A New Decade of ME Research: The 11th Invest in ME International ME Conference 2016
Mark Berry presents the first in a series of articles on the 11th Invest in ME International ME Conference in London ...
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Infographics archive?

Discussion in 'Action Alerts and Advocacy' started by JD_Lucas, Nov 5, 2017.

  1. CFS_for_19_years

    CFS_for_19_years Hoarder of biscuits

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    You've got a lot of good ideas!

    I think more people will see your question if you start a new thread with your question. Then you can post a link to this thread so everyone can see what you do.

    I wish I could offer my time, but I'm not up to it. I hope you will find others who will help you.
     
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  2. MartinDH

    MartinDH Senior Member

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    @JD_Lucas This is great! Maybe you can even licence your graphics to OMF so they can spread it worldwide!
     
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  3. Joh

    Joh Inactivist

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  4. JD_Lucas

    JD_Lucas

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    Unfortunately I need to attend to a couple of issues which mean I can't focus on this project at the moment. However, if anyone is a graphic designer comfortable with vector graphics you're welcome to join in.

    If you're willing to help I can send the templates I've designed so far (see image below).
     

    Attached Files:

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  5. Joh

    Joh Inactivist

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    Hi @JD_Lucas, great work!

    The numbers were different for the first graphic, after reanalysis from an independent group per the original protocol it was 4 and 7 per cent (numbers 20 and 21 stem from the pace authors).
    [​IMG]
     
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  6. JD_Lucas

    JD_Lucas

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    Thanks! Have you got a link to the reanalysis?
     
  7. Joh

    Joh Inactivist

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    Hi,

    If I remember correctly, the PACE team said something about 60% (back to normal, but later claimed they only meant improved?) at a press conference. The PACE authors published (2 years later?) the 22% as recovered. At reanalysis it turned out to be 4 and 7% per the original protocol.

    A collection of every link/information: http://me-pedia.org/wiki/PACE_trial

    Reanalysis: http://www.tandfonline.com/doi/abs/10.1080/21641846.2017.1259724?journalCode=rftg20

    A first full re-analysis was published as 'A preliminary analysis of ‘recovery’ from chronic fatigue syndrome in the PACE trial using individual participant data' and was conducted by Alem Matthees, Tom Kindlon, Carly Maryhew, Philip Stark and Bruce Levin and stated "This re-analysis demonstrates that the previously reported recovery rates were inflated by an average of four-fold.".
    http://me-pedia.org/wiki/PACE_trial

    I hope this is not too confusing, not doing well at the moment and it's complex to write about in a foreign language. Some graphics from the 2 reanalysis:

    [​IMG]

    [​IMG]

    [​IMG]
     
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  8. JD_Lucas

    JD_Lucas

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    Thanks for sharing....You've been a fantastic help with all this @Joh!
     
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  9. gabriella17

    gabriella17 Senior Member

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    Just a note, in case you or anyone else here is interested, somewhere down the road...

    I've been wanting to find someone who can do graphics for some ideas I have that would better visually express what it's like to have ME. Nothing I could find really expresses it in such a way that non-ME people can relate. It's not really descriptive enough to say, "imagine having the flu all day, every day." This is just a project I want to work on at some point in the future.
     
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  10. JD_Lucas

    JD_Lucas

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    Hi @gabriella17! Yep, I would eventually like to broaden the scope and experiment with ideas other than hard data and numbers. Currently trying to find the right balance so I don't make myself sick - my mind races away with ideas but the body can't keep up. I'll keep you in mind as I develop the project.

    Hopefully I'll contact some other graphic designers within the ME community to collaborate with as I progress.
     
    Last edited: Dec 7, 2017 at 1:22 PM
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  11. gabriella17

    gabriella17 Senior Member

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    Haha, I'm in the same boat - too many ideas, combined with the desire to advocate = potential for worsening! :rolleyes:
     

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