions.

Share This Page