Dear Elizabeth,
here are my concerns. I look forward to reading your reply.
Elizabeth Kendrik M.S. stated in a message on CoCure 04 November 2012 06:25:
"Do you suffer from chronic fatigue syndrome? How has your interaction with
medical providers affected you? Would you like to share your experiences
with others? Please participate in the survey below to add your voice to the
body of research on chronic fatigue syndrome. After completing the survey,
please share this link with others who suffer from CFS.
https://www.surveymonkey.com/s/R79PHB2 "
I have gone through this survey and can detect nothing that relates to "How
has your interaction with medical providers affected you?". There is a page
of questions about interactions with medical professionals; e.g.: "Medical
professionals think I should be tougher" [select from - Seldom, Sometimes,
Often, Very Often]. There is nothing about how this affected the
respondent.
There are virtually identical pages of questions for interactions with
Social Services, Family, Spouse/Partner, Work colleagues. There are
questions seeking details about diagnosis and symptoms. There are questions
that appear to be evaluating coping, anxiety, depression and emotional
lability.
I do not believe that this research is about: 'How has your interaction with
medical providers affected you?'
If this is a mistake, in my opinion it would still be unacceptable to mislead potential
research participants.
Peter Kemp