1. Patients launch $1.27 million crowdfunding campaign for ME/CFS gut microbiome study.
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Never Ask Us if We're Hungry -- The Answer's Always No
There are three of us here and for many years, none of us ever got hungry. When our brains would turn to mush, when our faces would go numb, and we would start the invisible vibration which is the signature dance of ME/CFS, we knew we needed to eat.
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  1. SaveMe

    SaveMe *****

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    the city
    Im on inosine 500mg and its making me worse. Any one take Inosine?
  2. leaves

    leaves Senior Member

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    Stop it if it makes you worse. I got a severe setback from imunovir (inosine) also use search; there are many threads on this subject already, no need to start yet another one.
    If you want to communicate, why don't you go to the chatroom?
    Best
  3. SaveMe

    SaveMe *****

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    the city
    please help
    can u elaborate on your setback?
    inosine is giving me intense muscle aches and fatigue
    someone said it was a die-off thing
    I dont know what to do
    its only my third day on it :( thank you
    i feel like im dying :(
  4. SaveMe

    SaveMe *****

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    the city
    i dont see another inosine thread btw
  5. leaves

    leaves Senior Member

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    Hi There,

    I am sorry you feel bad. I think it is quite unlikely that youll die from inosine, that would be a first ..
    I got my setback from imunovir which is a form of inosine. Basically last year I was able to go out several times a day, and even work some, but at the moment I cant anymore. I cannot prove it is the imunovir, but i suspect it.
    Just search imunovir and youll find it. I dont buy die off anymore. if you dont feel better at all, its not worth the risk.
  6. SaveMe

    SaveMe *****

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    the city
    thanks Leaves,
    guess i just wasted $15 at the vitaminshoppe. :(
    Yeah, it is definitely exacerbating my muscle pains. like never before
    I wonder by what mechanism it is making me worse? since it is an antiviral
  7. SaveMe

    SaveMe *****

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    the city
    thanks Leaves,
    guess i just wasted $15 at the vitaminshoppe. :(
    Yeah, it is definitely exacerbating my muscle pains. like never before
    I wonder by what mechanism it is making me worse? since it is an antiviral
  8. leaves

    leaves Senior Member

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    If you have xmrv t cell activation can increase viral load.
  9. SaveMe

    SaveMe *****

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    the city
    damn it, it was referred by someone. then i did a little research on it.
    Under oxidative stress (attack by virus at the cellular level), Oxidized Gluatathione (spent side) appears to modulate inosine, causing knock-out of "viral load."
    and thought it was safe.

    I tell you with honesty, this stuff is making me worse. im throwing it out. how long did you take it?
  10. HopeNHealing

    HopeNHealing

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    Hi SaveMe,

    I don't think it was a waste of money to try the inosine. You never know if you don't try. I started it about three weeks ago and it has been absolutely AMAZING for me! I took it for 2 1/2 wks and took a 3 day break and am starting it up again. I feel so much better with it -- better stamina, able to be more physically active with it with less/no PEM for sure. I am XMRV positive by culture and have been on natural antivirals for about a year and have done massive amounts of detox and always take things to help with die off (absorb toxins and deal with inflammation) at the same time I take antivirals so that I can make sure to feel the benefit and not just have the die off/detox symptoms. So, I might have found benefit from when I tried it in the scheme of things as well as because of the other things that I take with it that might prevent die off symptoms. I hope that made sense. I am better at talking than typing. :D Also, I use muscle testing to tell if something is die off versus just plain ole making me sick. I highly recommend the technique and I know I would not be where I am today without it.
  11. SOC

    SOC Moderator and Senior Member

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    USA
    Go to the tabs at the top of the page. Click FORUMS. Scroll down through the list of forums to Treatment (or something like that). Under that look for Antivirals. Click on that for a list of threads. Right now the first listed thread (from today) is Inosine.

    What are you majoring in at college?
  12. Joopiter76

    Joopiter76 Senior Member

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    Inosine made me very worse too. Very severe heart beating and weakness.
  13. heapsreal

    heapsreal iherb 10% discount code OPA989,

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    australia (brisbane)
    several years ago i had a very good reaction and felt almost 100%, even my sleep returned which is one of my worst symptoms that u would no if u have read some of my bloggs, it lasted about 6 weeks then i crashed. I was unable to repeat this experience so dont know if it was a fluke or not, but it does help with joint pain through increasing uric acid levels which actually works as an antioxidant , but the only worning is if u have gout as it can worsen this. Now as i finish writting this, i think i may have already replied with a similar reply, brain farts, arent they great, lol. If your after a good immune modulator look into cycloferon in one of my bloggs in antiviral section,

    good luck,
    cheers!!!!

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