Kati
Patient in training
- Messages
- 5,497
Here is what I think.
Medicine is based on science, notably clinical trials and scientific method is guiding treatment protocols for most medical conditions out there (except of course ME and a few other stigmatized conditions)
So you have stage 3 large B-Cell Lymphoma? There is a protocol for that. There are guidelines. You have just been diagnosed with HIV type 1? There are treatment guidelines for that. And so on. This is medicine. It's a big book of protocols and procedures which is being updated from year to year thanks to government-funded research and clinical trials.
Nowhere in 'the book' there is a concept of 'adrenal fatigue'. Or chelation. Or coffee enema. Or liver cleanse. These have been brought on by alternative medicine practitionners, without much scientific proof. No physician in their right mind would perform a hair analysis or live blood analysis for that matter.
Now with ME the governments have failed to fund the disease. So the evidence and treatment protocols are pretty much inexistent. Heck, we can't agree on which case definition and whether Lyme disease is a separate entity or a co-existing infection. The book says we need CBT and GET. We all know it's wrong. People like @Tom Kindlon and a few others have been very outspoken in addressing serious concerns of methodology of the fraudulent science in this regard and I am absolutely grateful for that. We are fighting the very people who are blocking and delaying science.
In my views, integrative medicine is basically 'soft medicine'- focusing on nutrition and basic body function and a whole lot of theories. If people want to do that for themselves, fine. However as a patient group, what is needed is science and mainstreaming the disease so we can have access to what science can offer, the best available treatments possible for our condition. Integrative medicine should be 'complimentary medicine' not the only thing that's available for us.
Years ago, I was told by a supposedly very capable physician that there would be no testing available for me but I could enter a CBT program to learn about my illness, that I should learn how to meditate and I should also see a naturopath. I was totally offended. If I presented with cancer and was told the same thing by an oncologist, that oncologist would have been fired. While there are no approved treatments nor diagnostic tests available, there are several tests that are used by our ME experts to assess immune and endocrine system, and there are medical treatments associated with those.
Patients are worthy of the investment of medicine.
Medicine is based on science, notably clinical trials and scientific method is guiding treatment protocols for most medical conditions out there (except of course ME and a few other stigmatized conditions)
So you have stage 3 large B-Cell Lymphoma? There is a protocol for that. There are guidelines. You have just been diagnosed with HIV type 1? There are treatment guidelines for that. And so on. This is medicine. It's a big book of protocols and procedures which is being updated from year to year thanks to government-funded research and clinical trials.
Nowhere in 'the book' there is a concept of 'adrenal fatigue'. Or chelation. Or coffee enema. Or liver cleanse. These have been brought on by alternative medicine practitionners, without much scientific proof. No physician in their right mind would perform a hair analysis or live blood analysis for that matter.
Now with ME the governments have failed to fund the disease. So the evidence and treatment protocols are pretty much inexistent. Heck, we can't agree on which case definition and whether Lyme disease is a separate entity or a co-existing infection. The book says we need CBT and GET. We all know it's wrong. People like @Tom Kindlon and a few others have been very outspoken in addressing serious concerns of methodology of the fraudulent science in this regard and I am absolutely grateful for that. We are fighting the very people who are blocking and delaying science.
In my views, integrative medicine is basically 'soft medicine'- focusing on nutrition and basic body function and a whole lot of theories. If people want to do that for themselves, fine. However as a patient group, what is needed is science and mainstreaming the disease so we can have access to what science can offer, the best available treatments possible for our condition. Integrative medicine should be 'complimentary medicine' not the only thing that's available for us.
Years ago, I was told by a supposedly very capable physician that there would be no testing available for me but I could enter a CBT program to learn about my illness, that I should learn how to meditate and I should also see a naturopath. I was totally offended. If I presented with cancer and was told the same thing by an oncologist, that oncologist would have been fired. While there are no approved treatments nor diagnostic tests available, there are several tests that are used by our ME experts to assess immune and endocrine system, and there are medical treatments associated with those.
Patients are worthy of the investment of medicine.
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