The Pathway to Prevention (P2P) for ME/CFS: A Dangerous Process
Gabby Klein gives an overview of the P2P process, shedding light on the pitfalls with advice as to what we can do in protest ...
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Interesting blog on CAA an CDC

Discussion in 'General ME/CFS News' started by alice1, Dec 26, 2009.

  1. CFSLogic

    CFSLogic Guest

    Teejkay

    Teejkay:

    There seems to be an over-arching theme to all your posts that involve the CAA of a constant whining and complaining. It seems like all you know how to do is bitch and moan about how the CAA did this, or why didn't the CAA do that...

    You, nor I, have any idea what was included in WPI's research application -- 44 independent reviewers obviously thought it lacked something. Who knows what their application was about? Just because WPI "discovered" XMRV in October does not mean that their "discovery" deserved recognition.

    What logic are you using when you make statements like:

    Were you involved in the decision making process? Do you know SPECIFICALLY how many RFA's were submitted by WPI, and for what? Why do you feel it's necessary that the CAA fund WPI's research?

    WPI should not have ANY problems generating money for research with the Whittemore family being worth nearly $2 BILLION. If they wanted, they could build a center of excellence -- as opposed to the current hole in the ground in the desert that is the WPI. Shit, if my parents were worth $2 Billion, I most likely would not be sick right now. I'm sure they would spend every dollar in an effort to get me healthy. I would like to think that no amount is too much as it relates your child.

    And you, nor I, knew the content of the requests for grants, including any from WPI. Maybe their application wasn't done correctly. Maybe WPI's application lacked something specific, and so on.

    Everyone has jumped on the XMRV bandwagon, and we don't even know yet its role in CFS (if any), or treatments for it. So your logic is that the CAA should automatically fund WPI because of their XMRV "discovery". Also, the CAA should have funded WPI in 2008 before news about XMRV came out in October 2009. Is this your logic? Instead of constantly questioning or complaining about the CAA not funding WPI, why not do the same to the Whittemore family, with their $2 Billion fortune? Why not demand that WPI fund more research, and then help them get it? There are so many more positive things one could do to help make progress against CFS/ME.

    Again, your incessant bitching about anything the CAA does or does not do is old and lame. If you aren't happy with something in your life, work to change it, instead of posting unrelenting drivel about the CAA. If you are so concerned about their perceived ineffectiveness in a specific area, maybe you should stop bitching about it, and focus your efforts and energy on working to fill in the perceived "gaps". Instead of whining all over the ME/CFS forums, get and remain proactive in your struggle with CFS. Write and/or call your elected officials. Become an advocate for others. I could go on and on, but you get my point.
     
  2. valia

    valia Senior Member

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    Hi CFSLogic, People around here don't pay much attention to newbies (first posters).

    Hey, why don't you post it again using the name you usually use? You know the one we are all familiar with. Cheers.

    .
     
  3. fresh_eyes

    fresh_eyes happy to be here

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    Hi CFSLogic. Please don't criticize people on here. It doesn't help. In fact, it adds to any useless hostility, which seems to be what you're asking others to stop doing. Perhaps instead you could put forward your ideas for how to create change.
     
  4. alice1

    alice1 Senior Member

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    LOL..
    cfslogic(if that's who you are) that gave me a good giggle..thanks.
    A good bitch fest and a laugh is good medicine.
     
  5. dipic

    dipic Senior Member

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    Seconded. Pretty immature not to mention cowardly to hide behind a newly registered name just so you can criticize someone without fear of consequence or humiliation.

    CFSLogic seems to have taken tee's comments quite personally. Gee, I wonder who they could be. :rolleyes:
     
  6. Marylib

    Marylib Senior Member

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    So who is this person?

    Seems you all might know this person under another name? If so, I have missed it.

    I find it particularly offensive to insult the Whittemores and the WPI. If Andrea (who is far from well!) reads these posts from time to time, I hope she can do the "la la la I can't hear you" :)
     
  7. MEKoan

    MEKoan Senior Member

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    I don't know what's going on either but I share Marylib's reaction to the comments about the Whittemores. CFSLogic seemed, to me, to be suggesting that they almost did too little!

    I don't think I want to know who this is.
     
  8. alice1

    alice1 Senior Member

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    I did laugh out loud because it was taken so personally when the topic wasn't aimed at anyone on this board.
    People who want to be supportive of one another can certainly have differences of opinions.That's human.
    No need to be mean-spirited though.
     
  9. Robin

    Robin Guest

    Hi CFSLogic. There's no need to get personal. Say what you wish, but please use civil language when addressing another poster.

    And to everyone else, let us handle the allegation of posting under two accounts. For now, we don't worry about who people are, it's what they say. :)
     
  10. glenp

    glenp "and this too shall pass"

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    Vancouver Canada suburbs
  11. Marylib

    Marylib Senior Member

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    WPI needs funding

    It is my impression that the WPI needs funding just like everyone else. They have been well supported by local and Nevada state agencies. But I think that no grant would be peanuts to them.
     
  12. bluebonnet

    bluebonnet

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    I'm sure you know that the circle of people who knew XMRV was under investigtion was small because it had to be small or the research wouldn't have been published. My own ME/CFS doctor, who sent blood samples to WPI for their research project, had to first sign a non-disclosure agreement before he was allowed to participate. As far as what contributed to the splash and attention following the publication in Science, I don't believe the all the flurry had anything to do with the small number of people who knew about the research; I believe it had everything to do with the significance of the research. JMHO.
     

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